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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    Hello, I have a favor to ask all of you. I need to prepare some info on Celiac for my 504 meeting tomorrow. Does anyone have any good sited info that I can give to the panel of people? I also am looking for something that talks about glutening in general, so they know that when I am glutened I need to stay home, but some sort of scientificness that backs...
  2. confusedks
    Does a 504 go with you from High School to college? I am a junior in HS and we are in the process of getting me one because of my other health issues, but I didn't think it would go with me to college? Kassandra
  3. confusedks
    Angie, Would you mind sharing the recipe? That sounds REALLY good! Kassandra
  4. confusedks
    I would love to hear about this. I am 17 and I have 6 disc bulges just in my lumbar spine! It is ridiculous! Kassandra
  5. confusedks
    Rachel, When you went off corn, did you notice a big difference? Are you still off of it? I have thought about going off, but I don't know if I should. I think it would just be yet "another" intolerance which is probable a product of Lyme? Kassandra
  6. confusedks
    Ami, Thank you! LOL! It was funny though. I still think it would be fun to go to his office dressed as a hunchback! I think he would laugh since he is a pediatric doctor! Jin, That's interesting to hear about your brother. I think if my brother actually HAD a job, it would be a different story. But he has done nothing since January! I actually...
  7. confusedks
    Fiddle-Faddle, Thanks for that info! I will print out some info about the connection and give it to my friend! Kassandra
  8. confusedks
    This is really interesting. I was actually googling ADHD (which is different than ADD, but kinda similar) because my friends little brother was diagnosed with it and they of course put him on meds for it immediately. The parents are fairly unwilling to try diet changes such as a Gluten-free Casein-free (gluten free, casein free) diet. It is great to hear...
  9. confusedks
    1. Make sure you buy new pots and pans and a toaster, serving spoons, etc. 2. (This was already kinda mentioned but...)Don't let people tell you it's not worth it. As much as you are going to seem like a PITA, you and your health are worth it! Do NOT let anybody tell you otherwise! 3. Enjoy all of the excitement when you make a new gluten free...
  10. confusedks
    Namaste Spice Cake with Carrot Cake variation (made into cupcakes with shredded carrots and golden raisins!!! SO GOOD) These are by far my favorite gluten free substitute! Kassandra
  11. confusedks
    They had an ad for them in their fearless flyer! We were there today and I saw the cookies...but they have soy lecithin in them! Kassandra
  12. confusedks
    It is difficult because we are shopping about every 3 days. We are lucky to have a Trader Joe's almost walking distance and multiple Whole Foods fairly close. We don't even really go to Ralphs, Vons, etc. anymore. Also, we have gotten smart about things. We used to but frozen rice all the time and just heat it up, but if we just make one big batch and put...
  13. confusedks
    Carla, LOL!!! I don't really look like a hunchback, but if I sit naturally, I totally do! I remember sitting up straight in my avatar picture so I wouldn't look silly! As far as my brother, I totally agree that some MAJOR tough love needs to happen. I think it is ridiculous that he does nothing, and I agree...you must have been a great parent. I agree...
  14. confusedks
    I have some gluten-free, sf, cf icing and I want to use it on cupcakes but it calls for margarine or butter to make the mix. I was wondering if anyone has ever substituted butter/margarine and used Spectrum shortening instead? Would it taste weird? If you have any other icing ideas, let me know! Thanks! Kassandra
  15. confusedks
    I am soy free as well as other things. I didn't notice a HUGE difference when I went soy free, but I also have other health problems going on. I am EXTREMELY dedicated to my diet and I eat very healthfully most of the time, but I still have other GI an brain symptoms, so I am getting tested for other health problems. Cody, are you dairy free? It is EXTREMELY...
  16. confusedks
    Yea, that makes much more sense! I get it now! Thanks for clarification. Kassandra
  17. confusedks
    NewGFMom, I don't know of a doctor, BUT I am worried that your Dr. told you to do the biopsy on your son when he is older. That is not good advice because that means he would have to go back on gluten in order for accurate results. If he has stomach problems now, it would probably be very difficult to get him to go back on gluten. This sounds strange to...
  18. confusedks
    Andrea, My back appt. is coming up soon, October 31st. Halloween!! My uncle told me I should dress up as a hunchback and walk into the Dr's office that way, but I told him...I don't need to dress up! I already look that way!!! LOL! I have another appt. with the Dr. on Saturday. We are going to discuss results of the labs at that appt. It will be...
  19. confusedks
    Jin, If he tells me anything about female problems, I will let you know. It may be something you don't know about. I will also keep everyone updated about what he has to say. Kassandra
  20. confusedks
    Jin, That's a funny, but not so funny story. It's a good thing we don't have any pets because my hair is so hard to keep off the floor, etc. because it sheds so badly! But, I am sorry the dog had to have surgery, glad he did okay. Carla, That is really a bummer about your son. My older brother is almost 20, can't drive, won't go to college, won...
  21. confusedks
    clover, Hello. I am going through something very similar. I have a lot of other health issues that have been diagnosed and we are trying to manage them, but I do have a lot of other strange symptoms. Fatigue is my biggest complaint and I actually am looking into Lyme disease. I am going to get tested in the next couple days. I am in High School and it...
  22. confusedks
    Hello everybody, Well, I only fell asleep during a little bit of my PSAT!! I guess that was good, but I'm feeling terrible today. So it turns out I won't be able to get in to the GI for another MONTH so we decided we are going to go to a guy my mom went to for some health problems and he does LYME TESTING!!! YAY!!!!!!!! We are going for the blood draw on...
  23. confusedks
    Hello everyone, It's great to see everyone's progress. It is motivating because one day that WILL be me!!! I had a really hard day today, emotionally and physically. I forgot to take my salmon oil and BIG MISTAKE!!!!! OMG...I had no idea that it made such a difference. I came home and fell asleep for 2 hours and I just peeled myself off the couch...
  24. confusedks
    You definitely have a leg to stand on!!! I'd look into a 504 plan under the Disability Act. It will protect your child from things like this. Also, is there a teacher who has a microwave in his/her room that you could talk to about heating food up in there instead of using the cafeteria? Also, could you get a note from the Dr. about this? Keep us updated...
  25. confusedks
    It has been very quiet the past few days. I have been really busy with school, AS ALWAYS!! And it doesn't help that I'm having a really hard time healthwise! Although, Iam responsible for typing up a group essay where everyone is responsible for one section and I told them today...it MUST be to me by 9 pm sharp because I NEED MY SLEEP!!! Lol! We'll see if...
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