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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I don't think that is mild either, and it can take a year or more on a 100% gluten-free diet to fully heal. I don't think the Marsh scale was in use when I was diagnosed, but I do know that my gastro said that the damage was visible to the naked eye. I believe it took me closer to 2 years to feel like I had recovered, but I know that I had issues avoiding...
  2. Scott Adams
    From everything I've read, dapsone will work, however it does carry with it some pretty bad side effects. One of our site's authors is an RN, has DH, and has written extensively about dapsone, so you may want to go through some of her content using this search: https://www.celiac.com/search/?&q=dapsone&author=Yvonne (Vonnie) Mostat%2C RN&...
  3. Scott Adams
    SIBO is a common issue, and in your case could definitely be related to your recent celiac disease diagnosis. Hopefully your strict gluten-free diet will help with both your ferritin and SIBO issues, but this can take time. The average time to recover after a CD diagnosis is around two years. It is possible that your SIBO issue may need to be treated with...
  4. Scott Adams
    This is an interesting sensitivity, and makes me wonder if there is a chance of cross-contamination with gluten, as I can't understand why omega 6 would cause such a strong symptom. It is possible you have an allergy to something in it?
  5. Scott Adams
    There is a ton of research that links thyroid issues, including some cases of Hashimoto's to celiac disease, which can be found here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ I would not recommend going through a gluten challenge for long enough to try to create...
  6. Scott Adams
    Others have reported this symptom, so it could definitely be related to your recent celiac diagnosis: https://www.celiac.com/search/?q="stomach inflammation"&updated_after=any&sortby=relevancy Hopefully it will clear up on a gluten-free diet, and I guess the only way to know for sure would be to get a follow up biopsy after several months...
  7. Scott Adams
    I've not heard of this being an issue that is directly related to celiac disease, and many issues that are directly related tend to go away after a celiac goes gluten-free. How long have you been gluten-free, and how strict is your diet? I ask just in case there is some connection, but again, I do know there is a heart/celiac connection: <___base_url__...
  8. Scott Adams
    In Europe they are now diagnosing celiac disease in cases where the antibody levels are 10x the level that indicates celiac disease. So this no-biopsy approach of now becoming more common.
  9. Scott Adams
    Given your family connection with celiac disease, and the fact that your dad has it, this gives you ~44% chance of also having it. I think you're on the right track, and would ask your dermatologist to do a skin biopsy that looks for DH.
  10. Scott Adams
    I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me. The good news in my case is that this did go away after...
  11. Scott Adams
    Yes, your positive Deamidated Gliadin Abs, IgG test means you likely have celiac disease, and a biopsy would confirm this. If the biopsy were negative, then it would seem that NCGS might be the possible diagnosis. There is currently no test for NCGS, and ~10x more people have it than celiac disease, but the treatment is the same--a gluten-free diet. Some...
  12. Scott Adams
    I just want to point out that in Europe if your ttg score is 10x or higher than the cut off for celiac disease, then no biopsy is needed to make the diagnosis. Yours appears to be well over 10x.
  13. Scott Adams
    I do believe this puts you in that grey area, and your doctor is correct here. You should avoid all gluten because this did help with your symptoms.
  14. Scott Adams
    Please feel free to share your ttg test results when you get them. Also, keep in mind that there are two conditions: 1) Celiac disease, which about 1% of people have; 2) Non-celiac gluten sensitivity, which ~10% of people have. Currently there is not test for non-celiac gluten sensitivity, so if your tests are negative, you may still want to try a gluten...
  15. Scott Adams
    Welcome to the forum! Also, a mild positive is still a positive blood test result that indicates that you may indeed have celiac disease, so keep eating gluten daily until all testing is completed, as your doctor may want you to do an endoscopy to follow up this result. Hopefully you were eating gluten daily in the 6-8 weeks leading up to your tests, otherwise...
  16. Scott Adams
    View full article
  17. Scott Adams
    More information about "The Great McDonald’s Fiasco"
    Celiac.com 11/12/2021 - Is it possible for a large, multi-billion dollar, multi-national corporation like McDonald’s to make an honest mistake—even if that mistake benefits them directly by increasing their sales and bottom line? For...
  18. Scott Adams
    According to this site: https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=03c696e9-0e6b-4e5c-be0a-41416f8019be it looks gluten-free and the inactive ingredients are: GELATIN (UNII: 2G86QN327L) MANNITOL (UNII: 3OWL53L36A)
  19. Scott Adams
    Also, this category contains articles that summarize recent research on liver issues and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/ and we just published this one on Monday:
  20. Scott Adams
    Yes, technically you need to eat around 2 slices of bread per day for 6-8 weeks in order for the blood test results to be accurate. Given the one positive result it's likely a good idea to do this challenge to see what the levels are after you've been eating gluten for the proper time period.
  21. Scott Adams
    Almond butter might work too, but there are gluten-free protein powder, but high carbs are generally best for gaining weight. I think the important thing for you is what @RMJ mentioned, perhaps your diet hasn't been perfect, and you're still getting small amounts of gluten often enough that your intestines haven't healed. Look again at your diet, and if you...
  22. Scott Adams
    I go with GliadinX which is a sponsor here, and it contains AN-PEP enzymes which have been shown to break down gluten in the stomach before it reaches the intestines. This article may also be helpful:
  23. Scott Adams
    Welcome to the forum! The tissue transglutaminase test is considered the most accurate one for adults, but really, each test that was done, including the Deamidated Gliadin tests are very accurate as well. Were you eating gluten daily before the tests? Also, did your doctor schedule an endoscopy based on your positive result? This article is a bit...
  24. Scott Adams
    We have tons of bread recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-bread-recipes/ but this one is probably the most extensive, "scientifically tested," and healthy ones:
  25. Scott Adams
    I did not have anemia, but this is definitely one of the more common symptoms, and is one of the primary ways that people who don't know that they have celiac disease find out that they have it.
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