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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    So I would not take this as the best scientific viewpoint on the subject of celiac disease blood test accuracy, but as mentioned in this thread, if this were a false positive then a gluten-free diet would not cause the values to go down, and vice versa.
  2. Scott Adams
    Definitely follow up with your doctor about your symptom as well, as there could also be something else going on. Just to make sure you are 100% gluten-free this article may also be helpful:
  3. Scott Adams
    Please provide a link, not screen shots...I can't tell where this info comes from.
  4. Scott Adams
    This might be the place to go: https://www.uchicagomedicine.org/conditions-services/gastroenterology/celiac-disease#:~:text=World-Class Celiac Disease Care,as co-existing autoimmune conditions.
  5. Scott Adams
    It's definitely not easy to eliminate all gluten, and the article below may help. Let us know how things go. I think being 100% gluten-free for at least a couple of months would be necessary for you to see if it helps.
  6. Scott Adams
    Please provide a source link for this, as I do not believe this is the case.
  7. Scott Adams
    What is your longest stint being gluten-free? Non-celiac gluten sensitivity could be your issue, but normally you would see symptom improvement after going gluten-free for a few weeks.
  8. Scott Adams
    What were your total IgA Levels? This is always checked to determine the accuracy of the other tests. I see several high tests, and several positive blood tests here: FIRST TEST 3/31 Gliadin Peptide - Ab.IgA / 15 (positive 20+) Gliadin Peptide - Ab.IgG / 37 (positive 20+) Tissue Transglutaminase Ab.IgA / 4 (positive 4+) - This...
  9. Scott Adams
    Celiacs in Europe have been eating Codex wheat starch for decades…it used to be under 200ppm, now it’s under 20ppm. We have a whole category of articles on this topic: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
  10. Scott Adams
    I recall a prickly, itchy feeling that almost burned it itched so bad. Have you been exposed to gluten? Hopefully you're gluten-free.
  11. Scott Adams
    I agree, and some people get much stronger reactions to gluten after going gluten-free for a while, so it could definitely be the gluten. With a bit of planning you should be able to vacation gluten-free.
  12. Scott Adams
    I agree, a one time incident should not trigger prolonged high antibodies, but repeated low exposure could.
  13. Scott Adams
    More info about the blood tests are below, but you definitely could have celiac disease, and an endoscopy should have been done. At the very least it sounds like you have non-celiac gluten sensitivity, but more testing is needed to figure this out.
  14. Scott Adams
    It can skew the result, and possibly cause a false negative result. Children recover much faster than adults, so this effect could be magnified due to their age.
  15. Scott Adams
    It's always a good idea to get a copy of your biopsy results, and feel free to share them here. Normally 4-6 samples should be taken during an endoscopy to diagnose celiac disease, and biopsy samples are typically taken from the small intestine. Specifically, the biopsy samples are obtained from the duodenum, which is the first part of the small intestine...
  16. Scott Adams
    This article has more info about the Marsh scale:
  17. Scott Adams
    The gold standard for diagnosing celiac disease is still the biopsy results, so if you had positive results this is a pretty strong indicator that you likely have it. If you had a positive biopsy AND a positive blood test, then it's even more likely, especially given your symptoms. In the end, since it seems you are reluctant to have such a diagnosis...
  18. Scott Adams
    You may want to do a genetic test on her to see if she carries a celiac marker, according to research, the overall prevalence of celiac disease in individuals with type 1 diabetes in the USA ranges from approximately 4% to 9%. She already has a much higher likelihood of having celiac disease than the normal population.
  19. Scott Adams
    I'm sorry to hear this @Glutenparalysis, and welcome to the forum! Have you been diagnosed with celiac disease? If so, how long have you been gluten-free?
  20. Scott Adams
    This such a high TTG test result celiac disease is very likely, even though the biopsy results don't clearly show celiac disease, at least from my non-doctor look at what you posted. Even with a negative biopsy I would still consider this to be likely celiac disease. You can read more about blood test results here, but in Europe they are diagnosing people...
  21. Scott Adams
    To me it seems very strange that the Mayo Clinic would let you stay gluten-free before doing an endoscopy for celiac disease. Normally you need to eat gluten daily during the two weeks leading up to this. I would ask them again about this, as it breaks standard protocol.
  22. Scott Adams
    Bob's should work, and one of our sponsors is famous for their 1:1 flour: https://shop.gfjules.com/
  23. Scott Adams
    It doesn't look like a full celiac disease blood panel was done, perhaps ask your doctor for this? Do you eat gluten daily? To be tested for celiac disease you need to continue eating gluten daily for a couple of months before the test.
  24. Scott Adams
    With many of your questions you need to use common sense for your answer. Unfortunately we can't help you with that! 😗 Since we're not part of the situation you describe, and you often don't fully describe a situation, there is no real way we can answer your questions. Only you would be able to tell exactly how and where your towel touched your toaster, a...
  25. Scott Adams
    I'm not sure if any of these comments are relevant to this article, are they?
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