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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Some of the companies in this article also make beef bouillon, so perhaps reach out to them?
  2. Scott Adams
    It definitely sounds like you have some nutrient deficiencies caused by probably caused by malabsorption due to flattened villi in your intestines. You may need to take a good multi-vitamin/mineral supplement, and Kirkland makes a decent one sold at Costco, and there is also One A Day brand. Talk to your doctor about this, but also have a look at the article...
  3. Scott Adams
    We've done a few articles on lectins for those who are interested: https://www.celiac.com/search/?&q=lectins&type=cms_records2&search_and_or=and&search_in=titles
  4. Scott Adams
    Welcome to the forum! There is definitely a strong minority of those with celiac disease who also seem to do poorly whenever they eat any type of grain. Since you are also vegan this can pose extra challenges for you to get enough nutrients, so you may also want to take a good vitamin/mineral supplement. I believe potatoes are one of the few vegetables...
  5. Scott Adams
    Let us know how it goes! Any info you share about your trip could help others who travel to those countries.
  6. Scott Adams
    Your symptoms are certainly consistent with untreated celiac disease, but could you give more info about your blood tests? Did you have a tTG test done? Can you share the exact results, with the reference ranges? Here is more info on the blood tests:
  7. Scott Adams
    I think it is possible to travel gluten-free safely anywhere, if you do the right pre-planning, and bring plenty of gluten-free bars/snacks during your travels just in case. I would seek out health food stores, which may be different than ones here, for gluten-free products. Also, here are very basic restaurant cards from a ChatGPT: ...
  8. Scott Adams
    PS - Most celiac can tolerate skin contact with gluten, and only very sensitive ones, and perhaps those with DH, might have issues with this. Getting dust in your mouth that contains gluten, for example if you worked at a bakery, could be an issue.
  9. Scott Adams
    I doubt there is any gluten in paint, and even if there were I don't believe you could get gluten from the fumes. I have heard that some dry wall may contain gluten, so if there was dust from dry wall in the air I suppose it could be possible.
  10. Scott Adams
    Both of the items you mentioned should be gluten-free. Have you kept a food diary to see if it could be an additional food intolerance?
  11. Scott Adams
    I will assume that there is no hidden gluten in your diet, medications, etc. Have you kept a food diary to see if it might be an additional food intolerance? Do you eat oats? Around 9% of celiacs are also oat intolerant. Many celiacs cannot tolerate dairy because their villi are damaged, which may change after they fully recover. Chicken eggs are a common...
  12. Scott Adams
    The issue I have with wheat and barley grasses are that they can often end up contaminated due to how they are processed. For example, I've personally witnessed a Jamba Juice employee cut wheat grass to put in a juicer that had a couple of seed kernels mixed into it (not sure if Jamba Juice still does it this way, as it was many years back). Because the kernels...
  13. Scott Adams
    Since your DPG level was around 3x the cut off for celiac disease it is still likely that you have celiac disease, or at the very least non-celiac gluten sensitivity. In general, however, the DGP tests have been found to have a sensitivity of around 85-95% and a specificity of around 95-98%. You may wish to try a gluten-free diet for a few months as @trents...
  14. Scott Adams
    It is very strange that anyone, let alone a doctor, would tell you that you could not get celiac disease because you are South African. Anyone with the genetic markers could get celiac disease, and at least 1% of Europeans have it.
  15. Scott Adams
    Most likely...unless your gas oven is very dirty and covered with gluten crumbs.
  16. Scott Adams
    Just my two cents, but I think between the two links that @RMJ shared, this one would provide the most accurate info: NIH website: https://dailymed.nlm.nih.gov/dailymed/index.cfm
  17. Scott Adams
    I haven't heard of someone getting new food intolerance issues just after going gluten-free, but the timing of any additional food intolerance issues that might be triggered by damaged villi isn't perfect. It's possible that they have developed recently because you likely still have leaky gut issues.
  18. Scott Adams
    Welcome @MrPete, others have reported this as a symptom, although it would not make the list of the most common symptoms. Here is more info on blood tests for celiac disease, and note that you need to keep eating gluten on a daily basis until all celiac disease testing is completed:
  19. Scott Adams
    If it is DH, and your diet is 100% gluten-free, iodine can trigger flare ups as well, which is in dairy, seaweed, seafood, etc.
  20. Scott Adams
    Do you know what type of tests were done? Did you have a celiac disease blood panel? More info would be helpful. Also, is your diet 100% gluten-free?
  21. Scott Adams
    You may try also cutting out dairy/casein for a while, as many celiacs cannot tolerate it due to the gut damage. This may change after your gut heals.
  22. Scott Adams
    You can see this towards the end of this article:
  23. Scott Adams
    Here is more info on the Marsh classification system, and I also want to point out that experts such as Kenneth Fine, MD, Rodney Ford, MD, and others believe that lower Marsh scores could still mean celiac disease:
  24. Scott Adams
    Some people who go gluten-free seem to get more sensitive to it after a while of not eating it. It's unfortunate that you are having issues staying on a gluten-free diet, and hopefully your doctors informed you of how damaging gluten can be in those with celiac disease. This article may be helpful:
  25. Scott Adams
    Welcome to the forum @OfcVal, it's great to hear that you discovered the sources of your symptoms and have recovered.
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