Scott Adams
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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit... -
Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
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Let us know how things go.
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In the thread I linked to above, one of our sponsors here sells gluten-free nuts, dried fruits, etc (a coupon that might work for you there is GF20) https://www.tierrafarm.com/
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Thanks for sharing that update!
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I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re...
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Medications
Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
Don't let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something. -
Yes, I have one of the older models and have tested many products with it. For me it seems like a valuable tool and I have used it to test foods that I eat regularly, which are naturally gluten-free, for example salsa, refried beans, etc.
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Celiac.com 01/24/2026 - Lo mein–style noodles have long been associated with Chinese-American home cooking and restaurant comfort food, known for their savory sauce, tender noodles, and colorful mix of vegetables. Traditional lo mein i... -
Celiac disease is the most likely cause, but here are articles about the other possible causes:
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Celiac.com 01/22/2026 - When celiac disease is mentioned, the focus is usually on symptoms, diagnosis delays, or the challenges of maintaining a strict gluten-free diet. Far less attention is paid to what happens decades later. Many people... -
This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
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nothing has changed
Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t... -
About Celiac Remission
Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an... -
Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
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Medications
Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fa... -
Gluten tester
Scott Adams replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com -
Yeast extract
Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
Here is some more info on this: -
Your approach makes a lot of sense — focusing on balanced meals and being cautious about cross-contamination is smart, especially when you’re traveling or unsure of a kitchen’s gluten-free practices. Many GF foods do lean toward higher sugar or processed ingredients, so prioritizing whole foods (lean protein, fruits, veggies, healthy fats) at meals can h...
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Do Gluten Enzymes actually work?
Scott Adams replied to Xravith's topic in Related Issues & Disorders
I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea. -
I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with ...
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It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating o...
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Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
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My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase...
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I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and...
