Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I can tell you that this is not TSS. You would feel very ill and be running a high fever with TSS. First off make sure you are using a tampon that is NOT perfumed. Tampax was always a safe brand back before celiac took away my periods. I would get a rash with ones like playtex. It sounds like you may be experiencing muscle spasms. This can keep you...
  2. ravenwoodglass
    Gluten is most often a delayed reaction. Check not just what you ate right before you felt ill check the foods from 1 to 3 days before also. The delay from an intolerance reaction can make pinpointing what 'got' you a bit tough at times. I hope you feel better soon.
  3. ravenwoodglass
    The only time I had relief from my D before going gluten-free was for 3 days after my prep for the useless coloscopy they did. The doctor thought I was a nut cause I asked him if I could use the prep once a week. It was another year and a half before they found the celiac, the GI never even looked for it until after I had done an elimination diet and the...
  4. ravenwoodglass
    You'll be fine. Please make certain the barium they use on the 17th is gluten-free. Demand they check to be sure and make them put it in writing. As an aside are they doing this procedure to confirm celiac or to check for other problems? If it is to look for celiac they are going in from the wrong end. They need to go to the small intestine to find celiac...
  5. ravenwoodglass
    If you lived in Europe they would biopsy a bit of your rectal tissue to confirm the celiac. Gluten effects the mucous membranes. If everyone with hemmies went off gluten they would in most cases be gone. What you are feeling is the mucosal tissues reaction to the gluten passing out of your system. This effect can also be caused by gluten contamination...
  6. ravenwoodglass
    Hi Sara and welcome. You may not be sick all the time......yet. Things will improve and you have come to a great place for support. Please bear in mind the addictive nature of gluten and that you will experience some degree of withdrawl from it which most likely will include strong cravings. This will pass. If you have KinniKnick (sp?) bread available...
  7. ravenwoodglass
    I hope the endocrinologist can shed some light on why these results are as they are. Did they check your B12 and Folate levels as well? It does look like you have some anemia going on. Have they run another celiac panel on you, if you showed up on earlier ones? Are you positive any OTC, prescription drugs and non-food items are gluten-free? Some of your...
  8. ravenwoodglass
    this is a good basic starter list that a freind on another board made up and gave me permission to copy. I thought she did a great job on it and it is well worth sharing. I hope it helps. Here's the basics for a simple gluten free trial. It involves no specialty products. fresh fruit fresh veggies nuts and seeds (unflavored) fresh (unbreaded...
  9. ravenwoodglass
    First (((((((hugs)))))) If your doctor has not suggested it you might want to get a blood sugar meter. Check your sugar often for a couple of weeks in the morning and before and after meals. I found that to be the easiest way to tell when I was eating right when they first diagnosed me with diabetes. Make sure when you eat any carbs that you also eat...
  10. ravenwoodglass
    I wouldn't touch it.
  11. ravenwoodglass
    I'd watch what they gave me too------as they take the full tray away and I pull out my gluten-free stash of food. I've worked in a hospital's nutritional services dept and would never trust them to feed me or my kids. Even if they know how to feed us the CC issue is just too much for me.
  12. ravenwoodglass
    I would contact the head of the hospital in writing and include copies of the test. If you have copies of her tests preadmission send those also. You also should at the same time send a copy of the administrators letter to the nutritional services dept and to your insurance company. I would not be nasty but I would go into detail about the ill effects...
  13. ravenwoodglass
    For sure for me it causes problems. I'll lose hair by the handfull and get lots of itchy spots. It can also get gluten in to your system which will impair your bodies healing. You should avoid it in everything you come in contact with.
  14. ravenwoodglass
    Have they checked your B12 levels? It might be a good idea or you could get some sublingual B12 and see if it helps.
  15. ravenwoodglass
    I also run a consistently low body temp. Thyroid has been tested repeatedly with no real issues. Some folks just normally run a bit cooler than others. Temps also differ throughout the day. This is also normal. My guess would be that your body is trying to remove toxins, drink lots of water and let yourself sweat. This isn't a high enough elevation...
  16. ravenwoodglass

    ARCHIVED New

    ravenwoodglass replied to justme's topic in Coping with Celiac Disease

    No It's not in your head. Some do get relief from IBS symptoms quickly, others do not. There are a lot of false negatives on blood tests, there are also doctors who will see a low positive and tell you it's negative. The true test is how you feel on the diet.
  17. ravenwoodglass
    In my family the blame was layed solely on my shoulders for years after my diagnosis. I had always been the one who was mentally ill, the crazy Mom who wanted to be sick. My DD even accused me of poisoning her for 2 years when she was at her worst. She was sick because I was depressed and 'a hypocondriac'. After she went to college she got a GI to tell...
  18. ravenwoodglass
    I just did the survey also. Make sure you click on the 'take action' in the center of the survey not the top.
  19. ravenwoodglass
    Your drugstore should have glucose tablets that diabetics use when their sugar gets too low. They could help. Something else that might help is adding more protein into your diet. I have diabetes as a result of the undiagnosed celiac and I keep a bag with a mix of gluten free nuts, some raisens and some gluten free bittersweet chocolate on hand and snack...
  20. ravenwoodglass
    For me this can definately be linked to gluten. I also get swollen feet. I have lost almost 2 shoe sizes since diagnosis. I still get a bit of swelling from the heat but nothing like gluten caused.
  21. ravenwoodglass
    You have mucous membranes in the lining of your eyes and gluten can cross the mucous membranes. This is in addition to the problems mentioned by Debmidge. IMHO anything that touches your body or can be inhaled needs to be gluten-free, not just your food.
  22. ravenwoodglass
    There are NO FALSE POSITIVES on biopsies, you are correct on that. There are many false negatives in the blood tests even with full blown almost dead celiac. I was one of those. IMHO I would get him back on the gluten free diet and let this doctor fund his next vacation with someone else's money.
  23. ravenwoodglass
    These look quite high to me, especially the IgE and the TTG. If she is not gluten free yet she needs to be and if she is she appears to still be getting gluten somewhere.
  24. ravenwoodglass
    Also make sure they run a B12 and ferritin and folate levels.
  25. ravenwoodglass
    ((((((Hugs))))) At least now you know for sure. I hope you feel better soon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.