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Pattymom

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Everything posted by Pattymom

  1. Pattymom
    I have three gluten free kids, one who tolerates it fine, though she gets it so rarely out of the house only, so who knows. All three have had negative blood tests, but I finally did it anyway with much resitance from the MD. DD was/is very tiny and had stopped growing, huge tantrums, anxiety, etc. Gluten made a huge difference in the moods, though we found...
  2. Pattymom
    Haven't been on the board in a while, but we are going on out Girl Scout camporee this weekend, and the event planner was not nice or helpful regarding the menu. Unwilling to either work with me, or refund part of the food money. Meals are french toast, mac and cheese, and pizza--argh. So we are taking all our own food. I am actually a Leader of two troops...
  3. Pattymom
    Sounds a lot like my DD, now 6. She weighs 33 lbs and wears a 4T. She has been totally gluten free since 3.5 year, yet still doesn't gain or grow very much. Seh has been evaluated by an endocrinologist as well, who thinks it's a GI issue. We did have the colonoscopy/enod, even after a year off gluten. My brother has Crohns disease, and I wanted to rule...
  4. Pattymom
    My eldest, now 14 had terrible awful teeth, canines that came in with holes basically, and most of his baby teeth as well-He was just diagnosed last year, though he had GI symptoms since aroudn 5 or 6. My youngest, 5 also has lots of dental issues, she's been gluten free since around 3.5ish, had two teeth extracted, and I just ofund two more cavities this...
  5. Pattymom
    I have 4 kids, 3 need to be off gluten, our house is gluten free. My youngest was gluten free her first two years after being a screaming infant for the 6 weeks until we worked it out. anyway, we do make cookies, and crackers, and lots of gluten free foods- I try not to think of them as substitutes, but just as food. Doesn't everyone deserve a cookie now...
  6. Pattymom
    We gave up on the bread-I use corn tortillas at home--make and excellent grilled sandwich, and rice cakes when we are out-pb&j. or we just make roll-ups--meat and/or cheese rolled up. chex cereal is gluten-free, though we had trouble with the flavors, we tolerate the plain. they make good muddy buddies and other mixes too. Learn to bake-carol Fenster...
  7. Pattymom
    My dd is now 5, and it has gotten easier in that she knows waht she can anc can't have, and we have very supportive friends, for the most part, but I do remember one playdate event that I spent diving on the floor after a trail of goldfish before she picked them up. It was kind of a nightmare. I think I did limit some groups contacts. I always took our...
  8. Pattymom
    When my dd,now 5, was born, and was fussy, gassy, exczema covered, etc. I started by taking dairy, then wheat, and then gluten out of my diet, and she got better. At the time I figured it was something she would outgrow, and never thought to consult the MD for something I could fix myself. Seh was very healthy and grew well until aroudn 2 when the MD thought...
  9. Pattymom
    I have 4- 3 are gluten free, only one has other food issues. all are wonderful ( except when they aren't) Having children is a wonderful amazing thing, and there are no guarentees that they will or wont' have any given issue, if you are already gluten free that would actually be an problem to handle. what I think I wanted to say, if you want children...
  10. Pattymom
    my dd takes a day or so to react to dairy in the form of eczema, I don't remember exactly how fast as it was as an infant, but I think some reactions took hours, and some took days. I remember being told to watch for at least 2 days before I considered something clear. As an infant, she reacted if I ate gluten, dairy, corn, soy, and nuts--now it's just...
  11. Pattymom
    I also have a tiny one whose weight gain stayed slow even after going gluten and diary free-she just hit 30lbs at 5 years. She is free of painful symptoms now, and is growing along her own curve (about the -1% or so) but her growth is parallel to the curve rather than dropping or a straight line as it was before. So her growth rate velocity is fixed, but...
  12. Pattymom
    I'm a gluten free Leader ( cadettes and now daisies this year for my younger daughter) it seems unlikely they could sell enough to make it profitable. We did buy and donate soe to a battered women's shelter last year-and the food pantry idea is great too. I made a gluten-free carmel delight like cookie last year-I got plain shortbread glutino cookies-...
