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mftnchn

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Everything posted by mftnchn

  1. mftnchn
    Julie, I sure hope the Vitamin D helps. I've been on 2000 since February, and 6000 since 6/16 and my test 2 weeks after the increase showed me at 56. I just picked up the result today. My allergist told me that 50 in the minimum (but the lab test says 30 and above and that is the outdated info). I have been relatively stable so far in terms of symptoms...
  2. mftnchn
    thanks, it's greatly appreciated! Sherry
  3. mftnchn
    Yes, I get this sense as well. There are extremes for sure. I am not dealing with sarc so I didn't delve into it too much. I think I'd google and look at any forums that post stuff. Some of the people that didn't do well on Marshall have been pretty low key because there have been some threat of suit for posting anything critical of Marshall. But if...
  4. mftnchn
    Not sure, I'll go over to Providence tomorrow for the blood draw. Yes, I think this is a promising connection. She's quiet and soft spoken, but really seems accepting of the approach and wants to review everything. Got the sense she wants to learn from this too. Not sure how much she'll contribute but am glad to have a PCP that will be a team player....
  5. mftnchn
    Me, too, Kassandra, and hope things start looking up very soon. Sherry
  6. mftnchn
    Thanks. It went pretty well so far. I have to go back for my physical next week. Interestingly, she told me that she became a doctor because of my LLMD--she thought he was such an exceptional doctor. So very respectful of everything he is doing. She also said my Enterolab results were the most striking she has ever seen. She's going to review the...
  7. mftnchn
    I recently looked into the Marshall protocol and decided it was not a safe option for me. The one situation where I might consider it though, would be for Sarcoidosis. This is a condition where there is a problem with Vitamin D regulation apparently as part of the disease process. Even so, you'll need to do a lot of research. The forum for the protocol...
  8. mftnchn
    I think electrical current might be a risk factor...I'm off to my first appointment with a new PCP, hope this goes okay. I'll check into it when I get back. Sherry
  9. mftnchn
    Thanks I look forward to hearing. This isn't a new condition for me, I have had it for 8 years or so. But it is getting worse. Sherry
  10. mftnchn
    Thanks so much! On this web page Open Original Shared Link there is a section No. 104 p 30, about a treatment for Ledderhose (the same condition I have, this is what it is called in the feet; in the hands it is called Dupuytrens. I have both conditions). The treatment protocol has 9 points, and is signed R. Masson. This is the section I am interested...
  11. mftnchn
    LOL! Yes, I have been on natto since winter and just increased the dose. It works well for me. She said my current dose is good. Yes, I think the coagulation is a factor, I am just not sure how to get blood flow back in where there are no longer capillaries, etc. Stretching and massage actually causes the bad tissue to grow more. The...
  12. mftnchn
    Yes this gets really old fast. How long has is it been now since ABX? It took me 8 months before I started noticing progress, before that it was mostly herx. SHerry
  13. mftnchn
    Carla, Glad you had a good time. Nancy that is so great that Dr. R got you right in!! It's good to hear of a receptionist that picks up on things rather than the barrier to keep patients out like it seems at times. I've jumped in to try the Enula at full dosage and dropped the Zith (due to the ART testing results that they do not work together in my...
  14. mftnchn
    I finally found some really good scientificness about the hand condition I have called dupuytren's. I have very few of the risk factors but have it in both hands and both feet. I'm getting a contracture in my right little finger now so will see a hand surgeon this summer and it has also stepped up my interest in finding further answers. Dr. E has a new...
  15. mftnchn
    Happy Birthday Kassandra, a little late, but hope you enjoyed your peaceful day and your splurges on the diet, you've earned it. I've been splurging a little this week too, had ice cream (I can't do that in China due to unknown ingredients) and have been making rice pudding in my rice cooker. So good! Donna, so happy to hear you are through the procedure...
  16. mftnchn
    Well, I am having Spectracell, but also a blood draw. On the form it is called VDOH (Vit D, 25 OH). Sometimes they also do the 1, 25 but apparently it is not the main one. Its a regular blood draw but has to be immediately iced and transported on ice. Beware of the spectracell information on Vitamin D, it is hugely outdated. My allergist was quite...
  17. mftnchn
    I'm usually in China which is why I am doing gua sha--its a folk remedy but highly regarded in Chinese medicine. Yes I am able to work but I have periods where I can't. I have had some really good periods, actually several years, after starting antibiotics. I have been much more unstable since going gluten free last year, but I think it is because my...
  18. mftnchn
    Dr. E tested me for a whole bunch of herbals, and I am guessing but not sure that included cumanda. I'll have to ask. ART showed a good combo of zith and andrographis last winter, and it must have worked well because now only the babs shows up on ART. Sherry
  19. mftnchn
    Dr. E tested me for a whole bunch of herbals, and I am guessing but not sure that included cumanda. I'll have to ask. ART showed a good combo of zith and andrographis last winter, and it must have worked well because now only the babs shows up on ART. Sherry
  20. mftnchn
    Hi Nancy, Hopefully Carla will add to this when she gets back. Congratulations on the diagnosis and I am really happy you have found an LLMD and are into treatment. You are welcome by the way! Enula is a fairly new herbal treatment in the Cowden herbal protocol for lyme, the product is a Nutrimedix herbal. It's especially for babesia. ART is a...
  21. mftnchn
    Kassandra, are you supplementing Vitamin D then? I'd think it would be pretty important to do that, from what I've been reading. I think Dr. E tested for a number of herbals last winter, and probably included artemesia and cumanda, but I am not sure. I know she has the Nutrimedix sample box on her shelf and went through tons of things most of which...
  22. mftnchn
    Donna, hope things went well, can't wait for your update. Kassandra, is the pre-op for your D & C? Sorry about the Mepron herx...I guess I can't take Mepron according to ART and am worried that enula and andrographis won't be enough. I think I am going to try it starting tomorrow though, that will give me 2 weeks on it when I see my LLMD. I...
  23. mftnchn
    True it does help, however, I read in one of the articles by a Vit D expert that it is really way too slow if you are deficient, but may be okay to keep your levels up if they are normal. If we are deficient we really need supplementation and a significant amount. Sherry
  24. mftnchn
    C-reactive protein seems to be an inflammation marker. Open Original Shared Link Sherry
  25. mftnchn
    Hi Julie, I'm curious about your Vit D, and whether the lab is using the current recommendations--many are not. Should be a minimum of 50, and better normal range is 60-70. Sherry
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