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mftnchn

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Everything posted by mftnchn

  1. mftnchn
    Thanks for all the information on this thread. I just had my ferritin checked and it was just under 31. My doctor's brief email message (I'm overseas) said it is ok if above 30, he doesn't want it too high. I have a phone consult coming up so will ask for more information. I want to comment on how important getting the vitamin D levels checked, I've...
  2. mftnchn
    Kassandra, that's excellent news. Sure hope it goes really well! Be sure to have your ecoffee ready for the herx! Sherry
  3. mftnchn
    Welcome, I'm glad you've joined us. I for sure have that electric feeling, but not in the same location. Typical for me is in the upper back parallel to the spine on both sides and then up through the shoulder and down the arms into my fingers. I guess sometimes I have had it in my lower body too but not often. When it gets severe it burns but now after...
  4. mftnchn
    Ditto to all this. Sherry
  5. mftnchn
    Yes I read about many instances of valid posts, questions, ideas and people all being booted from MP site. Also found a lot of questions about the science. His approach was developed through computer models not testing. That said, there are some people reporting drastic improvement. Problem is, none that aren't are reported or allowed to post so you have...
  6. mftnchn
    1,25 D is a level of Vitamin D. Its the active form in the body that is sort of like a hormone in its action. After a couple days of reading, I've decided this is not an approach I trust even though there may be some people improving on it, including some lyme patients. If anyone wants to know why, you can PM me. My levels of D are way too low, and...
  7. mftnchn
    One really intriguing tidbit I did pick up reading about the MP stuff is two patients who responded well to the treatment reporting resolution of their dupuytrens contractures. That is the first ever I have read anyone claim to have that resolve. Since I am getting a contracture in my right hand that really interested me. I suggests what I have suspected...
  8. mftnchn
    Well I now think that the cause being high Vitamin D is suspicious but I'll still bet there is some reason for the pain if you could just trace it. Sherry
  9. mftnchn
    Yes, I think this is more likely the case, my level taken at the end of February was very very low. Have tried unsuccessfully to get it done out here, so don't know what it is currently. It's on the list to test later this month. Sherry
  10. mftnchn
    I've revised my interest in the Marshall protocol after reading much more about and finding out what happens to anyone who disagrees with its tenets on the forum or off of it. Here's some scientificness that is really good about it: Open Original Shared Link So while I am curious still about the timing of the current flare I am not ready to stop trying...
  11. mftnchn
    Here's another site that is fascinating. The video is really excellent about Th1 disease and l-forms of bacteria. The science seems quite excellent and the stories interesting as well. Open Original Shared Link Sherry
  12. mftnchn
    With my realization of having two major lyme flares in late May, I am re-looking at the Marshall protocol. Some very interesting ah ha moments while reading there. A clear explanation for why I felt worse last winter, having a current flare now, and felt better through the latter summer and earlier fall last year. Donna, I thought of you when I read...
  13. mftnchn
    Okay this is from the Marshall protocol website. Of course this is controversial and I had decided not to pursue it, BUT...now I wonder. I'm going to do some more reading. Sherry
  14. mftnchn
    Hey everybody, I'm still here and still pretty symptomatic but energy and brain fog are a little better. Reading along but too much to post. I just realized, my current severe flare occurred at EXACTLY the same time of year as the one last year that put me back on antibiotics. Now that seems like a big stretch! And there was no earthquake last year...
  15. mftnchn
    Is there any seasonal connection to lyme flares? Judst dawned on me: the severe flare that put me back on abx last year occurred the exact same time of year as this current flare? Any ideas? Sherry
  16. mftnchn
    That's right. I have had a lot of good days and good periods after the initial months of treatment. I'd like to be farther along but am grateful for improvement. Sherry
  17. mftnchn
    Susie, Others can add to this list: Saunas (a certain type only), detox baths with epsom salts and other things, coffee enemas, dry skin brushing, ice water alternating with very hot water showers to increase lymph flow, exercise, are all helpful for detox. Taking binders to help bind and excrete the toxins, like pectin, charcoal, chlorella are important...
  18. mftnchn
    Yep, I did!
  19. mftnchn
    I have a best friend/sweetheart with those feelings for 30 years!
  20. mftnchn
    Susie, Congratulations on the diagnosis and start of treatment! I agree on the extra doxy if you can take it. Also just be very very cautious about sun exposure. I was on doxy for several weeks or a couple of months without any trouble with sun exposure, and then one day, suddenly I got so bad in just a few minutes. Also, start detoxing along with...
  21. mftnchn
    I agree, it is more like a flare than a herx. Also I am a little suspicious of a babs flare with the air hunger--I am pretty sure it was that instead of asthma this time. No night sweats right now though. You and others have been on abx that I have never been on, I need to check Dr. E's list again and see if there are some she didn't do ART testing...
  22. mftnchn
    Me too. Although the pain and inflammation of it could still be connected. Sherry
  23. mftnchn
    appy Birthday, Rachel!
  24. mftnchn
    Hi Carla, I don't have monthly or predictable flares or herxes, at least I haven't figured out a pattern. And no new meds. I have been resting since I got home on Sunday. I felt better on the way home Sunday (resting on the bus, and on Monday, but this starting hitting me Monday evening. Yeah, I am also thinking flare from overdoing it, but...
  25. mftnchn
    Reading the LN thread on the photon treatment, G talked to the doctor in Germany by phone and wrote this: That sounded promising for all of us. Sherry
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