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vanillazeis

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by vanillazeis

  1. vanillazeis

    Happy birthday and may God bless you today!

  2. vanillazeis
    Bayleigh is allergic/intolerant to soy. Her allergist gave me cards from FAAN that i keep in my purse to let me know which ingredients contain her allergens. The soy one says that studies have shown that most people allergic to soy can safely consume soy oil and soy lecithin. We had already been COMPLETELY soy free for a month when i reintro'd soy oil and...
  3. vanillazeis
    AWESOME! i hate how it's always negative mentions that intolerances/allergies get. There is a radio station in Dallas (i don't know if it's everywhere), and it has no DJ's it's all computerized and it plays random songs, but it's just about commercial free, and mostly just plays music. They do say little things in between songs sometimes. the other day...
  4. vanillazeis
    i agree to remove dairy immediately and possibly soy. I know asthma can run with celiac, are ya'll dealing with that as well? My daughter has celiac, asthma and multiple food allergies, and at our last check-up with the allergist a little survey thingy i filled out before her appt. asked if she had a problem with ear infections. She actually has had two this...
  5. vanillazeis
    I actually just saw that book at the book store the other day, i was wondering if it was any good... like you, i read everything i can get my hands on about celiac If your kiddo has something you might as well know everything about it... i dont understand people that dont read. Thats why i like these boards. You can assume that if people take the time to...
  6. vanillazeis
    I would remove dairy. Lactose is digested at the tips of the villi. If those villi arent there you're lactose intolerant. Being on dairy in someone that is first diagnosed with celiac can prevent the villi from healing. I would remove dairy immediately. Bayleigh's Dr tells all patients he diagnoses w/celiac to go casein free immediately. I kept Bayleigh on...
  7. vanillazeis
    Thanks for your response... it's nice to know this isnt too uncommon. I always sort of wonder if something else is going on as well, since i never hear other people say their kids throw up. Watch out for McDonalds, their french fries do have wheat as an ingredient (and also milk and beef)!!
  8. vanillazeis
    Yes, that's pretty much what i keep thinking, that theres something about when she lays down she's not moving around, getting any gas out, and she just wakes up with this HUGE gas-filled belly, and throws up. It's really it weird, especially when i read about other peoples reactions on here. Thanks for the insight!
  9. vanillazeis
    My daughter has celiac... positive blood work, biospy confirmed, but she does NOT have the "typical celiac reaction". When she gets gluten, or milk or soy it always seems like her reaction comes at 9 or 10 at night, a few hours after she goes to bed. Usually i put her in bed, she falls asleep (we still have a video monitor in there, because shes across the...
  10. vanillazeis
    It's Delimex chicken taquitos that are gluten free... for some reason not all of them are safe, they told me over the phone that the chicken ones were safe but not with cheese. Honestly i would try to stay away from gluten-free baked goods during your trial. Most things just dont taste great compared to gluten, ive heard so many people say not to try gluten...
  11. vanillazeis
    Oh I am so sorry. That's what i had to do with Bayleigh, and it sucked, but you'll start adding things back in pretty quickly, and you'll be able to figure it out! Bayleigh was also allergic to pork, chicken, rice, potato, apple. lemon and banana, so we had to do alot of taking out and putting other things in to figure it out. I recently had to start...
  12. vanillazeis
    I would be VERY careful! Like you said, sometimes with puberty... so around 13 or so, symptoms will subside, but there can still be intestinal damage. If you arent sure he doesnt have Celiac Disease I wouldn't be doing any experiments on him. I know you can have milk and gluten intolerance, but milk intolerance is very common in newly diagnosed people with...
  13. vanillazeis
    Could they be hives from a different food? I've heard that food allergies can be common in people with celiac. From the people's signatures on here, i see quite a few that mention food allergies.
  14. vanillazeis
    So the top 8 allergens are milk, soy, and egg (as you said), wheat, peanut, treenut, fish and shellfish. As i understand it corn is super common and just barely missed making the top eight. I would start with milk, i dont know how old your daughter is, but milk is the number one food allergy in kids under 1, and it is the most common for babies to react to...
  15. vanillazeis
    Oh wow, i didnt realize it had only been 3 months. Richard has a good point, it's probably just still elevated! Has it gone down from what it originally was?
  16. vanillazeis
    Have ya'll removed dairy... does anyone know if that will affect your Ttg? I know my daughter has the same "celiac symptoms" with dairy and soy as she does gluten, i would think it would affect her numbers. Are you sure she isn't cheating at school or friends houses? I hate to even say that, but it would be so hard to not cheat when you are diagnosed with...
  17. vanillazeis
    It's very controversial whether play-dough will hurt a kid with celiac. I guess the argument is that they don't actually eat it. I asked Bayleigh's GI dr and he said "Honestly we don't know, I wouldn't even let her touch it" So, we avoid play-doh and have sent colorations gluten free dough to Bayleigh's preschool. It doesnt work as well as regular play-doh...
  18. vanillazeis
  19. vanillazeis
    I know my daughter has celiac and she therefore will never be able to eat gluten in her whole life. I understand, i really do, but there is still a small part of me that hopes or wishes that this was a misdiagnosis and that she is only gluten intolerant and does not have celiac. I know thats unrealistic, but i think that maybe like grieving a death that denial...
  20. vanillazeis
    Your welcome! That second post i made for some reason didnt post... anyway i was just going to say that i made my first post assuming that ya'll are completely gluten free. If you havent already you'll need to replace your nonstick pans, wooden spoons, and toaster. Call all of the foods she normally eats and verify the gluten status. It's really easy, just...
  21. vanillazeis
  22. vanillazeis
    If you havent already eliminate dairy. If you've already done that eliminate soy. If she actually has celiac, and not just gluten sensitive, she is lactose intolerant, lactose is digested at the tips of the villi, and in celiac those villi are damaged, or gone, so newly diagnosed celiacs are lactose intolerant. My daughter just recently formed a soy intolerance...
  23. vanillazeis
    From what you've told us I'd really start with an allergist rather than a GI dr. A hive like rash, or hives is a syptom of food allergy, not food intolerance. There is a pretty big difference. Allergies have the potential to be immediately life threatening, as in anaphylaxis. While celiac does have the potential to be life threatening, it's more of a long...
  24. vanillazeis
    I am probably the biggest breastfeeding enthusiast in the world, so my opinion is probably a bit biased I breastfed my first kiddo until she was 20 months, no problems. I have just recently put my almost one year old (1-12-07) on formula, and it was the worst mistake of my life, although i didnt have an alternative. I think if you are already seeing problems...
  25. vanillazeis
    Be careful about oats... normal Quaker Oats cannot guarantee that they are gluten free... I've read that in the US oats are a rotated crop with wheat, so they cant be sure that wheat didnt get in there somewhere... like you said, it wouldnt kill her if she got a little wheat, but if she reacts to regular oats you wont know if it is actually a reaction to...
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