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HouseKat

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by HouseKat

  1. I'd love to get the name of the speaker/researcher that your doc saw. I was looking around to see if I could find him, and found this about celiac and thyroid disease: Open Original Shared Link Kate
  2. Right before I found out that my aunt had celiac and I decided to go gluten-free I was reading The second brain : the scientific basis of gut instinct and a groundbreaking new understanding of stomach and bowel disorders by Michael Gershon. Finding out from that book that my neurological symptoms might be related to my GI symptoms made me all the more determined...
  3. It's not my sister who needs the convincing, it's the doctors. I asked every doctor I had for 15 years if I might have celiac and every one of them blew me off and refused to do a simple test. (I was so giddy when the GI doc finally wrote out the orders for my celiac blood tests that I took a picture of the paper.) The doctor will have a harder time dismissing...
  4. Yes, even if the docs are not convinced, I am. I'm on my third day gluten-free again and I feel great. I realized today that what's really driving me to get an official diagnosis is my nieces. I know that if I have an official diagnosis it will make it easier for my sister to convince a doc to test her girls. I'm pretty sure that her nine y.o. has it...
  5. Speaking of podcasts, would there be any interest in a podcast by and for Celiacs? If so, what kinds of things would you like to hear on the podcast? Kate
  6. Well, I lasted four days then had some of the worst Celiac diarrhea I've ever experienced for eleven hours last night. Called the doc this morning, he had me come in for the blood draw and I'm gluten-free again. Now to wait for the results. Kate
  7. I'm 5'5", but I think that if not for Celiac I would have been closer to my sister's height of 5'11". I was always one of the tallest girls in my class until my growth seemed to stall around age 11, about the same time I started having Celiac symptoms. Kate
  8. Joyous, Are you planning on getting tested for Celiac at some point? If so, I'd recommend doing that first. I went gluten-free on my own and after 11 weeks my doctor sent me to the GI doc who asked me to go back on gluten so he could do the blood tests. I agreed to eat gluten for two weeks...I lasted four days. During those four days, all of...
  9. So, I saw the GI doc this afternoon. He realizes that me being gluten-free for weeks now makes the endoscopy less certain so he doesn't want to go that route. While he knows more about Celiac than my PCP, he's no expert. Essentially, we struck a deal: he wants me to eat gluten for the next two weeks so he can run the blood panel on me, I agreed with the...
  10. TDMB, I also saw a big improvement in my health when I was on Atkins a few years ago, which led me to ask my then PCP about Celiac disease, but he dismissed it because I was overweight. (I've been asking doctors about Celiac since I first read about it over 15 years ago as part of my neverending quest to figure out WTF is wrong with my body.) If I had...
  11. I agree with you 100%. If they can send me to a dietician who knows something about Celiac and gluten-free diets, I would like to go, because I'm sure there's room for improvement in my current diet, but if the dietician isn't knowledgable about these issues, I'm not going to waste my money, even if it is only a $10 co-pay. And if they try to send me to...
  12. Here are some articles mentioning overweight celiacs, I think one of them is the one Nora mentioned: Open Original Shared Link Open Original Shared Link Open Original Shared Link Kate
  13. He says that if I do have celiac he wants me to see a dietician, and for that to be covered by insurance he has to be 100% certain of the diagnosis. When I talk to the GI doc if he talks sense and says that there's no point in doing an endoscopy now that I'm gluten-free, that's fine with me. If he acts like it doesn't matter one bit that I'm gluten-free...
  14. So, I had a doctor appointment yesterday morning with my primary care doc. (I went gluten-free September 2nd and I hadn't been able to get in to see him since then.) I told him about finding out that my aunt was diagnosed as celiac and her suggesting that I try the diet. I told him about how many of my various symptoms had gone away and that I've stopped...
  15. I had LASIK in June 2006, before I knew that I had Celiac, and I had no problems or complications at all. Kate
  16. I don't know of a Ft Wayne group, but you might check out the Indianapolis Google group and see if there's anyone from your area on there. I live hours away from Indy, but joined the Indy group because I go there often on business, so I'm always looking for tips on places to eat and shop there. Kate
  17. When I had a colonoscopy earlier this summer they asked me to drink TWO of those 64 oz. Gatorade bottles mixed with the Miralax. Just after I started on the second bottle, I started vomiting and couldn't hold any more down. When I arrived for my procedure, the nurse asked if I had drank all of the prep and I had to tell her that no, I didn't because of...
  18. I bought a rice steamer that I can also use to steam meat and veggies in and it can also be used as a crock pot. Best thing I've bought so far. Kate
  19. Cathy, From what I've read here and elsewhere, getting the official diagnosis can be a double-edged sword. If you and your kids are officially diagnosed, in the future it will be considered a pre-existing condition and can cause you problems with future medical insurance. If your kids do not get an official diagnosis, it may be difficult - if not impossible...
  20. Pam, I live in southern Indiana. In addition to the usual Bond-Aid/Acid-Free Primer combo, the new nail tech used Creatives' Retention liquid, which has their Acid-Free Primer in it. One week later, none of my fills have lifted. Hooray! Kate
  21. Oh, yes, I'm very familar with that. I remembering watching the South Park episode where Cartman had flames shooting out of his rear and thinking, "I've felt like that before..." Kate
  22. Does that mean he only took two samples, or he biopsied you on two separate occasions? If he only took two samples, that's not anywhere near enough. In Dr. Green's latest article in the New England Journal of Medicine (see Publicity thread) it states, "at least four to six endoscopic-biopsy specimens should be obtained". Kate
  23. This runs contrary to everything that I have read and heard about how to eat pre-endoscopy. For instance, here's what it says in Dr. Green's book: Kate
  24. I'm looking at a pack that I bought two days ago, and there isn't anything on there about "wheat producing equipment", but maybe my pack might have the older label? Here's their number if anyone wants to call and check: 1-800-468-1714 (9-4 ET M-F). Kate
  25. Careful on the Reese Cups though, the regular large size ones are gluten-free, but the individually wrapped mini cups are not. (I got that info from my boss who is a vegetarian and very aware of food ingredients, as well as being a "Reese Cup connaisseur"!) Kate
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