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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Let us know about the blood tests. How many biopsy specimens did they take? The protocol for celiac disease is a minimum of 4, but usually 6. It's also possible that you have non-celiac gluten sensitivity, which around 10x more people have than celiac disease, and the outcome is the same anyway--a gluten-free diet. If all tests end up negative, then...
  2. I'd recommend saving the can and contacting the company directly about this. Without actually testing it for gluten there is no way to be 100% sure, but the company may want to test it.
  3. It's probably over the top to worry about this because you likely won't be putting those towels in your mouth, but if you are concerned about them washing new towels is a pretty standard thing to do, at least in our home.
  4. It never ceases to amaze me why some in the medical profession can still be so ignorant, or worse yet, insolent (hard to say which here, but if you came into the office wanting to be tested for DH, and they then ignored you and tested you for something else, it could be the latter). Again, I'm obviously no dermatologist or doctor, but my DH spot looked...
  5. So this is a very old blog, but I'll try to help. Did your dentist mention what may be the cause--is it a cavity? Celiac disease isn't the cause of everything, and certainly celiacs still get cavities which may not be related to their disease. Do you have tooth enamel defects that are associated with celiac disease? If so, then your issue could be related...
  6. I don't think it's practical or affordable to test for all of these various deficiencies, and and simpler approach might be for those with celiac disease to take a general vitamin/mineral supplement like One A Day (with or without iron, depending on your needs), Geritol Multivitamin, or Costco's Mature Multi. In general nearly everyone has some sort of deficiency...
  7. I think your doctor is right, and that is a great article. It's old, but I'm still in contact with Dr. Ken Fine and he is still running his celiac stool and blood test lab (Enterolab), and has a very different view on this than mainstream doctors. To him gluten sensitivity and celiac disease are all part of the same syndrome, and doctors are often seeing...
  8. You can look this up, but the biopsy for DH needs to be done directly next to a blister. If they took a sample on a clear patch of skin that was totally unaffected by the rash, I believe they were not following the protocol for a DH biopsy.
  9. In general you may be over thinking some of the things you have brought up here and in your past posts, but I understand the concern, especially if you are very sensitive.
  10. This recipe looks healthy! Thank you for sharing it!
  11. As long as you don't eat it! 😀 I'm not sure that such glue contains gluten, but if so it would be easily avoidable.
  12. @Peteymoz you are correct about the level of under 20ppm as the allowed limit, but most large companies in Europe, for example Schar, make their products in dedicated facilities and there would be zero or close to zero detectable gluten in their products. If they ever detected, for example, 18ppm, it would likely set off a panic where they would need to go...
  13. There are celiac disease experts who believe that NCGS is a pre-celiac stage, and it could end up in full blown celiac disease if those affected continue eating gluten.
  14. To me the images look nearly identical to dermatitis herpetiformis, which is the skin condition associated with celiac disease. I had this on my right hand for years, and even tiny amounts of gluten can trigger it for weeks. If it is DH, iodine in dairy, seafood, salt and other foods like seaweed can also trigger outbreaks in some people. Just in case...
  15. For me the answer is simple, as I am a meat eater. If you don't eat meat then this would be a more difficult question, but you didn't mention this. Beans and soy are good sources of protein, but I would stick with fermented tofu for the soy.
  16. This article may include some things that could help:
  17. Are you also exercising? I would look into specific exercises that target that area of your body, and consider eating higher protein and less carbs.
  18. This is true, and we've also done some articles on the topic of oxalates: https://www.celiac.com/search/?&q=oxalate&type=cms_records2&search_and_or=and&search_in=titles
  19. It seems they are doing the CYA here, which is unfortunate, as they cough drops don't contain any gluten ingredients, and don't list wheat as an allergen: https://www.amazon.com/HALLS-Relief-Cherry-Cough-Mentho-Lyptus/dp/B09HY4SCR5 This article may be helpful:
  20. Were you eating at least 2 slices of wheat bread worth of gluten for at least 6 weeks before your blood panel for celiac disease? Please let us know more about your blood test results. Most of the symptoms you've had could definitely be related to untreated celiac disease.
  21. Welcome to the forum @miraaaaaaa, would you mind sharing where you got this info?
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