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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    In my opinion there are a couple of reasons for this. One is that we have gotten too specialized in our medicine. No doctor looks at the whole person we are now a brain that needs a neuro, joints that need a rheumy, skin that needs a dermo, intestines and stomaches that need a GI guy etc. No one looks at the body as a whole system and celiac is a whole...
  2. ravenwoodglass
    Do you have a link to this info? What would I ask for at the SSI office? I fought getting disability for years always hoping I would get better but I have been left with some residual problems the force me to work from home. Those vouchers would be a great help if you have any more information on this.
  3. ravenwoodglass
    Everyone is different but in most places a celiac diagnosis is not a basis for SSI. If it is diagnosed promptly it will not effect someones ability to work and after a while on the gluten-free diet many are healthier than the rest of the population. The exception to this is for people who it took years to diagnose because of the damage the disease does...
  4. ravenwoodglass
    Lister please take these without fear, they really will help. Take them exactly as prescribed, many times the dose is tapered starting out with more of the med at first. They will help with the inflammation and the side effects are only a problem with long term use, which is not what you are looking at. There are times when you see effects like a facial...
  5. ravenwoodglass
    No your not alone. Welcome and I think you will find there are quite a few of us that have neuro problems from gluten. Mine have mostly healed, the seizures especially but some ataxia remains. It took a long time but the support and knowledge I have gained from all on the board has helped me feel much less alone and isolated. I hope for the same for...
  6. ravenwoodglass
    Glad to hear he thinks it is something minor. I hope it resolves soon.
  7. ravenwoodglass
    So glad your getting closer to some answers. The prednisone should help a lot. The best way to check if it is gluten-free is to call the pharmacist and have them check. If the doctor gave you samples they will still check for you just give them the manufacturor off the label. I am glad to hear you are going to continue avoiding gluten. Hope you feel...
  8. ravenwoodglass
    Any way to get the word out to the medical community is great. But I hope you do not do this scrape the insides out of the poison wrap too often, it really is not safe and you are CCing yourself.
  9. ravenwoodglass
    If some gluten free chicken soup helps along with a lazy day doing things only you want to do --then do it. You have overcome a major addiction and should do what you need to feel better. You are doing all the right things, drinking lots of water and excercise. Make sure your vitamins have high levels of the B's that will help with the stress. Most importantly...
  10. ravenwoodglass
    Hi Toni, You've gotten some great responses that don't leave me a lot to add other than encouragment. It took a long time for most of us to get as sick as we have gotten and it can seem like it takes forever to heal. You have seen some progress and you can expect to see more. Hang in there and hopefully things will improve more noticeably soon.
  11. ravenwoodglass
    I am so sorry to hear of your loss. Like many Celiacs I have been there also and I know how hard it is. Your system has been through a lot, you may be seeing an excaberation of your sensitivity. Is your home gluten free? You need to be real, real careful of cross contamination. Also make sure you have checked all your toiletries and all your meds including...
  12. ravenwoodglass

    ARCHIVED Dh?

    ravenwoodglass replied to GravStars's topic in Dermatitis Herpetiformis

    You do not have to have symetrical areas for it to be DH although it does tend to often present this way. The rash you are getting sounds a lot like the ones I would get. For me when these little blisters break they will 'burn' the surrounding skin and the rash will at times seem to move out from the first spot. But it also sounds like it may be fleas...
  13. ravenwoodglass
    If you can tolerate dairy or another form of milk (almond or rice or soy) something that helped my family put weight back on was Carnation Instant Breakfast powder. I even mixed it in my coffee at first instead of creamer. A milkshake every night helped me maintain a steady weight. Just make sure it is not the ready to drink, that is not safe, and make...
  14. ravenwoodglass
    Lister, From what you said on another post I know the hospital absorbed the cost for much of the stuff you have already been there for. They can not refuse to treat at the ER. Although your symptoms strongly suggest gluten somewhere if they become extremly bad you should get to either the doctor or the ER. I know you feel you are totally gluten-free absolutely...
  15. ravenwoodglass
    If the endo and colonoscopy are going to ease your mind about the possibility of other problems then go ahead and do it. The worst part is the prep for most. If you feel better off of gluten I would certainly stay off it. While the blood tests showed a negative result they were at the high end of that negative. I also agree that Enterolab would be a good...
  16. ravenwoodglass
    My false negatives on blood testing delayed my diagnosis for many painful years. I have some damage that is permanent because doctors just blood tested and never even mentioned the diet except to say I should be happy the test was negative because I wouldn't be able to eat anything. Both of my children tested a low positive on blood tests as did my DH...
  17. ravenwoodglass
    This was positive. Did your doctor tell you if you are going to be biopsied you need to be actively consuming gluten? And that there is a danger of a false negative with the biopsy? You say you are presently gluten-free have you noticed any improvement on the diet?
  18. ravenwoodglass
    I have had problems with both paint and primers, a real drag since I am an artist. I just make sure I am wearing gloves, so much for finger painting.
  19. ravenwoodglass
    Wegmans does this to some extent. They mark all their gluten-free food, also stuff that is vegetarian, dairy free, fat free and low sugar or no sugar added. They make gluten free shopping real easy. I reach for their stuff on almost everything cause I have learned they are quite trustworthy, I have never had a CC issue with their stuff. Hopefully others...
  20. ravenwoodglass
    Your not alone. The pain is worse than giving birth to my 10 lb child.
  21. ravenwoodglass
    All of the above plus the drywall itself. Many of the "non-toxic' wallpapers and pastes are a problem also.
  22. ravenwoodglass
    For many of us the panic attacks, depression and anxiety occur for years before GI symptoms become more than an off and on thing. There is a great deal doctors need to learn about celiac here in this country so don't be surprised if they automatically say you don't have it. You may want to check out Enterolab in addition to talking to your doctor. There...
  23. ravenwoodglass
    Happy Birthday and what a wonderful thing for him to do.
  24. ravenwoodglass
    How many of our children, not just ones with DS are suffering the mental issues of celiac for years with the 'brain'fog' impairing their ability to learn and causing emotional upheavel? I worked a substitute teacher in special ed and regular classes for years and could watch the reactions many 'normal' kids had from their gluten filled lunches. Gluten impairs...
  25. ravenwoodglass
    I come from a family of carpenters and drywall finishers. I was taught how to do both by my Dad and Brother. When I was still doing drywall myself I tried wearing one of the OSHA fine particulate masks and even that gave minimal relief. If you are hanging the 'bug face' mask, long sleeves and pants and getting out of clothes in the doorway at home and...
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