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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum. Be sure that you continue eating gluten daily until all tests are done for celiac disease, otherwise you may end up with false negatives. You could also get a Mail order test for around $100 if you wanted to do this outside of your insurance and doctors. The advantage would be that it could be done far more quickly.
  2. Scott Adams
    Of course it’s possible there could be a contaminated batch out there, but it might be best to just avoid it. Sunflower seeds would be the most likely allergen in it. and I’m not sure what is in their “natural flavour.”
  3. Scott Adams
    Your approach might work fine, or you could also try just adding guar or xanthan gum, and perhaps a bit of tapioca flour, to the traditional masa flour. There are also commercially available gluten-free white flour tortillas available at Trader Joes, Whole Foods, etc. This article may also be helpful:
  4. Scott Adams
    Ok, so just to clarify, you can't do any further testing for celiac disease unless you're eating gluten daily. You may still be able to get a skin biopsy for DH, however, I do believe that going gluten-free for so long may also affect those test results as well, and you could get false-negative results on any of these tests because you are now gluten-free...
  5. Scott Adams
    A quick look at their web site indicates that it is naturally gluten-free, and does not carry "gluten-free" on the packaging, and the only allergens listed are: Contains: Tree Nuts, Milk https://www.swissmiss.com/classics/milk-chocolate-canister Normally, if it had a chance of wheat contamination, they would include wheat as an allergen. None...
  6. Scott Adams
    Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines...
  7. Scott Adams
    Welcome to the forum. I agree that your doctor should have ordered the tTG-IGA test. If your goal is to get a formal diagnosis that would help you stay gluten-free for life, then yes, you should keep eating gluten daily until all tests are done. However, ~10x more people have non-celiac gluten sensitivity than celiac disease, and for that there is currently...
  8. Scott Adams
    Can you share the reference levels for each test, as each lab has different cut of levels that denote celiac disease?
  9. Scott Adams
    The fastest and best way to stop the itch and rashes, if they are caused by gluten sensitivity, would be to switch to a 100% gluten-free diet. Obviously you're planning a biopsy so need to wait on that, but what if your biopsy is negative? You could still have DH or non-celiac gluten sensitivity and need to go gluten-free.
  10. Scott Adams
    I agree that on the genetic side, new research continues to find new genetic markers associated with celiac disease, for example this new article:
  11. Scott Adams
    Welcome to the forum! If you can get a copy of your celiac positive blood test results and wish to share them here it could provide more insight to your situation. In Europe if your antibody tests are 10x the level for celiac disease they are making the diagnosis without a biopsy. I bring this up because of your family history, and to me it would seem prudent...
  12. Scott Adams
    I'm curious why you would say this to your doctor: "I told him I can't have celiac disease"? Both your test results that you've shared here, and your own doctor have indicated that you likely do have celiac disease.
  13. Scott Adams
  14. Scott Adams
    Clearly you need to be gluten-free no matter what, and I doubt being gluten-free as a celiac would increase any thyroid issues, but as this one study indicates, it may not decrease your thyroid issues. It is only one study, and many other conditions do improve for celiacs who are gluten-free.
  15. Scott Adams
    I think there is a lot to be hopeful about. You've found out that gluten is essentially toxic for you, and have hopefully transitioned to a 100% gluten-free diet (usually this means that you should avoid eating out unless you're sure the meal isn't cross-contaminated). From what I know about celiac disease it could very well cause inflammation throughout...
  16. Scott Adams
    There are some great GF breads and crackers out there, so be sure to do some internet searches. Trader Joe's, Costco, Walmart, Amazon, etc., are full of GF versions.
  17. Scott Adams
    Just to clarify, my post about Europe, they are NOW (I had NOT in my post...typo) diagnosing if your levels are 10x.
  18. Scott Adams
    I'm sure you could do this, but it might just be easier to drop them in one by one slowly, let them dissolve, and keep tasting it until you get the right amount.
  19. Scott Adams
    I don't think that is mild either, and it can take a year or more on a 100% gluten-free diet to fully heal. I don't think the Marsh scale was in use when I was diagnosed, but I do know that my gastro said that the damage was visible to the naked eye. I believe it took me closer to 2 years to feel like I had recovered, but I know that I had issues avoiding...
  20. Scott Adams
    From everything I've read, dapsone will work, however it does carry with it some pretty bad side effects. One of our site's authors is an RN, has DH, and has written extensively about dapsone, so you may want to go through some of her content using this search: https://www.celiac.com/search/?&q=dapsone&author=Yvonne (Vonnie) Mostat%2C RN&...
  21. Scott Adams
    SIBO is a common issue, and in your case could definitely be related to your recent celiac disease diagnosis. Hopefully your strict gluten-free diet will help with both your ferritin and SIBO issues, but this can take time. The average time to recover after a CD diagnosis is around two years. It is possible that your SIBO issue may need to be treated with...
  22. Scott Adams
    This is an interesting sensitivity, and makes me wonder if there is a chance of cross-contamination with gluten, as I can't understand why omega 6 would cause such a strong symptom. It is possible you have an allergy to something in it?
  23. Scott Adams
    There is a ton of research that links thyroid issues, including some cases of Hashimoto's to celiac disease, which can be found here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ I would not recommend going through a gluten challenge for long enough to try to create...
  24. Scott Adams
    Others have reported this symptom, so it could definitely be related to your recent celiac diagnosis: https://www.celiac.com/search/?q="stomach inflammation"&updated_after=any&sortby=relevancy Hopefully it will clear up on a gluten-free diet, and I guess the only way to know for sure would be to get a follow up biopsy after several months...
  25. Scott Adams
    I've not heard of this being an issue that is directly related to celiac disease, and many issues that are directly related tend to go away after a celiac goes gluten-free. How long have you been gluten-free, and how strict is your diet? I ask just in case there is some connection, but again, I do know there is a heart/celiac connection: <___base_url__...
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