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Smunkeemom

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Latest Celiac Disease News & Research:

Everything posted by Smunkeemom

  1. Smunkeemom

    ARCHIVED 1 Yr Follow Up Visit

    Smunkeemom replied to mart's topic in Doctors

    I tried to look it up for you, but the only page that I found that says they grow out of it, also said that people "grow out of" celiac too, and we all know that is WRONG. I do have a question though, if kids grow out of it, then why do so many adults have the prolem?
  2. Smunkeemom
    you get a prescription for what? sorry I am too American to understand, what is Pizza base? seriously, someone was talking about biccies on here a while back and it took me like 3 hours to figure out they meant biscuits but that really means cookies
  3. Smunkeemom

    ARCHIVED 1 Yr Follow Up Visit

    Smunkeemom replied to mart's topic in Doctors

    1 I have no clue, but growth is always good, so be happy for that. 2 As far as I know, as long as he is healed he shouldn't be in pain, unless he a isn't fully healed b is getting gluten somewhere c has another problem 3 if he has tested pos. for a problem with casien he still has it, you don't outgrow intolerances, you may go back and forth...
  4. Smunkeemom
    I agree with you about the commercials that have all the gluten in it, I am even having problems with the new Burger King commercials with the guys dressed up as burgers........god I want a burger............ I mean....NO......NO BURGERS, POISON NO GLUTEN YUCK! Oh and yeah gluten is everywhere, Sunday my 3 year old was making a collage in Sunday...
  5. Smunkeemom
    I just got back from Vacation Bible School, and one of my helpers has Celiac, and the other doesn't. The one without Celiac starts asking me questions about it, like "will they go into shock if they get some?" and "what happened that you knew they were sick?" and so I take it as an oppertunity to educate, since she is going to school to be a teacher, and...
  6. Smunkeemom
    Yes, gluten passes in breast milk, and yes a 10 month old can have celiac, my youngest started gettng sick at 10 months and was diagnosed at 12 months. She was very sick though, so her tests were high pos. I hear that's rare for a small child to have that high of a pos. test. You could ( and I would) make sure your son is 100% gltuen free for at least...
  7. Smunkeemom
    When my youngest got diagnosed, she almost died before they found out what was wrong with her, she at a year old had fallen to below her birth weight, she was on a feeding tube, and Celiac was "the last thing" they thought she might have. I know now (2 years later) that she was a classic case of celiac, I read medical journals and she was exactly what they...
  8. Smunkeemom
    The SCD diet is pretty rough to start out with, from what I understand it's the last resort, you might want to try gluten free/dairy free first and see if they feel better. I know the book says that you are supposed to do the SCD to heal and then add food back in, but people heal fine on the gluten free diet.
  9. Smunkeemom
    I found when my girls first went gluten free that it was easier to get them to eat the food if I came at it from a "wow, this is so good, I really like <insert food here>" rather than a "this is what you can eat now" thing. example (happened today) "I'm really digging these corn muffins, you want a peice?" instead of "here is a corn muffin...
  10. Smunkeemom
    "The healthy food store" you should call companies that you like and ask them what their program is for wholesale purchases, other than that I don't know.
  11. Smunkeemom
    Open Original Shared Link hope that helps. I think you might have to scroll up to the first post.... if you don't feel like clicking the link Here are some common ingredeints found in cosmetics and hair care products that contain gluten: Amp-Isostearoyl Hydrolyzed Wheat Protein Disodium Wheatgermamido Peg-2 Sulfosuccinate Hydrolyzed...
  12. Smunkeemom
    it sucks, that's for sure. I had to put my foot down around here and throw a fit, but as of a few weeks ago, we have a 90% gluten free kitchen (still working on getting new cookware and dishes) In the time that the kitchen wasn't gluten free, I tried to use paper plates, bowls, and plastic silverware for the gluten free food. That way I got out of the...
  13. Smunkeemom
    Open Original Shared Linkis a list of ingredients to look for in your shampoo, ect. You can print it out and look at everything you have. I threw out all my lipstick and started over, thinking it was probably cross contaminated (put it on after eating cereal in the morning) and also because I lost the packaging with the ingredients on it.
  14. Smunkeemom
    wow. thanks, I am going to re-read the box at church again, but my friend was up there a few hours ago and re-read it and still says she doesn't see wheat starch. I wonder how many times I will read the box before I believe it LOL
  15. Smunkeemom
    I tried it and wasn't able to stick to it. I don't know that it's ever normal to go that long without a BM unless that's his normal rythym.
  16. Smunkeemom
    If you have a restruant in mind, go a few days before hand and just look at the menu, think about what you might be able to eat there, then talk to the manager. I like to go right after lunch rush (about 2-3p) when they are slow, and sit down and talk to the manager. I tell them when I will be coming, and what I would like to eat, it gives them time to find...
  17. Smunkeemom
    okay, so today at church I read a box of Trix and didn't see Wheat starch in them, but hubby has a box at home that does have wheat starch in them, did I miss the wheat starch in the one at church? are there some gluten free trix? I called the children's minister and she is going to re-read them for the 50th time to see for sure, but we read and re-read...
  18. Smunkeemom
    I hear that there are no false pos. on blood tests, and that if it's pos. you got it. Now, how possible is it that he has damage already? not sure on those odds, but if he doesn't go gluten free, he will eventually get damage.
  19. Smunkeemom
    Open Original Shared Link
  20. Smunkeemom
    In my 6 years of marriage I haven't actually seen hubby's stools, but I can guess what they look like...... (since he has crohn's and all) we talk about poop way too much in our house, the texture esp. haha! I guess that's "normal" for a family where in the immediate family (kids, parents, grandparents) you have 5 people with Celiac, 3 with crohns, and 2...
  21. Smunkeemom
    omg I didn't connect it either, I have pretty bad Rosacea especially in the summer time, I bet you are right. Thanks, everything is making much more sense now.
  22. Smunkeemom
    haha, that is funny. I spent the first 4 years of my daughter's life NOT buying anything from the truck, trying to keep her from finding out, I sent her to my mother in laws for a weekend, and now everytime she hears the music she screams "ICE CREAM!!!!!!!!!!!!" So much for my efforts. I thought it was such a good idea too.
  23. Smunkeemom
    I can't donate anything because of severe anemia, I talked to the guy at the red cross though, and he said that celiacs can donate blood, if they aren't on any medications that are on the "forbidden list". My husband can't donate because of the meds, he is on for crohns for example. As far as the bone marrow thing, I don't know, but I think we can...
  24. Smunkeemom
    I get red rash on my scalp and shoulders from my shampoo, I never did try to figure out why though. It seems to go away once I am dried off.... it's rather confusing to me.
  25. Smunkeemom
    Welcome. I find myself surprised a lot by how much I learn from this board. It's good to have new people around, they think of questions I forget to ask, so ask away! We will all learn something together
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