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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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So confused by results
Scott Adams replied to New2celiac2022's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Were you eating the equivalent of 2 slices of wheat bread daily for at least 6 weeks before this test? -
Exercising days, weight gain days?
Scott Adams replied to Felipe's topic in Related Issues & Disorders
I will admit that I'm not a fitness expert, but my understanding is that muscle mass is heavier than fat, so if you are converting fat into muscle, which is possible in your case, then it could account for the weight gain. Is your body getting leaner with all the fitness training? If so, I would not worry about the weight gain too much. -
I'm not sure what is available where you live, but here in California we can buy good frozen gluten-free pizzas at Costco, Safeway, and other major stores. Pre-packaged gluten-free pizzas and crusts should be safe, so you don't need to fully give up your pizza! I'm a thin crust fan, and use gluten-free "flour-style" tortillas from Trader Joe's to make personal...
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The glue foods theory, and Celiacs in Dogs
Scott Adams replied to Anniehall's topic in Related Issues & Disorders
I think the best way to look at this is to look at animal digestive systems which have evolved to consume grains and grasses. They are entirely different than the human digestive system, and humans only began eating grains 12,000 - 20,000 years ago, which is a flash in the pan in terms of evolution. I believe gluten is one of the hardest things for all humans... -
The glue foods theory, and Celiacs in Dogs
Scott Adams replied to Anniehall's topic in Related Issues & Disorders
You might be interested in this veterinarian who has contributed many articles to Celiac.com: https://www.celiac.com/profile/102790-john-b-symes-dvm/content/ and specifically these two articles: -
Do You Have Similar Symptoms?
Scott Adams replied to Ucat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
On some level it may just make sense to stay gluten-free, and if your symptoms mostly or completely go away, it means that you're on the right track...no extra money spent beyond the extra cost of gluten-free foods. If you still have some symptoms you could then keep a food diary and see if you find another intolerance, for example oats, cow's milk, corn... -
I believe you meant to say here that gluten was boiling at your sister's house, and gluten items were being cooked in the microwave at work.
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Welcome to the forum! I just want to mention that for blood tests the Mayo clinic recommends eating 2 slices of wheat bread for 6-8 weeks, otherwise the blood test results may be false negative. Since you are unable to manage doing this for even 4 weeks due to severe symptoms, I think it is safe to assume that you have either undiagnosed celiac disease, or...
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Do You Have Similar Symptoms?
Scott Adams replied to Ucat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let us know what you find out, especially regarding the total IGA. -
If you have been gluten-free for this long, and are still having tremors, be sure to consult with your doctor about them. They could be unrelated to celiac disease, and could also some other autoimmune disease. Also, are you taking a good multivitamin & mineral supplement? Many celiacs get gluten ataxia and have brain and nervous system issues, and...
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Confused, Lymph Nodes and Appt
Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think pursuing more tests should only be done if you believe you cannot stay on the gluten-free diet for life without being sure that you have celiac disease. There are downsides to a formal diagnosis, like more expensive and harder to get private health and/or life insurance policies. The upsides are that you may get access to follow up care, like blood... -
Confused, Lymph Nodes and Appt
Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know this study focuses on children, but I suspect we'll see more studies like this that may also link celiac disease to chronically "weak positive" tTG IgA results in adults: -
Confused, Lymph Nodes and Appt
Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think I recall from your other posts that you've been trying to figure this out for a while now, and I believe you've had positive blood tests before, but please correct me if that isn't correct. Also, can you share your blood test results, and the reference ranges for a positive result? Overall it seems to me like you already have your answer, and... -
Is it too late? Celiac/coeliac UK
Scott Adams replied to harry17's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, and I'm sorry to hear about how badly your doing right now, and how unconcerned your doctor(s) seem to be (it might be time to get a new doctor!). One of our moderators is @cristiana who is from the UK, and hopefully she can chime in here with more info about how you can break the medical gridlock you are facing. Your story... -
Welcome to the forum @RJK. You mention a couple of times in your post your symptoms could be due to "50 years of undiagnosed Celiac," and it made me wonder if you are now on a gluten-free diet, and are self-diagnosed with celiac disease? Many of the symptoms you've suffered from could certainly be due to undiagnosed celiac disease and/or non-celiac...
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Anaphylaxis due to celiac disease?
Scott Adams replied to Tash18's topic in Food Intolerance & Leaky Gut
ok I read the post, it’s not a peer-reviewed study, but does say the following, so it doesn’t really support the concept of cross-reactivity which is too often thrown around: Observing the “p-values” reported in Table 2: Using the p ≤ 0.05 threshold, we can reject the null hypothesis for α-gliadin (outlined in blue, positive control). If we’re... -
Anaphylaxis due to celiac disease?
Scott Adams replied to Tash18's topic in Food Intolerance & Leaky Gut
@Anniehall Do you realize that the article you pointed me to is critical of the existence of "cross reactive foods?" https://paleofoundation.com/19-gluten-cross-reactive-foods/ This article mentions cross reactivity, but it does not in any way explain it, or provide any evidence to support it: https://www.ncbi.nlm.nih.gov/pmc... -
They are a sponsor here, but I've used these flours for years and they are really good: https://www.glutenfree-supermarket.com/
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Struggling with whether to have kids
Scott Adams replied to Faberferrum's topic in Parents, Friends and Loved Ones of Celiacs
That's great news! Congratulations! -
gluten dectection dogs Gluten Detection Dogs
Scott Adams replied to Tammy Aiken's topic in Coping with Celiac Disease
I believe that the people who might be able to help answer this would be those whose business is raising such dogs. Perhaps contact this company to see if they have any ideas for funding: https://www.armedk9.com Ultimately though your best bet is to avoid eating outside your home if possible (if you do eat out consider AN-PEP enzymes), and learn to... -
Anaphylaxis due to celiac disease?
Scott Adams replied to Tash18's topic in Food Intolerance & Leaky Gut
As far as I know there is no scientific basis behind the concept of "cross-reactive," but if you have any studies on this idea feel free to share them. I realize that the term gets thrown around a lot, but I think the proper way to interpret what is meant by it is simply that celiacs often have additional similar food intolerances, especially right after...