Jump to content

Scott Adams

Admin
 View Profile  See their activity

  • Posts

    28,300

  • Joined

  • Last visited

  • Days Won

    615

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    I don't recall ever "distrusting" any cup of coffee...😉 I am not saying that cross-contamination is impossible, but very unlikely, especially for the big coffee companies, as the machinery, processing, where it is grown, etc., have little to do with wheat or wheat products. I prefer Peet's which I get a Costco. For those who want to be sure about no...
  2. Scott Adams
    This article may be helpful:
  3. Scott Adams
    Given your symptoms, family history, and incredibly high ttg score, it’s best to go gluten-free. They are now diagnosing celiac disease with blood tests alone if your score is 5-10x the leve for celiac disease:
  4. Scott Adams
    I realize that you have this belief, but so far I just don’t see much science to support the very broad PH level claims that you often make here. Please see: https://health.ucsd.edu/news/features/Pages/2019-05-06-pHear-pHactor-debunking-the-alkaline-diet.aspx https://www.healthline.com/nutrition/the-alkaline-diet-myth https://www.chatelaine.c...
  5. Scott Adams
    Definitely, even trace amounts of gluten eaten regularly can allow the autoimmune reaction that happens in celiacs to continue, and when that happens any and all of the many disorders, symptoms and risks associated with celiac disease will also not go away.
  6. Scott Adams
    I know that there is something like a fad diet now that is called the "low histamine" diet, but again, you are throwing around too many "what ifs" here. I could make the exact same statement you are making but turn them around and say what if the reason that so many celiacs are not getting better is because they don't have enough enough acid in their stomachs...
  7. Scott Adams
    Welcome! Keep in mind that whey is dairy, and it doesn't contain gluten, so this would not indicate whether or not you are still reacting to gluten. There is a published case in which someone with celiac disease who received a bone marrow transplant for leukemia apparently no longer had celiac disease, however, in the study he was only followed for ...
  8. Scott Adams
    In summary, AN-PEP has been shown in published scientific studies to break down anywhere between 1/8 to 1/3 of a slice of wheat bread! If that is not the most amazing development that has come along in the treatment of celiac disease and/or gluten sensitivity in the past 25 years, what is? How much cross contamination would you likely get in a restaurant...
  9. Scott Adams
    Doctors are now diagnosing celiac disease with blood tests only when someone is 5-10x higher than the cut off range for celiac disease. Your range is 6.5 times higher, so I would assume you have celiac disease. More about this is in this article:
  10. Scott Adams
    Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. Free free to share your blood test results if you have those, along with the reference ranges. I assume you have symptoms, which likely led to you...
  11. Scott Adams
    For some reason many doctors don't seem to know that celiac disease, in most cases, goes into "remission" when on a gluten-free diet, because the offending gliadin has is no longer present, so the runaway autoimmune reaction ceases. Getting retested for celiac disease, whether a blood test or an endoscopy, would require a gluten challenge, where you'd need...
  12. Scott Adams
    A biopsy is no longer required to diagnose celiac disease, and if you look at the articles linked in this article to the studies regarding diagnosing CD with only blood tests, you will see that it is now becoming much more common when TTG levels are 5x or higher than the marker for CD. Feel free to share your blood test results if you like:
  13. Scott Adams
    Hair loss and thyroid issues have both been linked as symptoms of untreated celiac disease, and for hair loss, here are some articles that discuss it: https://www.celiac.com/search/?&q=Alopecia&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy
  14. Scott Adams
    What kind of "celiac support group" would require this for participation? It does not seem very supportive, but more exclusionary based on an increasingly archaic viewpoint on the traditional way it has been diagnosed. There is a section in this article with links to the latest studies which support the current and future way it will be diagnosed, and...
  15. Scott Adams
    I believe the H. pylori diagnosis in many celiac patients is caused by it's ability to thrive within a damaged gut.
  16. Scott Adams
    I mentioned that around the time of my celiac diagnosis I was also diagnosed with H. pylori and, once again, was given a dose of antibiotics. In fact, I was given several doses of antibiotics during the years leading up to my diagnosis, and each time I had some relief of my celiac symptoms, however, I believe that this did not help things, and ultimately...
  17. Scott Adams
    Yes, welcome! On the positive side, your celiac disease diagnosis would explain many of the symptoms and issues you've been having, and rather than just using prescriptions or over the counter drugs to treat your symptoms, a 100% gluten-free diet will likely provide actual relief. When the time comes, this article will be helpful: Also, you...
  18. Scott Adams
    I also want to add that around 10x more people have non-celiac gluten sensitivity, and there currently isn't a test for it. Since you have unexplained symptoms, and one positive blood test for celiac disease, you may still want to try a gluten-free diet for a few months to see if they go away. Just be sure that your doctor doesn't have any future tests planned...
  19. Scott Adams
    Given your positive blood tests (feel free to share those results if you like), and apparently positive biopsies for celiac disease, I would say that it is very likely you have celiac disease. I'm not sure why the doctor hasn't formally diagnosed you, but you should definitely ask them about that. This category has our articles on liver issues and celiac...
  20. Scott Adams
    I eat only whole grain gluten-free breads, usually from Little Northern Bakehouse, Franz Gluten Free, Canyon Bakehouse, Grindstone Bakery, or Food for Life. I also eat several dates each day, and plenty of vegetables and fruit. For Pasta I usually use Barilla, but am now trying Bentilia due to its high fiber, high protein, and amazing nutritionals.
  21. Scott Adams
    @docaz may have a better answer to this question, but in my case I take 2 after the first few bites of any restaurant of outside food that I eat, and this has worked for me over multiple years. I have also taken up to 4 at a time once after learning that a pate appetizer that I ate at a friend's house had gluten in it (rather than actually checking its ingredients...
  22. Scott Adams
    Watery blisters could be DH, so I still think that it's important to review your diet again more closely. Since you are in the land of free medical care 😀, it might make sense to see if you can have a dermatologist have a look. They can biopsy them for DH, or tell you if they might be something else.
  23. Scott Adams
    Welcome to the forum! This article may be helpful: Also, this is a very old list, but some of these groups may still be active...hard to say though due to the pandemic:
  24. Scott Adams
    I agree with @RMJ, and I think the important thing about using AN-PEP is to understand that it isn't a replacement for being careful, nor is it designed to allow you to cheat on your diet. I had already decided that I wasn't going to stop doing something that I loved, which is travelling and eating outside my home--usually at restaurants or friend's houses...
  25. Scott Adams
    If the hives are caused by an allergy, antihistamines will usually make their size, redness and itchiness dissipate within an hour or two.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.