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Latest Celiac Disease News & Research:
Everything posted by Smunkeemom
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I think he wants to do it, and thinks it will be easier for him if we all do... however, I am in a pretty cynical mood today.
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my husband talked me into it, because I have been sick for so long, I hadn't even really been gluten free a week, but he said that the SCD would help me heal faster. I don't think I can do it. I am toying with the idea of doing gluten/dairy free until I feel better, but I don't think he will be to happy with me, he feels like that is going "halfway...
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I don't really even cry much, but here I am in tears. I can't go anywhere I don't have the car. My kids are sitting here eating gluten free cereal and I can smell it... it's smells so good. I am so depressed. what if I give up though? on the first day? and have a slice of gluten free corn bread with peanut butter? I feel like a failure.
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I am on my first day of the SCD diet and I am starving to death, I can't do this. I can't not eat all the food..... I could do gluten free fine. My girls have been gluten free long enough that I can eat whatever I want gluten free, but I can't do the SCD diet, I don't even know what I can eat save fresh veggie, fresh fruit, and meat. I ate some grapes...
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ARCHIVED Hindsight 20/20? Any Advice For The 6 Months Before You Got Preggers?
Smunkeemom replied to tiffjake's topic in Related Issues & Disorders
I agree with Karen on the Folic acid, also start taking a good multi-vitamin now, you don't know what you are going to be able to eat when you get pregnant (morning sickness, which btw doesn't alway come in the morning) so you will want to start out as healthy as possible. On a more practical note, start looking for a good OBGYN, ask around to people who... -
ARCHIVED My Wierd Story...
Smunkeemom replied to Smunkeemom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I called and she said my IGa and IGg were high, and but that she didn't think I "had it" because I hadn't lost very much weight. I have decided she doesn't know anything. Anyway, hubby talked me into going on the SCD diet... I have no idea how he did it, but I am going to try that for a while and see what happens. -
ARCHIVED Are My Symptoms Common?
Smunkeemom replied to superjoe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the same symptoms last year and they said it was my gallbladder, they checked it out and it was full of stones so they removed it, I was fine for about 6 months, then all the stuff came back. I have been gluten free for 3 days now, so I really don't know if that's going to fix it.... anyway, you might have them check out your gallbladder just... -
ARCHIVED Cake Pan Birthday Cake
Smunkeemom replied to Jennas-auntie's topic in Gluten-Free Recipes & Cooking Tips
I used the "Cause you're special" chocolate cake mix in a Wilton pan last year and it turned out fine, I did have to add some xathan gum, but I don't remember how much someone on here told me that trick and said how much and all that, but I don't know where to begin to find it..... I wasn't much help huh? -
ARCHIVED My Wierd Story...
Smunkeemom replied to Smunkeemom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yeah, I remember calling her doctor because at first she said she "didn't have it" then she said her test was high because we were "related to a celiac", but when she got sick I decided that she did have it, so she went gluten free. I wish I would have questioned the doctor more. We are still looking for a new one (and a new pedi too) since they wouldn... -
ARCHIVED My Wierd Story...
Smunkeemom posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My 3 year old has been gluten free since May of 04, she got very sick and has a really long story that I won't go into. My 4 year old and I both got the blood test when she (my youngest) got diagnosed, and they told us that our results were high but that was probably because we were "related to someone with celiac". I got my 4 year old a biopsy and it was... -
ARCHIVED I Am Not Sure If I Can Explain This
Smunkeemom replied to Warrior Woman's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
do you have any pain with it or any other symptoms? -
ARCHIVED How Can Eating In Restaurants Not Get You Sick?
Smunkeemom replied to a topic in Gluten-Free Restaurants
We usually only go to restruants that have a "gluten free menu", like Outback. However, since the whole Mc Donald's thing, I am pretty afraid of the gluten free menus on principle. I would ask the manager, most of the time they know a lot more than you give them credit for. -
ARCHIVED My "little" One
Smunkeemom replied to sommer rose's topic in Parents, Friends and Loved Ones of Celiacs
gluten free cereal bars were a big hit with my youngest when she got diagnosed at 12mo, also gluten-free animal crackers (mi-del) and lots of fresh fruit and steamed veggies. -
ARCHIVED How Careful Do I Need To Be?
