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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I hope you see some improvement soon, and sorry to hear you're not doing well!
  2. Scott Adams
    The Gliadin Peptide Antibody IgG test may test for NCGS, but it has a high false positive rate, so there isn't an accurate way to test for it yet. Most people just go gluten-free for a few months and if they get relief from their symptoms, then they consider themselves NCGS.
  3. Scott Adams
    You likely also will need a good gluten-free multi-vitamin/mineral supplement, as many celiacs have nutrient deficiencies at the time of their diagnosis.
  4. Scott Adams
    Iron deficiency may be just the tip of the iceberg as far a nutrient deficiencies go. Since you had flattened villi you may have additional nutrient deficiencies, so you may want to get your level checked, and the article below has more info about this. A motivating factor to stay gluten-free would be the many issues that malabsorption can cause over...
  5. Scott Adams
    I agree if your IgA is 261 mg/dl that is not measuring anything for celiac disease, it just measures the accuracy of the other blood tests done for celiac disease.
  6. Scott Adams
    Given the two positive blood test results it is likely that you do have celiac disease. The results would likely have been higher had you followed the 6-8 week protocol. The normal next step would be an endoscopy to confirm, and you should continue eating gluten until all tests are completed. Here is more info on what your blood test results mean:
  7. Scott Adams
    This is definitely a positive blood test for celiac disease, and I agree with @trents that children should also be given the DPG tests as well, because their immune symptoms are not fully developed. The article below has more info, and includes this: The normal next step would be to have an endoscopy done, and to do any further testing for celiac...
  8. Scott Adams
    It looks like McDonald's French fries are gluten-free! This is from their UK site, and in the UK products that used hydrolyzed wheat can be called gluten-free (and this is also true in the USA now as well): https://www.mcdonalds.com/gb/en-gb/help/faq/which-of-your-products-are-gluten-free.html
  9. Scott Adams
    If I understand what you posted correctly, your tTG-IgA (tissue transglutaminase IgA) was 261, and anything higher than 15 is positive (please let me know if this is correct). This means you are 17.4 times higher than the cut off for celiac disease, and in Europe they are diagnosing people with celiac disease using only blood tests and no biopsy if their...
  10. Scott Adams
    I'm sorry to hear about the rough time you are having. Most people see improvement fairly soon, but not everyone. Are you 100% sure your diet is gluten-free? See the article below just in case. Also, at the time of diagnosis many celiacs have a condition called "leaky gut" which can cause additional, usually temporary, food intolerances. Cow's milk/dairy...
  11. Scott Adams
    Can you also share the reference ranges for the tests, with her scores? Different labs use different scales.
  12. Scott Adams
    If you combine a 90-95% correct rate of diagnosis for that blood test, AND a positive biopsy, what is the likelihood that you don't have celiac disease?
  13. Scott Adams
    I agree, it takes only a single positive blood test, then a single positive biopsy result to diagnose celiac disease, and any other negative blood tests should be irrelevant. This article includes probabilities for any positive results: Tissue Transglutaminase Ab.IgA / 4 (positive 4+)
  14. Scott Adams
    When you have a reply field open there is a "choose files" option if it is on your desktop...select it, then click in the field where you want to insert it and click on the image that was uploaded...there is an "insert" on the image. An easier way is the copy the photo...on desktop control C, on a phone hold your finger on the image until you have the...
  15. Scott Adams
    It's too bad they did not do more blood tests, but please have a look at this article and I agree that the DPG test would be helpful, and perhaps the EMA-IgA (endomysial antibodies IgA), but this test is more expensive:
  16. Scott Adams
    Thank you for the suggestion!
  17. Scott Adams
    I agree, if you get relief from a gluten-free diet then I would consider it NCGS.
  18. Scott Adams
    The recovery process can be different with everyone, and since most celiacs have leaky gut by the time they are diagnosed they are also prone to additional food intolerances which may go away after their gut heals. You may want to keep a food diary and need to eliminate other foods for a while.
  19. Scott Adams
    Be sure to keep eating gluten daily until all celiac disease testing is completed. Positive endoscopy results are the gold standard for celiac disease, so if your results were positive then you most likely do have it. If your symptoms go away on a gluten-free diet this would provide further confirmation.
  20. Scott Adams
    Your statement is far too broad to be reliable, as I've been eating nightshades daily for my entire life, without any issues. Many celiacs don't have issues with nightshades, although some do. Many non-celiacs don't have issues with nightshades, although some do. Please don't make broad, sweeping statements like this because it isn't helpful to people who...
  21. Scott Adams
    I will say that I agree with the author here, and do not find them to be the safest...not even close. Most pizza places I've been to don't have a separate preparation area, or a separate oven or area within an oven to cook them. We've done articles on this topic before, including these:
  22. Scott Adams
    I'm not sure if you read it all, but this part might be important:
  23. Scott Adams
    I think you may want to read through that article and see if some of the symptoms of certain deficiencies match yours, and perhaps ask your doctor to test you for various nutrient deficiencies. In general, taking a good multi-vitamin/mineral supplement is often recommended to celiacs, especially when newly diagnosed.
  24. Scott Adams
    Just to clarify, potatoes are not a big "no no" for everyone. In this case the OP @Lizi seems to do quite well with potatoes, and given her dietary restrictions there is no need to avoid them if she has no issues with them. I eat potatoes, tomatoes and chili peppers almost daily, and have zero issues with them.
  25. Scott Adams
    You should not be eating gluten if you have celiac disease! Try not eating it and I suspect your issues will disappear.
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