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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Have you cut iodine out of your diet? If not do so for a bit until the sores heal as iodine will keep the antibodies active. You mentioned you shampoo your hair multiple times a day, that may not be the best thing to do as it will really dry your scalp and hair out badly. Are you using a conditioner? If you are is it for sure gluten free? Also have you checked...
  2. ravenwoodglass
    Just keep in mind that false negatives on the biopsy are not uncommon. Do try the diet strictly after the biopsy is done. Your body does know the answer.
  3. ravenwoodglass
    If you have had a great deal of relief that is really good news. Since this is a paper for just my health class and not for clinical research feel free to go ahead and vote. A lot of my symptoms like the migraines and the tingling went away long before six months also. I can see who voted on what even though others can't and I will note if I use your info...
  4. ravenwoodglass
    It is not unheard of to be able to eat stuff we once were sensitive to once we have healed. If dairy isn't giving you any issues, and the best way to tell is to eat it a couple times a day for a week, (at least according to my allergist) then enjoy. Please note this does not apply to gluten if we are celiac or gluten intolerant we need to avoid it for life...
  5. ravenwoodglass
    If you are taking a vitamin with folate that can make the B12 reading higher than it really is on a blood test in addition many of the ranges for B12 are actually too low. If you level was below 500 you dhould be supplementing. Also it can take a long time after your body stops being able to utilize B12 before the blood tests will drop enough for you to show...
  6. ravenwoodglass
    The villi actually regrow at a fairly quick rate gluten free. If you want a biopsy to have any chance of an accurate result keep eating gluten. If gluten makes you feel too ill to continue with the challenge then you already IMHO have the answer.
  7. ravenwoodglass
    False negatives are not uncommon in celiac testing. If you continue to have problems and choose to keep eating gluten do get retested occasionaly. If at all possible you need to do a trial of the gluten free diet.
  8. ravenwoodglass
    Thanks for posting this. I am one of those who don't consider any item that has had gluten 'processed out' is safe for us. Hopefully the FDA will soon get it's regs together so this item can no longer be hidden in flavors and allow companies to leave it out of the ingredients list if they use it in processing. Some of us may tolerate small amounts of gluten...
  9. ravenwoodglass
    Yes you do sound like you could be celiac/GI (I consider them the same thing). I should mention that before I was diagnosed with celiac I was diagnosed with diverticulosis. The GI said I had the most extensive case he had ever seen. Normally it is only found on the left descending colon mine was throughout my entire large intestine. On a scope 5 years after...
  10. ravenwoodglass
    Go to 'forum home' look for the topic you want to post under. Click on that and at the top of the page you will see 'start new topic'. Click on that and there you go. Welcome back.
  11. ravenwoodglass
  12. ravenwoodglass
    I was too. Toward the end, like the last 5 years before diagnosis, I was also the heaviest and most bloated I had ever been in my life. Most doctor would have considered my weight at that time just a high average but I had always been very slender and within a month gluten free I lost 20 lbs I went from a size 14-16 down to a 4. I was actually worried about...
  13. ravenwoodglass
    That's an interesting question. I know my neuro symptoms don't occur when I get soyed but don't know if it might impact others neurologically or if those of us who do have neuro issues also are more prone to being intolerant to soy.
  14. ravenwoodglass
    When we have celiac sometimes our immune systems will be so far in hyperdrive that we seem to react to everything. I couldn't even list everything I showed allergies to both food and nonfood stuff was 98 out of the 99 tested for. Within a relatively short time the only true allergies or intolerances I had left were soy and 3 nonfood items. Hopefully once...
  15. ravenwoodglass
    You did the right thing. Get back on the diet and heal. Your reaction to reintroducing gluten has given you the answer.
  16. ravenwoodglass
    Glad to see everything is going so well. I am a bit jealous of that cruise and the new boyfriend too for that matter. Does he have an older brother?
  17. ravenwoodglass
    Can you make it at her house? That might insure that she will eat it without worrying. I would never eat anything made at someone else's house because my reactions are too severe to risk it. Do talk to her and see if she will be comfortable eating the pie if it is made in your kitchen and please don't be offended if she says she would rather not.
  18. ravenwoodglass
  19. ravenwoodglass
    It is not unheard of for people to react that quickly especially if they have neuro effects. Gluten can enter the bloodstream through any mucous membrane and does not have to get all the way to the gut for the antibody reaction to start. In some places buccosal and rectal challenges are done. A suppository or gluten infused swab is used and then the tissue...
  20. ravenwoodglass
    I think the irrational anger would fit in but I don't know what you would call it. I used to have those issues also. In my case I was told that it was part of my seizure disorder and I took antiseizure meds for quite a while which brought it under control but the med had really nasty side effects. Don't know if it would be the same for others.
  21. ravenwoodglass

    Heya! :-) I just wanted to say thank you for so much of the research you've shared, especially re: neurological symptoms. I don't think I would understand my own symptoms half as well if not for some of your information. Was wondering if you have any suggestions for good places to keep up to date on neurological research for celiacs? Or any of your other research? Thanks again!

  22. ravenwoodglass
    Try to go with as much whole unprocessed food as you can. That will lead to less 'screw ups'. Fresh meats, fish and chicken, veggies and fruits in either fresh or single ingredient frozen form, potatos, rice, nuts in the shell, beans etc are all going to be naturally gluten free. You'll heal faster with less CC risk that way. There can be ups and downs for...
  23. ravenwoodglass
    My Neuro did that also. I even had brain lesions diagnostic of celiac but those were, according to him, 'something lots of folks have and they mean nothing'. I was furious and I don't blame you for feeling the same. I eventually gave up until a really good PT nagged me into seeing an allergist who worked with intolerances as well as allergies. Since celiac...
  24. ravenwoodglass
    Thanks Skylark, It's nice to know that we can do that on polls. I always wondered.
  25. ravenwoodglass
    If you really feel you need a 'doctor derived' diagnosis then yes you would need to do a lengthy challenge and there would still be a chance of a false negative. Celiac tests do have a fairly high rate of false negatives and you have had a good resolution of symptoms on the diet. Celiacs that are not on the gluten free diet do have higher rates of some...
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