Smunkeemom replied to marcia24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yeah, he can eat the cheap bread, LOL. The toaster is the big thing, those little gluten crumbs tend to stick to my lovely gluten free yummys. We got a new toaster for gluten free waffles and the like, it seems to have solved that problem. I am always on "crumb-patrol" so I have noticed that we needed 2 sets of community food (like peanut butter and... -
ARCHIVED How Careful Do I Need To Be?
Smunkeemom replied to marcia24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would suggest only feeding him gluten when you can't "gluten free" the meal, and getting your own set of gluten free cookware. My girls have their own toaster and everything. I really haven't found anything I cook that can't be made gluten free (but then again I don't cook gourmet meals) so we all pretty much eat gluten free anyway. Chances are he wouldn... -
Gluten In Gyro Meat?
Smunkeemom replied to durhamgrrl's topic in Gluten-Free Foods, Products, Shopping & Medications
the local gryo place has gluten free meat (they let me physically read all the seasonings they use), but it's the local place and they may have a slightly different recipe. I would just ask next time if you can see what they use to cook it, most of the time they will let you see if you explain that it's for health purposes. I do know that the cucumber... -
ARCHIVED How Do I Explain Celiac To Others?
Smunkeemom replied to misgiss's topic in Parents, Friends and Loved Ones of Celiacs
I would say NO GLUTEN! I read somewhere (I have no clue if it's true) that there is enough gluten in 1/48th of a slice of bread to do severe damage to a celiac patients intestines, so I go with the "100% absolutely no gluten at all anywhere near my kid" rule. Gluten is toxic to your kid, even a little bit is still super bad. -
ARCHIVED How Do You Keep Others From Feeding Your Child
Smunkeemom replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
My kids have bright neon stickers on them and their bags, and stuff that say "DO NOT FEED ME ANYTHING" that way I can triple check anything that passes their little lips. Also, it's pretty much a given around my church "DON'T FEED JOEY'S KIDS ANYTHING" most people don't really know why, but they know not to feed them LOL -
ARCHIVED Help: Toddler Puking!
Smunkeemom replied to VydorScope's topic in Parents, Friends and Loved Ones of Celiacs
you are NOT a bad parent. Every parent I have ever met has had to go to the store to get "basic" things that they thought they had (like bandaids when my kid was bleeding all over me) and supplies for a stomach bug. If however you were a bad parent, you really wouldn't care would you? Toast should be fine. I don't keep gluten-free bread in my... -
ARCHIVED How Do I Explain Celiac To Others?
Smunkeemom replied to misgiss's topic in Parents, Friends and Loved Ones of Celiacs
I agree with Tarnalberry. However, when I explain it, I go with the "her body doesn't think it's food" explaination. It goes like this. "My girls have Celiac disease, so they can't have gluten" "what's that?" "Gluten is a protien found in grains, like wheat, rye, barley, and oats. Their body doesn't think it's food, so when they eat it, their body... -
ARCHIVED Help: Toddler Puking!
Smunkeemom replied to VydorScope's topic in Parents, Friends and Loved Ones of Celiacs
when I am sick my doctor says to not eat until 1 hour after I have puked, then go on the BRAT diet (bananas, rice, apple sauce, toast) when my girls have been sick we replaced the toast with Van's waffles. It seems to work, after a few hours we feel better. During the hour after barfing that you aren't eating you can sip on gatorade, warm tea, or pedialyte... -
my daughter almost died, if she hadn't been diagnosed in time she would have, she dropped 50% of her body weight in less than a month, at a year old she weighed less than she did when she was born. The doctors thought that we had caught it too late, they thought they were going to send her home to die.
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ARCHIVED Consultants Are Thinking About Giving Up On Gluten Free
Smunkeemom replied to a topic in Parents, Friends and Loved Ones of Celiacs
shortly after my daughter was diagnosed she was on TPN tube feeding, she tolerated it well, if i remember correctly she was on it like 20 hours a day. She only had to do it for 2 weeks, then she was healthy enough to eat. We did a lot of pediasure at the begining. It did take a full 6 months for her to regain her weight though. -
ARCHIVED Gluten Free Graham Craker Thingys?
Smunkeemom replied to Smunkeemom's topic in Gluten-Free Foods, Products, Shopping & Medications
*files away the recipe for later* thanks! -
ARCHIVED Gluten Free Graham Craker Thingys?
Smunkeemom replied to Smunkeemom's topic in Gluten-Free Foods, Products, Shopping & Medications
You know that does sound better, and more fun. We can put them in a sandwich baggy smash them up, and then shake them with sugar and cinnamon.... yum! thanks.