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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that...
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The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
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Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
Scott Adams commented on Scott Adams's article in Latest Research
Your story is a testament to the critical importance of an early and accurate diagnosis. It's tough to read about what you had to endure, including multiple surgeries and hospitalizations, all while the root cause—celiac disease—remained undetected for so long. Your experience highlights the consequences of medical ignorance surrounding this condition and...- 3 comments
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Guinness, can you drink it?
Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger... -
I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune...
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Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn
Scott Adams posted an article in Additional Concerns
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Top Brands of Gluten-Free Canned Chili
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
While it seems unlikely to contain intentional gluten ingredients--and based on the ingredients you provided, this canned Wendy's chili appears to be gluten-free, but with a very important caveat: it cannot be considered certified or guaranteed gluten-free due to the potential for cross-contamination and the ambiguous nature of "natural flavors." -
Guinness, can you drink it?
Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have... -
Gluten food test strips
Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet. -
First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to...
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Patiently Waiting to See Results
Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point. -
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Guinness, can you drink it?
Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
This article may be helpful: -
Guinness, can you drink it?
Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley... -
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I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural...
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Gluten-Free Cranberry Pistachio Snowball Cookies
Scott Adams commented on Scott Adams's article in Cookies
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CT with contrast.
Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests. Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up. -
New labs are now very elevated
Scott Adams replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times...