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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Help needed
Scott Adams replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (... -
Wheat Straw Dishes
Scott Adams replied to SophiesMom's topic in Gluten-Free Foods, Products, Shopping & Medications
Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating c... -
Lost
Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like ne... -
Immunologist Referral if IgA Deficient
Scott Adams replied to Joe R's topic in Related Issues & Disorders
Since you have a confirmed celiac disease diagnosis alongside severe IgA deficiency, consulting an immunologist is a reasonable step to better understand the implications of your immune status. While many IgA-deficient individuals remain asymptomatic, the deficiency can occasionally be linked to increased susceptibility to infections, autoimmune conditions... -
I've spoken to the founder of GliadinX and you that would be a good approach--but I'm assuming you're eating gluten-free options and worried about cross-contamination. I do this myself when eating in restaurants and traveling. If you know you accidently eat a lot of gluten you can safely ramp up the dosage and take 4 or 5, according to my conversations.
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Gluten-Free Tamarind Ginger Sinigang with Coconut Milk
Scott Adams posted an article in Chinese & Asian
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Dealing with celiac and menstrual cycle
Scott Adams replied to annirosex's topic in Related Issues & Disorders
Good point, as thyroid conditions are more common in those with celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ -
@DebD5 it sounds like you are in the super sensitive celiac disease zone--and if so your reactions are real, and not psychological, as your doctor implied. It's also possible you have other dietary triggers so be sure to look at that article in my last post in this thread.
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Wishing you lots of luck--let us know how it turns out!
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Advice please
Scott Adams replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, ther... -
New painkiller, Journavx
Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"... -
Confused about my results
Scott Adams replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative... -
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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I give this advice to everyone who is considering quitting their job: always try to line up a new job before you quit. Why? Because it's easier to find a job when you have one--unemployment for a stretch of time can be hard to explain, especially if the period of unemployment is prolonged. Also, unless you're independently wealthy or have family support,...
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It’s great that you’ve scheduled a doctor’s appointment to address your symptoms, especially given your family history of autoimmune diseases, including celiac disease. Your symptoms—such as stomach pain, chronic diarrhea, nausea after gluten consumption, joint pain, and headaches—do align with common signs of celiac disease, so it’s definitely worth discu...
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CVS (Cyclic vomiting syndrome)
Scott Adams replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Cyclic Vomiting Syndrome (CVS) is not a common symptom of celiac disease, but there can be occasional overlap—particularly in children. Celiac disease typically presents with symptoms like chronic diarrhea, abdominal pain, fatigue, and nutrient deficiencies, while CVS is marked by repeated, intense vomiting episodes separated by periods of normal health. ... -
Top Brands of Gluten-Free Coconut Water
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
I understand your concern—gluten sensitivity and cross-contamination can be really tricky to navigate. Since coconut water is naturally gluten-free, the lack of a label might just mean Costco hasn’t gone through the certification process, not necessarily that it’s unsafe. However, if their facility also handles gluten-containing products, cross-contamination could...- 5 comments
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I totally get it—the mental back-and-forth is exhausting! After the letdown of 2017, it makes sense to brace for another "false alarm," but this time really is different. That pasta the night before? Unlikely to cause such high TTG-IGA/EMA results (those antibodies build up over weeks/months, not overnight), but it does mean your immune system is actively r...
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It’s completely understandable to feel anxious and doubtful, especially after previous negative results despite ongoing symptoms. Your current bloodwork—with a TTG-IGA of 152.6 (vs. <15) and a positive EMA (1:10)—is significantly more concerning for celiac disease than your 2017 results. While your EMA titer isn’t as high as some others report, it’s s...