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melmak5

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Everything posted by melmak5

  1. melmak5
    Ok, so the rectal bleeding is back. I am not loosing any more weight, but I am passing food in recognizable form (mixed with sand) and having more bleeding. Maybe I am crazy, but this makes me feel more and more that this is NOT celiac, and is something else. I ate some banana chips last night and got so sick I had to lie down for 2+ hours, and awoke...
  2. melmak5
    Thank you all for your support. I think I was just having a melt down. I have looked into both acupuncture and chinese herbs, which have provided some help, but again, not really getting to the root of the problem. H.pylori was negative My gyn stuff is FINALLY taken care of. I went to the drs instead of lunch yesterday and they said everything was...
  3. melmak5
    Thanks Carla, I just feel so frustrated and ready to say F-it. I am thinking about just parking myself in the doctors office and refusing to leave until they come up with a reasonable game plan, but I don't think they are capable of that. I think they are capable of nothing. I am compliant, I am willing to do anything besides take Benefiber... GIVE...
  4. melmak5
    Jin - I am so glad you got to speak with your grandmother. Carla - congrats on the good news! Kassandra - I cannot wait to hear how things go with the LLMD! (I am way behind on reading, but those were the biggies I wanted to get in) I was doing better, then tried some food with rice and tapioca powder and ended up in the fetal position for almost...
  5. melmak5
    Offthegrid - WOOOO HOOOO for Poo! Carla - I mostly shared because she has far exceeded anyone's expectations and is fully functioning. She does not have to live with my parents, and is slowly starting to make better connections. She is also no longer violent, which is amazing. Hopefully this will have a positive result for your family as well. Jin...
  6. melmak5
    There was a theory rolling around that some babies who were given the polio vaccine went on to develop other health problems. My dad was given the vaccine in the 50s and was diagnosed with type 1 diabetes at 18 months old. He FIRMLY believes that this might have "triggered" the diabetes and/or the polio antibodies might have attacked his pancreas. THERE...
  7. melmak5
    Kassandra - I second the plastic wrap and some medical tape to keep the line dry. Good luck. I hope this starts the healing process. Jin - any hair dye has toxins, but highlights would be less and even better if you avoid the scalp. I think its important to feel attractive and do something fun with the body you currently have to tote around and deal...
  8. melmak5
    LOTS OF PERSONAL SHARING WARNING (yes, the squeemsih should avert their eyes) The doctor's office called. Its bacterial vaginosis, not a yeast infection (so it makes sense now why nothing was really working). The only reason I am adding this here is because I find it really odd that my whole body seems to be a circus. I have rashes all up and down...
  9. melmak5
    I feel very lucky that my company suggested Legal Seafood, which has a gluten free menu. I definitely say call ahead and see what they can do for you, you might be surprised.
  10. melmak5
    Why does "western" medicine feel the need to be so f-ing invasive?! I acknowledge that it is sometimes necessary... but most of the time it is not. It is demeaning and dehumanizing. I am starting my Campaign for FULLY CLOTHED Doctors Visits '08 (adding dignity back to health care)
  11. melmak5
    Kassandra - Sorry about the dentist, good luck today! Everyone - thanks for the warm wishes. This GI is very opposed to the idea of "yeast" being an issues because there is "little to no research" on the matter... (like if one didn't research cancer it would cease to exist?!) but besides that he seems competent. I had a panic attack last night at doctor...
  12. melmak5
    Kassandra - thanks so much. It sounds like its going to take a while (a few weeks for the blood tests, endoscopy at the end of the month) but at least this guy didn't try to shove Benefiber down my throat and tell me its "all in my head" Good luck at the dentist!
  13. melmak5
    I met with the new GI today. 1. Wants to do another endoscopy with biopsies. Thinks it might be a gi allergy/celiac/ibs or a combination of the above. 2. Re-testing the TtG levels 3. Seems like he is not a moron. (Agreed that rectal bleeding warrants a phone call back) 4. Suggested a low dose of immodium to try to slow down the bowels. BEST part...
  14. melmak5
    The probiotic I take is: FloraSMART it has 8 strains and I picked it because it doesn't need to be refrigerated I can tell its working because since I have added it back, its gas-city
  15. melmak5
    Ridgewalker - this might not be of any use, but I thought I would share that I tried an over-the-counter product for the yeast infection I got (coupled with a head/chest cold and the digest problems and this rash from hell on my legs... its been a doozy of a week) so the otc didn't work. My dr. called in an rx for the infection and 3 hours after taking it...
  16. melmak5
    All this talk of pumpkin made me realize that I should post my "faux pumpkin pie middle" recipe... Pumpkin custard 1 can pumpkin 1 can coconut milk 1/4 cup + 2tbsp maple syrup 1 tsp ginger 1/2 tsp allspice 1/2 tsp cloves 1/2 tsp nutmeg 1 tsp cinnamon pinch salt Add all to a sauce pot, simmer 45 minutes, stirring regularly so the bottom doesn...
  17. melmak5
    Sorry for another PLEASE HELP ME, but lets call a spade a spade here I have been on the couch for 2 says with a cold that won't quit and on top of it all, I got a yeast infection. Good News I have been able to tolerate a probiotic, so I added that back More food is staying down Not Awesome News I still haven't gotten my period (since I stopped...
  18. melmak5
    Kassandra - it is your body, speak up if you feel like it Its scary but refreshing to know that doctors are humans, nearly all of us are PROOF that they make mistakes and don't know it all.
  19. melmak5
    I have been reading and am almost caught up, but here is my news... -got to give back the heart monitor!!! -got a referral for a new GI, going next Monday (fingers crossed he is not a moron) -pc did a h-pilori (sp?) blood test, results this week -pc REALLY pushed for me to take benefiber. I said "listen, I have done every and all things you doctors...
  20. melmak5
    UPDATE DNA results in - I am positive for 1 of 2 genetic markers (the lab says that that makes me 14x more likely to have celiac than individuals without) I got this information via a voice mail message from my GI who also said: "I wanted to call to give you the test results and so that you don't think that I think you are crazy. I think you should...
  21. melmak5
    Kassandra - maybe you can get your mom on your side if you say that the LLMD can help to coordinate all of these other specialist and have some perspective and look at your WHOLE body, rather than just an organ or system. Treating your stomach and not the rest of you isn't going to solve this and you are going to wind up in a maze of specialists. You need...
  22. melmak5
    I did this, its not bad at all. Its just more of a bother. No pain, no poking, just drinking some sugar-water and breathing heavily once in a while. Bring a magazine or two... and a gluten-free snack. The nurse tried to give me COOKIES after the test was over, with my chart in their hands!
  23. melmak5
    This is a fly-bye... I am not sure if anyone has mentioned, but FYI - chocolate is fermented, so for persons with mold issues, it might not be the best. Personal Update - Heart monitor is comic gold - I have now got people convinced they modeled the ipod after it - Upper GI stuff is better, lower is worse, the bleeding is back as is the C/D dance...
  24. melmak5
    This is a fly-by update. Wedding was beautiful - I did NOT eat anything. Very wise choice. Met the bride's aunt who has been diagnosed with celiac for 5 years. Was warm, friendly and had kind advice. I haven't regurgitated in 5 days!! The heart monitor is the biggest pain in the butt. I cannot wait to get rid of this stupid thing. Someone actually...
  25. melmak5
    Thank you all for your support. This is the 7th doctor I have had to now "fire." I am not asking for a miracle cure, I know its not going to be overnight, but I literally said "what am I suppose to do in the mean time, to be able to deal?" and she had no answer. I accept responsibility for my own health, for my own body (hence refusing to eat something...
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