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WW340

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Everything posted by WW340

  1. WW340
    First of all, it is possibly not the doctor who is ignorant, but more likely the person delivering the message. I would see the PA that you like and ask them to request a copy of all the records, including the pathology report. Until you actually see that, you can't be sure of anything. It is unfortunate that you went gluten free prior to having the...
  2. WW340

    ARCHIVED Group Letter to Dr. Fine

    WW340 replied to Gentleheart's topic in Doctors

    You can add my name to your list. I did not have my testing done by enterolab, but I think this is an important issue that comes up frequently. I think it is great that some of the members of this board have come together to DO something. You're attempting to resolve a very controversial issue, not by trying to argue in a thread, but by actually getting...
  3. WW340
    I definitely stay stocked up on food. We live in a very rural mountainous area and frequently have power outages and can be trapped at home for a week or more. I also believe in being prepared for the worst at all times. I buy the things we eat regularly in bulk, especially gluten free staples for me. I have a rather large stash of pamelas products...
  4. WW340
    We emptied out the ktchen and the cupboards right away. My husband does keep one loaf of bread, the old toaster, and his own cereal and crackers, which he keeps away from my food in one corner of the kitchen. Other than that the kitchen is gluten free. All cooking is gluten free. My son has to keep his snacks in his room, because he is not careful enough...
  5. WW340
    I travel a fair amount of time. I use the food tek microwaveable products for bread and sweets. Easy to carry and only requires water and a microwave. I also take cans or packets of tuna, chicken, peanut butter (in those small snack pack cups). Small fruit cups, apple sauce, gluten-free crackers. I pack everything in freezer bags so they won't leak if...
  6. WW340
    I totally agree with this approach. I always try to keep my food restrictions as my problem, not the host's or hostess's problem. Even if they wanted to try to accomodate your food restrictions, it gets so involved with the type of cooking utensils, pans etc, that you still are taking an extreme risk. I have had friends insist on cooking for me with the...
  7. WW340
    Amber, it is rare for someone to be allergic to the actual vit. B12. It is more likely that you are allergic to something combined with it to make it into a pill. Have you tried any sublingual formulations? Also, It might be a good idea to have your doctor run a B 12 level on you. B 12 definciency can certainly cause neurologic symptoms, even when it...
  8. WW340
    Try not to get too discouraged. I can relate to the headaches and fatigue problems. I felt great in the first couple of months and then I developed terrible headaches. I had not had migraines for years, and suddenly I was having them almost every day. Unfortunately, they lasted for a couple of months, and now I rarely ever have one again. I think it...
  9. WW340
    I use amazon for most of my specialty gluten free items. I buy the things I like in bulk and take advantage of the free shipping. The following items are things I regularly order from Amazon. Pamela's products Mary's gone crackers ener-G pretzels Bakery on Main granola Sylvan Border Farms all purpose flour Tinkyada pastas I like Food Tek items...
  10. WW340
    I use the Classico sauces. I use the same sauce for pizzas also. It is easy to make your own pizza with sauce, meat and cheese. I also suggest you check into food tek gluten free products. These are microwave items that cook in just a minute or two and you only have to add water. I love the chocolate cake. I use the pizza crust for hot dogs and...
  11. WW340
    My hair definitely started growing after going gluten free. So did my nails. I also had almost entirely silvery white hair when I was diagnosed, now my hair has grown back in darker than it has ever been in my life. I get accused now of coloring my hair. My nails are also thicker. I hope my skin will get thicker with time, too. I have see-through...
  12. WW340
    Peanut butter is my friend. I keep it at work and home. I especially love the little snack size containers with the foil lids. I eat it on fruit, veggies, crackers or corn cakes. Fruit, celery, carrots, gluten free crackers, tuna, dinty moore stew, progresso chicken corn chowder, hormel chili with beans, corn tortillas, apple sauce, fruit cups, pop...
  13. WW340
    I have had this and I have metal allergies, including nickel. I have not tested metals recently, but I have not had dyshidrosis since going gluten free. Perhaps there is a connection.
  14. WW340
    When they first drew the blood work, I thought it was a really far fetched idea. I thought there was no way that was my problem. However, I did some online research while waiting for the results and the more I read, the more convinced I became that my test would be positive. I was pretty sick at the time, so I had a mixture of relief and shock. The...
  15. WW340
    My thoughts and prayers are with you.
  16. WW340

    ARCHIVED Still Looking For Doctor

    WW340 replied to Lori L.'s topic in Doctors

    No problem, I didn't think you were pushy at all. Hope all goes well for you.
  17. WW340

    ARCHIVED Still Looking For Doctor

    WW340 replied to Lori L.'s topic in Doctors

    Oops, sorry, I meant to answer you last night and got distracted. Dr. Mark L. Nightengale, MD - www.adultgastro.com 6465 S Yale Ave # 1002, Tulsa - (918) 481-4706 He is in a fairly large group, but I would insist on getting him personally. He is my Dr. and he is really up on Celiac disease. They might try to get you in to see someone else sooner...
  18. WW340
    I am in my 50's and had battled ulcerative colitis off and on since my early 20's as well. When I was finally diagnosed with celiac disease, my GI told me he did not think I ever really had ulcerative colitis. He felt all my problems were always from celiac disease and that it had been active all my life. He says I do have markers for crohn's, but no evidence...
  19. WW340
    Wow, I am impressed by some of you adventurous souls. Larry Mac, you could have done other things for penance. You really did not have to risk your gut for us, lol. I am really shocked that you would be one to try this. I, too, will try this in the future. I will stick to the listed suggestions, ie, corona light or bud light. Larry Mac will have to...
  20. WW340
    I would guess that your doctor wants you to be established with a high risk perinatologist in case this person is needed in the future. It is much easier to get an emergency consultation if you are already established. I think your doctor should be commended for taking your celiac disease seriously. Relax and enjoy the pregnancy. It sounds like you...
  21. WW340

    ARCHIVED Need Doctors Advice

    WW340 replied to Lori L.'s topic in Doctors

    I can give you some names of doctors in Tulsa, if that would help. There may be some in Missouri, but I don't know of any in northern Missouri. I read your other post. I can tell you that the preferred situation would be that you not work in a bakery. You might be able to get by with taking some major precautions at work. Since you don't have to do...
  22. WW340
    For Josh and others that may be interested, here is an interesting article on malt barley and celiac disease. There may be a good reason why malted barley might not be causing any overt reaction. This is very interesting a hopefully will be studied further. Research on barley malt and celiac disease
  23. WW340
    yes, all silk dust is going to be gone for good due to poor treatment of the silk worms . They say the start to finish powders are the replacements. Those will not replace the silk dust for me. Donna, so sorry to hear of your surgery, even worse to hear you may need more.
  24. WW340
    Great reviews! I love the ivory pressed powder too. I am also heartbroken about the silk dust. I just ordered six full size silk dusts in a personal kit lol. I don't know what I will do when those are gone.
  25. WW340
    Actually, Oats can cause an immune response in about 10% of celiacs. Here are the facts on oats for the Celiac Sprue Association. No one really knows who is and isn't the unlucky one that cannot tolerate oats. That is why it is recommended that oats still be consumed in very small amounts. Open Original Shared Link On our own site there are several...
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