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tom

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Everything posted by tom

  1. tom
    Sorry to say I'm not sure the celiac vs intolerance likelihood question is answerable in your situation. A properly done biopsy w/ enough samples could have provided sufficient evidence to dx celiac. It's a little surprising to see the biopsy called "child-abusive". The endoscopy often sounds worrisome even to adults then afterwards ppl say it was a...
  2. tom
    Nice to hear you're mostly doing well. (Esp w/ thread's title, right?) I've read of ppl here w/ specific xanthan gum issues & of course we can have rice, potato, or corn problems but at least those are easy to check & you probably already know they're fine or wouldn't have tried the mix.(?) How about the pan? Anything less than brand new has to...
  3. tom
    It's one of the toughest questions - to gluten challenge or not once already certain it makes you sick. Imo it can depend a lot on how much your Dr listens / how much you trust him/her to listen. Symptoms accrued during a challenge count highly to some Drs while others barely want to know. Some Drs will halt a challenge w/ overwhelming symptoms, get...
  4. tom
    If you're not already keeping a food/symptom journal, there's one thing that might help highlight what correlates to what. Especially because not everyone has same-day reactions. Also wondering if you've considered an environmental aspect. Any change in workplace/school/home sometime before starting to feel poorly? Do you or someone close have a pet whose...
  5. tom
    Ahh Christine, glad you posted. Do I remember correctly that the 2 week challenge was after 7 weeks gluten-free?
  6. tom
    Hey, was wondering how you were doing. I live in SJ (Willow Glen neighborhood) & work up by 237 & 880. Are you in Santa Cruz or live/work SC/SJ?
  7. tom
    Maybe you don't have celiac but the people who stay active on forums are understandably those most affected in the first place, from what I've seen, so you shouldn't place much significance on not being as bad off as many members here. Almost 50,000 ppl have joined this forum and the majority aren't currently active. I like to think that most of them...
  8. tom
    It's long enough for a lot of celiac patients. https://www.celiac.com/articles/22973/1/Histological-Serological-and-Symptomatic-Responses-to-Gluten-Challenge-in-Adults-with-Celiac-Disease/Page1.html "The team concludes by noting that a 14-day gluten challenge at or above 3 g of gluten/day triggers cellular, tissue, and blood changes in most adults...
  9. tom
    Again?. .. .this was answered the 1st time you said it. This time you left out the most crucial phrase "by day 14". From page1 of this thread. To use your phraseology (reluctantly) did you "choose to ignore" the fact that none of these studies stops at 14 days? Or are we "choosing to ignore" that 28 days is far less than 3 months? Are you still...
  10. tom
    Is there a word missing in that last sentence? I really don't know what you're referring to. My issues w/ wording stem from my acknowledgement that phrases like "will not" & "might not" aren't equivalent & that sentences can change from True to False or vice-versa when the phrases are subbed for each other. Every recent study I've found...
  11. tom
    I already addressed this once earlier in the thread. EVERY study I linked to did a blood test at EVERY endpoint. How did this fact not get through the 1st time? Sure that sounds rude but look at what I'm being accused of here. I'm being accused of trying to use completely irrelevant data to prove a point & it's unequivocally insulting. You...
  12. tom
    Wasn't peppa's question "is 2 or 3 weeks enough?". The simple answer is "it certainly could be", not a wholly unsubstantiated "no". With a few exceptions, I thought most of the posts ARE discussing this. Isn't this the right process when the answers aren't simple? I even thought a thread titled "Testing After gluten-free" was a fine place to discuss...
  13. tom
    This does specifically highlight my point. People HAVEN'T been just giving advice, they've been asserting that w/out 3-4 months there's "no hope of dx" & "will NOT" get a positive or it takes 3-4 months "to have any chance" of a positive. (Quotes from other threads" This thread had These assertions are not true. (It'd be true to say "there's...
  14. tom
    Of course the question isn't whether more gluten makes someone sicker, it's how much makes for a valid test. And sorry but I can't help but throw in that Common Sense tells ppl that heavier things fall faster.
  15. tom
    The studies I've seen (including those I've referenced in this thread) are recommending moderate doses. 2-3g/day is the equivalent of around 1 slice of bread. One study compared 2 levels of gluten/day & the other had 3.
  16. tom
    FoxNews "Front Page"? I'm seeing Soros-the-bogeyman, Obama bragging about Bin Laden (a bad thing there?), science-denying climate change stories . .....hmmm. Why bring Fox into this at all? It's not an exclusive. It's a Reuters article.
  17. tom
    !! I really don't know what to comment here. You can't really be imagining me thinking "oh she's just lying", can you? The point of contention is whether forum members should continue to tell ppl that they "have no hope of a pos dx" w/out 3+ months. What each individual facility does has no effect on whether it's possible or impossible to get...
  18. tom
    One datapoint says they want 3 months & the conclusion is that everyone else is failing every patient? The word 'need' is the problem. If 'need' were accurate, no one gets dx'd w/ less than what's needed. Celiacs do not need 3 months GC for a positive diagnosis. There's nothing wrong w/ just saying "if it were me, I'd want to do 3 months to make...
  19. tom
    Ahh nice. So it shouldn't be controversial at all for us to stop telling ppl they NEED 3-4 months on gluten to have "any chance" or "any hope" of a positive. I tried to find a U of Chicago GC recommendation before & couldn't find it at all, to much frustration. Did see that they were recruiting for a study which required 3 months. Can you point me...
  20. tom
    You mean the researchers using "biopsy-proven celiacs" for the study? Anything else only muddies the waters. Not sure why so much focus on the biopsy part since they also took blood at each interval. Of course the study is done w/ great care. Anything less diminishes its worth. BTW nothing I've seen on Vh/CrD ratio has made it seem that measuring...
  21. tom
    Aw man, wish I felt well enough often enough to both keep up here and to pop over the hill to meet for a quick coffee or something. Your sched looks pretty packed! I'm just 30-40min from the northern side of Monterey Bay, but don't pop over near often enough. Those Watsonville strawberries are legendary! Some as big as a fist! Gah! Another...
  22. tom
    Not true & I really wish celiac.com forum members would stop saying this. Here's one recent link. https://www.celiac.com/articles/22973/1/Histological-Serological-and-Symptomatic-Responses-to-Gluten-Challenge-in-Adults-with-Celiac-Disease/Page1.html "The team concludes by noting that a 14-day gluten challenge at or above 3 g of gluten/day triggers...
  23. tom
    Hehe cute pup! Certainly removes my desire for Bahrain twitter updates. Curious about where other pic was from now.
  24. tom
    Good idea to get a diet/symptom log going.
  25. tom
    Ohhhh yeah .. ...just didn't know its name. If you take probiotics, did you check for non-dairy grown? As a process it doesn't get listed as an ingredient.
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