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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  2. This article, and the comments below it, may be helpful:
  3. Celiac.com 10/17/2025 - Coconut macaroons trace their roots to medieval nut-and-egg confections in Italy and Spain, later adopted by Jewish communities as a naturally flourless sweet enjoyed during Passover. When dried coconut became widely...
  4. Amy’s Kitchen has initiated a recall of select Gluten Free Bean & Rice Burritos due to potential foreign material, according to current recall listings. The affected retail unit is 5.5 oz with lot code 30C1725 and an expiration date of 03/2027. Distribution included multiple U.S. states. Specific foreign material was not disclosed in public summaries a...
  5. Very interesting--thanks for sharing that study!
  6. Let us know how things turn out, and good luck!
  7. It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
  8. There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune r...
  9. There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat...
  10. What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in...
  11. The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a...
  12. I'm so sorry to hear you're feeling so unwell, and I hope you recover quickly. While your personal experience of getting sick is absolutely valid, there are a few key inaccuracies in the information you've shared that are important to clarify for anyone else reading. The central misunderstanding is about oats and gliadin. Oats do not contain gliadin...
  13. This article, and the comments below it, may be helpful:
  14. Celiac.com 10/16/2025 - People living with celiac disease face more than just the challenge of avoiding gluten. This condition, which causes the immune system to attack the small intestine after eating gluten, can lead to long-term complications...
  15. Just today here someone was discussing their wish to cheat on their diet when they go to Italy:
  16. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
  17. If you have celiac disease being gluten-free is essential, but this article is aimed at those in the initial stages of getting diagnosed and quitting gluten. For some people gluten cravings can be strong and last for years. Unfortunately 18% of celiacs polled by Celiac.com report cheating on their gluten-free diets.
  18. While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can...
  19. Italy is one of the easiest places to eat gluten-free, their celiac awareness is among the highest anywhere, so why cheat? Most celiacs don't have obvious symptoms, however, the risks are the same if they continue eating gluten. That said, GliadinX would be good to have on hand on such a trip to avoid cross contamination, but since you have celiac disease...
  20. If a product is labelled "gluten-free" it is considered to be safe for people with celiac disease (in the USA they need to test below 20 ppm). Some people prefer to eat only foods that are certified gluten-free, which are supposed to test below 10 ppm, however, they don't always test this low.
  21. Potatoes are gluten-free, and very healthy for most people. Some studies (in animals or in vitro) suggest that high concentrations of glycoalkaloids can disrupt cell membranes in the gut lining, potentially increasing intestinal permeability (“leaky gut”), however, in normal potato consumption, the levels are usually too low to cause this effect in humans unl...
  22. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  23. Since GliadinX has been shown to break down the harmful part of gluten in the stomach it's possible it could help to keep antibody levels lower, but this is assuming that you are getting gluten in your diet, and each time you are taking them right before you eat. They should never be taken in order for you to eat regular gluten foods, only to avoid small...
  24. Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  25. It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough...
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