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buffettbride

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by buffettbride

  1. Eggs, too. We removed eggs, although she will have occasional egg whites. She says it doesn't make a difference. She's just not a fan of eggs. We started with the top 8 allergens and started working our way through all of the trouble categories.
  2. We really are true gluten vigilantes. She is really great about it, too. She just gets way too sick. Many nights of tears thinking she did something wrong...
  3. That's the first thing. And no kissing either. We even had the heart to heart about "are you *really* kissing someone" just to make sure she knew the severity.
  4. Yes. I forgot to mention elimination of soy, too. So, to sum up for those keeping score at home, we have eliminated: Meat Dairy Soy Potato Corn Peas Peanuts Eggs (she will have occasional egg whites) She seldom eats any nuts, other than an occasional pistacchio or almond. I get that other food intolerances could be present, which is why I was so cool...
  5. My 15 year old daughter was diagnosed via biopsy w/ Celiac when she was 9. She has been perfectly compliant with the diet because for the first time in her life she was physically thriving. I am confident, 100%, no shadow of a doubt that she continues to be compliant with the diet. She only has accidental glutenings maybe 1-3 times per year. We keep a gluten...
  6. My story isn't quite as drastic as yours, but my daughter who now has Celiac had many similar symptoms as an infant. I never really thought it could be a link to Celiac until she was diagnosed (she's 13 now), but she had horrible, wicked diaper rash as an infant. The blistering horrible kind you mention. Plus, she was a non-sleeper and didn't really respond...
  7. I completely feel your pain. Thankfully my daughter (also 13, 8th grade) does not get glutened as much as your son, but when she does (about twice a school year), it's a doozie. The actual day of the glutening, she'll go to the nurse's office and call me to come pick her up. She's worthless because of the migraine, bloating, and superpoo. Usually the...
  8. My super-sensitive Celiac eats Fruity and/or Cocoa Pebbles with no problems, ever. Probably have about 1 box per month.
  9. Costco has individual hummus cups? OMG. Yummmm. MUST find them!!!
  10. It only took one incident with barley that we didn't know about in a product to find that it gives my daughter the same reaction as wheat, so we avoid it.
  11. Breakfast is definitely the easiest. We don't do drive-thru or fast food breakfast, but we've had a bit of luck at places asking for fresh eggs (my daughter likes egg white omelets because she doesn't tolerate egg yolks so well). Usually gets bacon and hashbrowns with no problem. We tend to frequent places who do us right the first time so they get to know...
  12. I usually feed gluten-eaters bbq chicken (I use boneless/skinless thighs and use Sweet Baby Ray's sauce) with white sushi rice (from my rice cooker), a fresh veggie like zucchini or whatever floats your boat and make a salad with lots of fixin's inside it. No one has ever questioned it's gluten free status and it is very, very yummy and traditional. ...
  13. Also, you might switch things up with Bob's Redmill Mighty Tasty Hot Cereal. I add some brown sugar and the kids love it. It's not oatmeal, but it is still very good.
  14. Glutenfreeda makes gluten-free instant oatmeal. My Celiac daughter can't tolerate even non-contaminated oats (she'll eat a gluten-free oatmeal cookie about once a year), but my non-Celiac son likes to eat it and it's a low contamination risk in our gluten-free house. There are different flavors and stuff. It's quite good.
  15. There's a few flourless recipes out there. I recall one with bananas and cocoa. Tastes super yummy.
  16. Not really with the bagels, but I have noticed I'll get an exceptionally dry loaf of bread from time to time. One thing you can do besides tossing a dry loaf of bread is turn it into breadcrumbs or croutons. The dryness doesn't seem to be a factor then.
  17. Have you been tested for Crohn's? My best friend has similar symptoms (and worse, actually, to the extreme). There are a lot of non-surgical treatments for Crohn's but surgery (at least in my friend's case) has always been needed for the fissures and fistulas.
  18. My Celiac daughter has issues with MSG. Causes fatigue and headaches something fierce.
  19. My daughter won't touch gluten food at all. If it is used for a project in class (she's in 8th grade so that is rare now) she will use gloves. Obviously some surfaces she contacts may have gluten, like the lunch room, but she is a prolific hand-washer. The science teacher last year actually changed one of their projects last year from "flour babies" to "sugar...
  20. Taco Bell is up there with McDonalds in my mind as a huge contamination risk. Like, I can actually feel my heart rate increase when I think about Celiac's trying to eat there.
  21. Why wouldn't caramel apples be OK? Many caramel products are just fine. Unless the caramel is malted, it is probably safe. I'd ask the vendor. We also do kettle corn, and sometimes turkey legs and corn on a stick depending on what they are prepared near.
  22. Nevermind...I see this already happened.
  23. We eat many foods that aren't specifically labeled gluten free. Some examples are Kix, Trix, and Fruity Pebbles. There's companies we feel more confident about such as General Mills, Bush's Beans, etc. There's a small trial and error period, but getting the hang of which food manufacturers to trust isn't so tricky.
  24. I'll second, third, fourth, and fifth the social aspect. Pizza parties, school/work outings, all those things that require extra planning. The food part itself is pretty easy--and the reward is feeling better.
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