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Susan-in-NC

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Everything posted by Susan-in-NC

  1. Susan-in-NC
    I wish I was so lucky, just had a 28 year marriage end because he thought my being gluten free was too big of a problem. Would not brush and floss for me would not change eating habits and started going "out" with others because the could be spontanious. So, yes you can be glutened by a kiss. And, finding someone who understands that isn't easy. ...
  2. Susan-in-NC

    Happy birthday and may God bless you today!

  3. Susan-in-NC
    Waiting and wondering myself about response to your question. I scored low on both tests -- way below, under teens in available iron and was told total lack of stored iron - caused heart mummur. My Doc (who assured me the one thing I did not have prior to biopsy was Celiac) just told me to take iron 3X's daily with vit C to assist w/ absorbsion. Still...
  4. Susan-in-NC
    I also have had severe back pains-- put it down to age and arthritis. but it does seem to get stronger when I have been marginally glutened -- trace amounts rather than a full blown I know I ate wheat sort of thing. Generally when I get lunch at work and have a problem, cafe mgr's hubby is CS and she tries to keep an sharp eye out. I speak with her she...
  5. Susan-in-NC
    There was a question early in this thread regarding the turkey meat and being OK, because it doesn't touch the stuffing inside the bird. I for one will not be stuffing anymore, or do two birds and using seperate basters on them. I mentioned basting very purposefully! I believe that the basting we do to acheive the lovely golden brown skin on our birds...
  6. Susan-in-NC
    Hey there! I also get toe cramps, most often in the large toe. PAINFUL! I have gotten foot cramps (in the arch) for years not so much in other large muscles. Then the summer before last summer the toe cramps started in earnest, so strong I could not stand or walk on the foot involved. Dr. gave me no reason or advice. Just massage and it will pass. ...
  7. Susan-in-NC
    I second what Dandylionmom said, we don't want our kids to have ANY sort of problem, esp one we may have passed on! And, as many have said -- give her time to see you getting better, that should make all the difference in the world to her. It is a tough thing to tell family sometimes. I had both my kids tested. The daughter I thought was scott free...
  8. Susan-in-NC
    I love Mrs. May's stuff! I have found them at BJ's Club. They are sweet, but where I work there are "celebrations" where people bring in doughnuts, cakes and other goodies. Instead of missing those treats, I get out my snacks. It helps me cope! Susan
  9. Susan-in-NC
    Chipoltes opened recently near where I live. I was so excited, because my favorite pre Celiac mexican resturant isn't a "safe" place to eat now. So, my husband and were going to give Chipoltes a try. As I said I was very excited, went in and happily was telling him about how I had heard such great things and how safe it was for me to eat here. THEN I...
  10. Susan-in-NC

    ARCHIVED Ada

    Susan-in-NC replied to Susan-in-NC's topic in Coping with Celiac Disease

    Since I work with health benefits for a very large company, I thought they would be more willing to "work" with me. I will check the HIPAA laws tomorrow and post what I research. I know with the ADA it is on a need to know basis. Also, with disability it is on a need to know basis for reaching reasonable accomodations. HR would know, and have to keep...
  11. Susan-in-NC

    ARCHIVED Ada

    Susan-in-NC replied to Susan-in-NC's topic in Coping with Celiac Disease

    Yes, I have been told Celiac is covered by ADA -- please see title of original post. The question is how does this work? Symptoms are so general, different from person to person. And, so many Drs just don't seem to fully understand how this effects each person differently. For instance, I get fatigue, brain fog and the big D if glutened. I have a heart...
  12. Susan-in-NC
    I am so right with all of you. In my husband's family, I have been the one to "care take" the group. One SIL has several med problems and generally uses them as a crutch to get out of family dealings (have seen her out when "sick at home and not able to help with _____) BIL's wife has MS and this truly has interfered with her activities, but he uses it...
  13. Susan-in-NC

