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dbmamaz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dbmamaz

  1. dbmamaz
    My son was a worrier, but not exactly like that - i could usually talk him through medical procedures - he actually had allergy prick test when he was in 4th grade and i got him through it with nothing more than really angry "Ow" over and over. However, if he saw the number 7 on a math sheet, he would panic to the point that he would hide under his desk...
  2. dbmamaz
    I had significant improvement in my depression and anxiety about 3 mo in . .. i cut out dairy and gluten at the same time, and adding b12 seemed to help. However, i'm on a much stricter diet now (only eating about 25 foods) and i dropped all supplements becuase i want to add them like I would a food. I'd been doing better, until hay-fever season hit. I...
  3. dbmamaz
    Thanks - its kinda cool to find someone else going thru the same thing at the same time, esp here of all places! I hope we both feel right about it when the time comes!
  4. dbmamaz
    I do have lots of environmental allergies - i reacted to every single tree, weed, animal and mold the allergist tested me for. People keep teasing me that i'm allergic to life - or else they wonder if I was allergic to the needles The doctor didnt mention shots, i'm not sure why. Sometimes I'm amazed my symptoms are as mild as they are, considering...
  5. dbmamaz
    I'd read about Fredriech's ataxia when I was researching on the web to figure out what is wrong w my husband (he's not interested in any testing or evals). I think that Fredriech's was the one that matches his symptoms the best, except for the degenerative aspect of it. My husband had extreme nystagmus (eyes moving side-to-side) from infancy, was very clumsy...
  6. dbmamaz
    I'm with you there . .. when I got my sensitivity test back, it came w a rotation diet suggestion, which i found impossible to get my head around. Once I added in the allergy tests, theres just no way - i would be eating 4 or 5 foods all day, i dont have enough to rotate. I already feel like i'm starting to be malnourished from the limited foods I'm eating...
  7. dbmamaz
    wow so much to think about! My 12-yo Queen is tripping more and more, but most of the time she just gets up as if she didnt notice. But now that I think about it - who do I want there with me ... the almost-12-yo is very emotional and attached to her, we got her when he was an infant. the 15 yo doesnt care much and wont want to be there. THe 4 yo has...
  8. dbmamaz
    I'll check out the link (my puter is acting up now, tho). But I was reading more yesterday and it could be partly my diet. My breakfast is melon and mandarin oranges and raw sunflower seeds, with a handful of organic blue corn chips. Lunch is a salad, with mixed baby lettuce, celery, avacado, black olives, mandarin oranges, and a simple dressing of white...
  9. dbmamaz
    I had been off milk and wheat due to 'allergic reaction' as an infant, and I'd thougth for years that i'd feel better if I quit them. Finally this past fall, i was ready. If you arent ready yet, you arent ready. However, realize that the longer you eat gluten, the sicker you will become, the more likely you are to get secondary problems (including cancer...
  10. dbmamaz
    I dropped all dairy at the same time I dropped wheat, and expanded to gluten a few weeks later. It hasnt been too bad ... soy sour cream is good enuf for tacos, I LOVE almond milk in my coffee, and my husband bought me some great vegan chocolates for xmas, I think it was from Chocolate Decandance. There is soy yoghurt, but some of them have dairy in them...
  11. dbmamaz
    Ok, celiac hurts! Are you gluten-free? You didnt specify if you are or not. Did anything change 2 weeks ago when this started? Also, were you checked for parasites? I didnt have such bad symptoms, others might have ideas for what helps w the D and cramping. Keep working on those doctors, and if they act like its all in your head - find another...
  12. dbmamaz
    Thanks paperdoll. My list of safe foods (only foods which were on both tests and negative on sensitivity, 0 or 1 on allergy) was: Protien: soy Starch: corn, potato, sweet potato Veggies: brocolli, green bean, lettuce, spinach, celery, tomato, avacado Fruits: grape, cantaloupe, Orange, Peach Other: Black tea and olives. I have since added...
  13. dbmamaz
    Oh, a lovely topic of response - i supposed I should have expected that with my lovely original topic This is really interesting info, thanks so much itchy. I may actually make an apt w my doc and ask for malabsorption testing . . . or maybe just avoid him and go to enterolabs . . .or get back on track trying to find a better doctor . . .
  14. dbmamaz
    Ok, I hate to ask this, but I've searched the forums and cant find anything like this. First of all, my blood work came out negative, but I'd already been wheat free for 2 mo and gluten free for 6 weeks. My sensitivity test was positive for gluten and casien, as well as 1/3 of the foods i was tested for. My allergy tests were positive for wheat, barley...
  15. dbmamaz
    I felt much better when I dropped gluten and dairy, but not all better. I did a ton of testing - i did sensitivity testing with A.L.C.A.T (if you leave out the dots, the name is altered, dont try it!), which tested me for 175 foods and i reacted to 1/3 of them. then i went to an allergist to get tested for foods, and i reacted to all but 6 of the 60 foods...
  16. dbmamaz