  13. Pattymom
    My dd was tested and i being followed by a endocrinologist, everything was normal. The Endo seems to think that she isn't growing b/c of the lack of weight gain and sent us back to GI, who cleared here again fo other GI issues. She hits the minium 2.5 inches a year, though not a fraction of an inch more. She is off the charts in size and weight, but her...
  14. Pattymom
    Been there, I like Earth Balance for butter, we use soy milk for smoothies-Silk, chocolate is great. I use rice milk for cooking-West Soy plain. Soy milk seems to stop baked goods from browning right, weird looking pancakes, so we use rice milk in stuff that needs to brown. Also coconut milk is yummy in baked goods and smoothies. Ice Cream we like Simply...
  15. Pattymom
    We had a coconut phase too. It was yummy. alas, calorie pushing doesn't seem to help dd much. and Ds eats voraciously and continuously. that said, we also fry a lot of their food, eat bacon more than we should. I would love to hear more ideas to try. Patty
  16. Pattymom
    This is definetely a real issue and a challenge. We always take our own, but one thing that helped a little, is taking not just one cupcake, but enough to put out and share, or brownies, or whatever--this is after I had other kids staring in envy at our excellent cupcakes and reducing them to tears when I couldn't share b/c I only had enough for the gluten...
  17. Pattymom
    I have two tiny kids ( and two skinny but not so tiny) My dd just turned 5 in July, is 38 inches and weights 29.5 lbs. We have been trying to hit 30 for some time--actually she was 30 at the endocrinologist in the spring, but seems to have dropped a little again. She has been gluten and mostly dairy free for 1.5 years. She had an initial spurt, and slowed...
  18. Pattymom
    Two routes seem like good choices-have you seen a GI specialist. You might want to and consider a scope-it could show celiac even when the blood test doesn't especially in a child. Plus with such significant symptoms it could also show other GI diseases that might be going on. I know how hard it is to put your child through a surgery-i've done it, but sometimes...
  19. Pattymom
    I had similar issues with my dd, now 5, She was very small, very fussy, and very rashy, stinky mucousy Bm. I never did the reflux meds, but I did take out wheat and dairy first-her skin cleared up and other symptos improved some, took out gluten got about 90% better--it was a new life, finally took out soy and nuts for a while and then we were great. It...
  20. Pattymom
    I just had 2 gluten free b-day parties, one this week for my 5 year old dd, one in June for 8 yr old ds. We served, several types of chips, watermelon, grapes, strawberries, carrots sticks, apple slices with melted carmel sauce. Hotodgs, buns on a different table, but most kids ate bun free. Cake, and we just got a snow cone machine--it was under $10 at...
  21. Pattymom
    Myself and three of my four children are gluten free, though our household is gluten free at this point b/c it's easier ot just keep it out of the house. I am the only one with clearly positive bloodwork. the youngest, turned 5 this week, had severe reaction as an infant, major growt issues, etc. She had a scope in March after 1 year gluten free, te endo...
  22. Pattymom
    Both things are true, there are much worse things and it does become second nature and it doesn't mean a life without cookies and donuts, but it is a big deal and even when it is second nature, there are still times when it is really hard and unfair, expecially for a child to not get what everyone else has. My 13 year old is really struggling being different...
  23. Pattymom
    That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol...
  24. Pattymom
    My youngest was like that. Taking out dairy improved her eczema 80%--note that you need to be totally dairy free for at least 2 weeks to really judge it fairly. When I stopped corn and nuts also it went away completely ( we were already gluten free by then as well). She is now almost 5, and eats corn with no reaction, no such luck on the diary or gluten...
  25. Pattymom
    This is the struggle I feel with my kids who are not officially diagnosed. With my 3 year old, we did a month long glutne challenge and a scope and it showed nothing, the Gi said how great we dont' have to wrry about ogign to school and parties, etc. however, he knows are home is gluten free, as I am diagnosed officially, and he says it's a healthy diet...
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