    ARCHIVED Ada

    Susan-in-NC posted a topic in Coping with Celiac Disease

    I recently was assigned to a new manager. She "strongly" suggested that I contact the Co. HR dept. and report my CS as a disability. So, I did. They however were not very encouraging. "If this unduly interfers with your job discription and basic accomodations are not able to be made" type of thing. I was only Dx last June, and since going gluten-free...
  14. Susan-in-NC
    In my family, three siblings can't be bothered. One is waiting for better health insurance coverage before she gets tested, has requested that the son in the military get tested, niece is waiting for better coverage. I believe that with the recent changes in ins. laws, that if covered by ins, and testing positive, they cannot be disallowed for coverage...
  15. Susan-in-NC
    Families are like that. Sometimes they understand other times you wonder where in this world they came from! I have a SIL that for years we have been making adjustments for, deseriably, she has MS and sometime just is tired and weak. Therefore not up to the large gathering. In fact, prior to Dx I often had her brother and father to our house for family...
  16. Susan-in-NC
    Well, I had hoped to get SOME advise for this area. But, as things have turned out -- I survived. I did want to make a note for anyone who happens along and needs info on this area that it is managable. Of course they do have all the major chains for fast food (Wendy's etc.) but the absolute highlight for my trip was the Manager at Logan's Steakhouse....
  17. Susan-in-NC
    Karen, Thank you for the explaination and the very helpful directions. I'll certainly do the recipe search and use the link you included. At least now I know what to be looking for, even to the color of the box! Susan
  18. Susan-in-NC
    I don't know about the online testing but wanted to add that next week my son will be tested by his Dr. They are running full blood tests and will also do the stool testing. His Dr. said this will be the most comprehensive testing available, to rule out or check for "other" problems. I should add that he does have an IgA problem involving his kidneys that...
  19. Susan-in-NC
    I feel like saying "you all don't know how helpful this forum has been" but, then reading through posts, I think you have all been where I am now at one point or another. First off, THANKS! Second, read a lot about this bread. Is it a recipe or brand? Where do I find it? Have looked at EarthFare, Whole Foods, WalMart, Kroger and Harris Teeter. ...
  20. Susan-in-NC
    Thank you all for your positive support and suggestions. My son is 17 almost 18 and is a great help, just a teen. My daughter is 23 and was supposed to be tested today (after the Dr "forgetting it" on previous visit). She doesn't live at home but is doing some reading and "processing" as is my son. Had a nice encounter with a co-worker today had an...
  21. Susan-in-NC
    I cannot say for sure when MY celiac was triggered. I am 50 and just Dx, but looking back have had mild symptoms my whole life but only recently had a Dr. put things together. But, food for thought -- I was hospitalized at 3 months old with chicken pox and german measles AT THE SAME TIME. In fact my current Dr. ran a titer test on me to check on the...
  22. Susan-in-NC
    Hello to everyone! We are planning to take a whitewater rafting trip on the nolichucky in a couple of weeks. Went a few years ago (2000) before Dx and loved it. This time will take our son and possibly his girlfriend with us. The rafting co. does a lunch, so will plan on supplementing that as it is sandwiches, fruit and cookies, not gluten-free. I've...
  23. Susan-in-NC

    ARCHIVED I'm New

    Susan-in-NC replied to a topic in Coping with Celiac Disease

    I am also new, and have been trying my best to stay gluten-free. Seems I wasn't successful this weekend, came home early from work with very explosive D. (Or I picked up a bug and it has nothing to do with gluten-free - still learning to tell the difference - It's only been since 6/11 after all!) Any way, if you have an EarthFare nearby they are also...
  24. Susan-in-NC
    Hi! I'm in Raleigh. New Dx, and learning to cope. I was reading through different threads getting tips and making notes. [i]Would REALLY LOVE to talk to others with more experience. Please feel free to contact me. Susan
  25. Susan-in-NC
    Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help. I would love to get together and...
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