    ARCHIVED Frightened

    dbmamaz replied to Karagirl's topic in Coping with Celiac Disease

    I dont have anything really to add, but I just want to say that its so much easier to be scared and down and even feel hopeless when you are sick or injured. You will feel better when this is behind you. Do get pushier w your doctor, bring a freind if it helps, or find a new doctor you feel more comfortable with. You cant look back you and only move forward...
  17. dbmamaz
    This makes me so sad! I grew up in PA and went to Hershy Park a few times - Hershey was the home-town chocolate. I always tried to avoid buying Nestles, becuase they had awful practices with a formula-company they owned, giving free samples to third-world moms, who's milk would dry up, and then they couldnt afford the formula, so they'd water it down with...
  18. dbmamaz
    Part of the reason the baked good cost so much is the economy of scale. if you're making 100's of thousands of loaves of bread, you can have batches running 24/7, so you have a lot more profit to cover the cost of your overhead (rent, paying off the equipment, etc). Most of the gluten-free bakeries are fairly new, and making smaller batches, so every loaf...
  19. dbmamaz
    I bought beano the other day - brought it home and noticed wheat is on the ingredients list! I dont think you were talking about drinking lactaid milk - that cant hurt, but some folks say they can taste teh difference. My family uses it. However, taking the lactaid pills- i would just be sure they dont have gluten in them. They arent dangerous at all...
  20. dbmamaz
    Make gluten-free rice crispy bars, bring regular corn chips that dont have the flavorings on them, or make gluten-free cookies in a bar shape? Single-sized gluten-free banana bread? What ARE YOUR boys' favorite treats?
  21. dbmamaz
    All I can offer is sympathy - your mother is clearly irrational. I would forget trying to change her in any way, just live the next few weeks trying to stay out of her way as much as possible. I wonder if you can encourage your twin to get testing for celiac too, maybe once you have a home base away from home, you can even offer him some support with that...
  22. dbmamaz
    Beans, nuts and soy are all great sources of protien! You can always throw in some eggs, too, and peanut butter on rice cakes or gluten-free breads. I found a breakfast bar (In the regular granola bar section) which is just nuts and sugar I loved that! Dark green veggies - like broccolli and kale, esp, can provide calcium and iron. Cookign in a cast...
  23. dbmamaz
    My son's p-doc tested him for diabetes last year, because it is recomended to test annually for diabetes if you are on these drugs, esp with the weight gain. This year I am going to have the pediatricain do the test as part of his annual exam, that just makes more sense to me. Getting him outside is a challenge - non of us are at all athletic. In fact...
  24. dbmamaz
    This topic is driving me nuts . . .my son is 11, my middle child. By various drs, he's been dx'd with adhd, aspbergers, pdd-nos (even milder than aspergers), sensory integration dysfunction, anxiety, depression, bipolar, tic disorder, processing disorder . . .and gifted. He's on an SSRI and 2 atypical antipsychotics. He was gaining 1-2 lb/ mo for the last...
  25. dbmamaz
    My daughter is 15 and her only symptoms are needing 12 hours of sleep, being stick-skinny and always hungry, and a late period. She is not interested in dropping gluten, and had agreed to testing until she remembered it would involve needles. I doubt she could handle the enterolab testing alternative either, she's so squeemish. she's missed about 3 weeks...
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