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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    Unfortunately there is no test yet for non-celiac gluten sensitivity, as @trents mentioned, but ~10x more people have this than do celiac disease. A gluten-free diet is recommended for either condition.
  2. Scott Adams
    Yes, the spices in the study were tested for gluten.
  3. Scott Adams
    We've summarized all the research so far on covid-19 and celiac disease, which can be found using the link below, but so far I've not seen any direct studies that link the vaccine to getting celiac disease. https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles
  4. Scott Adams
    This is a bit of a trick question. If your outbreak now is DH, then you likely have been consuming tiny amounts of gluten--for example, do you eat in restaurants? If so, you are likely getting trace amounts of gluten in your diet. Normally you need to be eating some gluten to trigger the DH rash, however, iodine, at least in some people with DH...
  5. Scott Adams
    If you got an official DH diagnosis then your doctor's assessment that you have celiac disease is likely accurate. Given everything I know about how miserable DH symptoms are, I would not recommend that you go on a gluten challenge to get a formal diagnosis unless you feel that you can't maintain a gluten-free diet without one. The reason that you might...
  6. Scott Adams
    Welcome to the forum! The range before doing a blood test for celiac disease is to eat gluten, around 2 slices of wheat breads worth per day, for 6-8 weeks, so 6 weeks may be enough, depending on how much gluten you've been eating. Keep in mind that not everyone ends up with a positive biopsy, or blood test, and that any positive test whether blood or...
  7. Scott Adams
    I don't recall seeing TMJ/TMD linked directly to celiac disease in research studies, however, my mother suffered from severe TMJ for decades. She also found out shortly after I was diagnosed that she also has celiac disease. Her TMJ symptoms improved greatly after a few years on a gluten-free diet, but have not completely gone away.
  8. Scott Adams
    I am not sure this is correct, and just want to share this article:
  9. Scott Adams
    Welcome to the forum, and feel free to share your blood test results here, along with the reference ranges for each test. I mention this because it is becoming more common to diagnose celiac disease now with blood tests alone, and this article covers this in more detail:
  10. Scott Adams
    I know that Beyond Meat is gluten-free, and the main ingredients is pea protein, which is a legume. The only allergen warning I see on their sits is this one, is it possible you have an allergy? https://www.beyondmeat.com/en-US/about/our-ingredients/
  11. Scott Adams
    Hello @Kmb172, you should be able to search this here and find the "Inactive Ingredients": https://dailymed.nlm.nih.gov/dailymed/
  12. Scott Adams
    This article should be helpful, and you may want to look into a good multi-vitamin and mineral complex that covers all the B vitamin, and Vitamin D.
  13. Scott Adams
    True, but the good thing is that most of the risks associated with celiac disease dimmish, or fully go away, once you go gluten-free. That, by the way, is a list of categories that contain research articles that we've summarized over many years that link the conditions to CD. Just click a category and you can read the articles.
  14. Scott Adams
    Dr. Sarah needs our help! The Paleo Mom website has been caught up in a ransomware attack on someone else. Until the target of this cyber attack resolves the situation, Dr. Sarah's site can not be restored. It is a situation completely out of Dr. Sarah's control, and she now has to face the daunting task of rebuilding her site from the ground up. So many...
  15. Scott Adams
    This points at celiac disease: BORDERLINE MILDLY INCREASED INTRAEPITHELIAL LYMPHOCYTES (25 PER 100 ENTEROCYTES). I'm not surprised that they didn't do the biopsy correctly, as we see this complaint often here.
  16. Scott Adams
    Celiac disease is an autoimmune disease, rather than an allergy, and certainly a food or other allergy is capable of killing someone, and this is typically called anaphylaxis. I'm not sure about the exact process that leads to death in these cases, but suspect it has to do more with suffocation due to swelling in the throat, but a heart attack may also be...
  17. Scott Adams
    I think your doctor made a good call to do another celiac disease blood panel, let us know how it turns out. Were you eating gluten, preferably 2 slices of wheat bread's worth, daily for 6-8 weeks before your blood test? This is the normal protocol, otherwise your antibody levels may be lower, or you may even get false negative results.
  18. Scott Adams
    I'm in the camp of there are no "weak positives." A positive test for celiac disease, especially if you weren't eating 2 slices of wheat bread daily during the 6-8 weeks leading up to the blood test, yet it's still positive, is a strong indicator of celiac disease. A gluten-free diet would be your safest bet, and if your symptoms go away on it this should...
  19. Scott Adams
    Welcome to the forum @nimzabo! I think the first thing to eliminate would be any chance of you having a real heart issue. I know it's scary, but I think it would be wise for you to go through with the monitoring test you declined. It is possible that your issues could be caused by something like undiagnosed celiac disease, but it's always best to get...
  20. Scott Adams
    Feel free to share them here. I am surprised that the wine industry hasn't jumped at the change to put "gluten-free" on their wines to target our now large, niche audience. Even it they should naturally be gluten-free, it doesn't take that much effort of cost to run some regular batch testing and get certified gluten-free, so more wineries should do this...
  21. Scott Adams
    Great timing, because I just received this email from my daughter's high school. You should reach out to this program. Also, regarding the International Bachelor Program (IB), not too many high schools offer this, but a former neighbor of mine's daughter did this at Montgomery High School in Santa Rosa, California.
  22. Scott Adams
    I suffered from vertigo, which was so bad around the time of my diagnosis that I went to the emergency room a couple of times thinking that I was having a stroke or heart attack. I also had panic attacks, and looking back, the vertigo symptoms are what seemed to set off the panic attacks. The good news, in my case at least, was that those symptoms went...
  23. Scott Adams
    Welcome to the forum! Can I ask where you are getting this stool test done? I know that Dr. Kenneth Fine pioneered this test, so hopefully it's with his lab, but I can say that most of the people who participate in this forum do the blood tests, as they are considered the standard. Do you have the reference ranges for the tests? We would need to...
  24. Scott Adams
    I am pretty sure that the dpg-igg test is fairly specific for gluten, but it is the best test to use in those 7 years old or younger: https://pubmed.ncbi.nlm.nih.gov/22197936/ It's possible that it is a false positive test, but unlikely I think.
  25. Scott Adams
    If you've noticed a correlation with your symptoms when you eat large amounts of gluten, then at the least you likely have non-celiac gluten sensitivity, and unfortunately there is no test for this, although it is ~10x more common than celiac disease. If you don't want to go through the trouble of getting re-tested for celiac disease, which would mean...
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