Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful. -
Newbie with Celiac / NCGS symptoms
Scott Adams replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could... -
Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
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Welcome to the forum @oyea, have you ever been screened for celiac disease? You symptoms sound like they could be celiac disease related.
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Since chocolate has a laxative/stimulant effect on the digestive system, similar to coffee, some people do report IBS-like symptoms when they eat it, however, as long as the chocolate is gluten-free, the cause of such symptoms would be unrelated to celiac disease.
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Since those with celiac disease have a much higher change of having or getting additional autoimmune diseases it could definitely affect your health insurance rates. Prior to the Affordable Care Act (ACA), individuals with celiac disease could indeed be charged significantly higher premiums for private health insurance or even be denied coverage altogether...
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@Jmartes71, your story is a powerful and heartbreaking testament to the profound failure of the medical system to understand and properly manage celiac disease and its long-term consequences. Being dismissed and medically gaslit for three decades after an initial diagnosis is an unimaginable burden that has cost you your health, your career, and your sense...
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Celiac.com 09/13/2025 - Pizza has long been a symbol of communal eating and culinary creativity. Its origins trace back to ancient flatbreads enjoyed across the Mediterranean, but modern pizza as we know it took shape in Naples, Italy... -
I agree, and generally it means that it isn't working in a high enough percentage of participants to continue pursuing it.
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Celiac.com 09/11/2025 - For individuals with celiac disease or gluten sensitivity, avoiding gluten-containing grains is essential for maintaining health. Most people are familiar with the need to avoid wheat, but barley often flies under... -
We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
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Celiac symptoms
Scott Adams replied to Dana0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity... -
So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
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Product Name: Blueberry Pretzels " Brand Name: HEB " Description: 8oz HEB Blueberry Flavored Yogurt Pretzels " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 & 080326 " Package Size: 8oz " Establishment Number: 008046575 " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 &...
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That is very strange, because it looks to me like two very different test results, but for the same test! It's definitely time to contact your doctor for clarity on this.
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Comparing Urine and Stool Tests for Gluten Exposure Detection
Scott Adams commented on Scott Adams's article in Latest Research
I like the idea of a dog trained to sniff out gluten better! It seems like a device could be made to do the same.- 2 comments
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- celiac disease
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Hidden Gluten: Surprising Foods and Products That May Contain Gluten
Scott Adams commented on Scott Adams's article in Additional Concerns
Actually the biggest gummy bear maker Haribo lists "glucose syrup (from wheat or corn)" as their first ingredient, and even though most gluten would be removed when making it, sensitive celiacs should avoid them. -
Not everyone wants to not eat out--I want to be able to travel and dine out, thus I've been taking GliadinX before such meals for years. Before I began doing that I would typically get gluten symptoms around 1/3 of the time, now I never get them. Of course this isn't proof that it works, but you can read the scientific publications on AN-PEP and decide for...
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The hernia description would likely be unrelated to celiac disease, but you'd need to get it checked out by your doctor to be sure it's a hernia.
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My mo,ther married a bread making when I was 4
Scott Adams replied to Jane878's topic in Coping with Celiac Disease
Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed...- 1 reply
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- 2nd autoimmune disorder at 12
- auto-immune disorders at 5
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It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out"...
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Rice Flakes
Scott Adams replied to sillyac58's topic in Gluten-Free Foods, Products, Shopping & Medications
I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free. -
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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It's strange to see two very different results in what appears to be a single blood test--one is positive and one is negative for a celiac disease test. Are these results separated by time? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease...
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Is Flavored Sparkling Water Gluten-Free?
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
I doubt they contain gluten, but I don't see any details on their site regarding allergens or gluten, so you may need to contact them directly about the source of their caramel color and natural flavors. https://www.schweppesus.com/products/ginger-ale/schweppes-regular-ginger-ale
