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Smunkeemom

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Everything posted by Smunkeemom

  1. Smunkeemom
    My advice is to get a brand new doctor, go in calmly and tell them exactly what you wrote here and add "I am sick, I feel like nobody cares, I need to know what is wrong so I can fix it, can you help me?" see if that works. It worked for hubby, it has yet to work for me and the girls. I am about to try the new route of going to medical school...
  2. Smunkeemom
    My daugther had the "pot belly" the doctors kept saying "oh, she's fine, she's not skinny look at that belly" then I pointed out to one that the kids in Africa on the news have the big belly's too. She weighed 11lbs at 11 months (down from 24 at 9 months) You might have to do what I did (which wasn't my most "proper moment" but probably my "best mom moment...
  3. Smunkeemom
    a lot of people say that dietary response is the only way to go. My 3 year old has an official diagnosis (blood work and biopsy) my 4 year old (will be 5 in July) had inconclusive blood tests and pos. dietary response, and I had a pos. blood test and am just starting on the diet. There are all kinds of celiacs, I don't have any problem saying that my...
  4. Smunkeemom
    everyone knew about these and didn't tell me?! okay, maybe someone is lurking and didn't know what to post. I am sure my info helped someone........maybe
  5. Smunkeemom
    first I take a long shower, it relaxes me. (which yeah, I am stressed if I don't get enough sleep, so then I am cranky and sleepy) then I eat a good breakfast, I try for fruit with it, since it gives me energy. I try to shy away from caffiene since then I won't sleep well for a few days and have to feel like that all over again. It seems the better...
  6. Smunkeemom
    if you are in a hurry you can microwave them, but then the tortilla doesn't get crispy I bake them on a cookie sheet I put tomato paste (not sauce because it's too thin) pepperoni shredded cheese (I like the "mexican blend" that has cheddar and jack, but hubby likes the "pizza blend") black olives bell peppers and onions you put...
  7. Smunkeemom
    or she was intolerant to milk or soy, or corn, or something else that they didn't test her for..... besides spastic colon and IBS are two very different things (if I recall correctly)
  8. Smunkeemom
    I use Mary Kay Liner. I found a list somewhere of forbidden ingredients for makeup, but I don't remember where. I just look for stuff I can't have, most of the time the company will know what their gluten free products are, I called L'oreal and asked since they carried my shade of lipstick and this is one of the kinds that was gluten free. I look for...
  9. Smunkeemom
    I have some gluten free (on the label it says gluten free) gummy worms with it in there, so I think it's okay, if however it's not, that could really explain my mystery glutening.
  10. Smunkeemom
    if you think about it we are kinda low maintenence, we only need 3 food groups instead of 4 LOL see? throw out the whole bread group, we don't care, we don't want it LOL you can do it, it just won't be as fun as a real rollercoaster. As far as your friends, you can scare them with "there is enough gluten in 1/48th of a slice of bread to damage...
  11. Smunkeemom
    I get that sometimes, it feels like there is static electricity in your tummy. It hurts. I have no clue what causes it, and my doctor says it's "anxiety" which is basically his answer when he doesn't want to find out what's really wrong with me. I had been keeping a food diary and found out that on days when I ate what I call "gas veggies" broccoli, cauliflower...
  12. Smunkeemom
    I just bought a new one last night, I triple checked the ingredients, it's L'oreal Endless Kissable. It comes in some great colors, it's stayed on all day, didn't dry my lips out, and it's less than $6, I got it at the Walgreens.
  13. Smunkeemom
    I am sorry you are having a rough time of it. My family is pretty used to celiac in general since my youngest was diagnosed 2 years ago. I get kinda cranky with the "but she can have white bread right?" type of people, I say "whatever it is you eat, 90% of it she can't have" I guess now I can't have it either oh, well, I am feeling better. I...
  14. Smunkeemom
    I think I understand. Wheat bothers you, if you test neg. for an allergy then you want to know if that means (or means it's more likely) that the reason it bothers you is that your are intolerant or have celiac. I however don't know the answer. I can say if wheat bothers you, then you probably shouldn't eat it LOL but you already know that. It...
  15. Smunkeemom
    IBS= we don't know why you are sick so we will tell you this to shut you up yeah, that's about the summary. It's kinda like when I was really really sick for about 2 months once, and went to the ER from dehydration and they said "oh you have gastroenteritis" sounded professional and official, I get home and look it up and it basically means...
  16. Smunkeemom
    haha, you know, people do think I am crazy. I have a special sponge for my counter and a different one for my gluten free dishes and another for my gluten dishes and yeah, I am a nut. (they are all color coded too) I memorized the forbidden ingredients list in my sig (from celiac.com) and I have little "food folders" that go where my girls go, that...
  17. Smunkeemom
    OMG.....it's SO good. I am eating a warm brownie now, just out of the oven. I am not a great baker, nor do I have weird ingredients in my house, but this is awesome it called for eggs and veg oil. that's all. So goooooood. just thought I would pass along the knowledge in case someone was looking for some good brownie mix. (oh, I did...
  18. Smunkeemom
    I am currently writing my own database to do that, I have no clue if there is another one out there commercially available. I have a notebook like you talked about (okay big confession I have 4) I have been thinking lately about having a Saturday where I teach hubby how to cook all the gluten free stuff the girls eat, and go through labels with him...
  19. Smunkeemom
    I don't think so. I foundOpen Original Shared Linkbut it's really not helpful at all... sorry.
  20. Smunkeemom
    my girls and I have to bring our lunch to a lot of the play dates we go to, we get the Oscar Meyer meat and cheese combos at the Walmart, it's like a lunchable without any crackers and it's gluten free, we add to that some fruit and maybe some good veggies and it's all in all a pretty good lunch (some days we are "bad" and sub. the fruit for some hershey...
  21. Smunkeemom
    afaik (as far as I know) the only gluten free stuff at the Taco bell is the tostada and the beans and cheese. I think everything else has gluten, but I haven't called to check it out in at least 3 weeks. however, I hit the Wendys a lot, the baked potato with chili is good (if you get bored with just eating the baked potato OR the chili, I just buy...
  22. Smunkeemom
    I live on corn tortillas, I made mini pizzas with them for dinner last night... so good.
  23. Smunkeemom
    you are not alone, my 4 year old had pos. blood tests but a neg. biopsy (she was 3 then) and her doctors refused to diagnose her as celiac. She started getting sick last year, so I put her on the diet, she is 100% better and they still won't dx her with celiac because I refuse to put her on a gluten challenge (why would I knowingly make my kid sick?!) anyway...
  24. Smunkeemom
    she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong
  25. Smunkeemom
    i have diarrhea and constipation one or the other all the time - brain fog depression - tired all the time rash gaining weight fast my dad- daughter and her two daughters have it just for info, that's my mom posting under my account up there ^ I was trying to help her register and for some reason the thing signed on under my name, guess I had posted...
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