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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    This category has many articles on the this: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ and brain fog is a symptom that many celiacs have...got to avoid gluten!
  2. Scott Adams
    The other thing to keep in mind is that you can take 1-5 pills, or more, with no real side effects, other than more AN-PEP will break down more gliadin. Again, this does not in any way mean that you should use them to knowingly eat gluten, but the sad reality is that most restaurant food, even ones with gluten-free menus, has some contamination according...
  3. Scott Adams
    Yes, the study looks for a link between gluten consumption in celiacs and those with NCGS to see if it alters their gut microbiome, which in the short term it doesn't in either group.
  4. Scott Adams
    I've not heard of volvulus being linked to celiac disease, but it would not surprise me at all if a study were to come out that showed a link. I agree...get tested for celiac disease before starting a gluten-free diet. More on volvulus: https://www.medicalnewstoday.com/articles/321479 PS - others have posted here before about it: https://www...
  5. Scott Adams
    Please share any studies that show that it does not work. There have been multiple studies done on AN-PEP at this point, and all are linked to from their site: https://www.gliadinx.com/publications I've gone through each and they do support it breaking small amounts of gliadin down in the stomach.
  6. Scott Adams
    You may want to browse through the other posts and articles that mention this symptom, as others have written about it: https://www.celiac.com/search/?q=nystagmus&quick=1
  7. Scott Adams
    I've not heard of this specific symptom being related to celiac disease, but CD can attack the brain and nervous system in some people. You didn't mention if you have celiac disease, are on a 100% gluten-free diet, etc., but please let us know.
  8. Scott Adams
    In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high. If you're sure your diet is 100% gluten-free (don't eat in restaurants!), you may want to try casein/dairy-free as well. I already shared this with you but here it is again:
  9. Scott Adams
    From the Experts: Join Our Virtual Monthly Meeting on "All Things Celiac" "Elite and Everyday Athletes with Celiac Disease: Eating for Fitness at All Ages" Join the National Celiac Association (NCA) and the Harvard Medical School...
  10. Scott Adams
    @Sabaarya posted this.
  11. Scott Adams
    Marsh 3a would be considered mild damage: https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.
  12. Scott Adams
    Below is more info on the gluten challenge, in case you decide to do that. I think it would be perfectly fair to call out your doctor on this and have them cover any re-testing costs, as they did give you incorrect info for your initial testing. But, if you already know you feel better without gluten, the point may be moot...why not just stay gluten-free...
  13. Scott Adams
    Creatine is an amino acid that should be gluten-free, but to be sure you may want to look for "gluten-free" on the packaging. Also, this older thread may be helpful:
  14. Scott Adams
    It sounds great, but if you plan to be a regular it's definitely worth having a conversation with the owner to get a feel for how serious they are about keeping all gluten out of their products. Ask them if they use certified gluten-free flours and other products in their baked goods, and train all staff to not bring in any gluten to work. It sounds...
  15. Scott Adams
    We've had other report very similar issues with trying to get their tTg levels to the normal range. The first thing we usually recommend is re-checking your diet for hidden gluten (see below), eliminating oat (even gluten-free oats), and milk/dairy:
  16. Scott Adams
    Can I assume that your diet is 100% gluten-free, and you are not getting contamination through meds, supplements, shared kitchen pots, eating out, etc? If so, the average time to recovery is 2 years. I had pretty severe mucosal damage and struggled for months not fully understanding sourced of hidden gluten, but after around the 2 year mark I began gaining...
  17. Scott Adams
    You are correct about being careful with psyllium. I ordered some psyllium powder from Amazon that did NOT say "gluten-free" on its label but also did not say that it may contain wheat, and it tested positive for gluten with a Nima sensor. I gave it away. Technically speaking, if it has "gluten-free" on the label it should be safe and below 20ppm, but...
  18. Scott Adams
    The average time to recovery is 2 years, but this can vary greatly from person to person, and depends on how much intestinal damage you had, weather or not you're taking vitamin & mineral supplements, are 100% gluten-free, etc. If you eat out at restaurant you're probably getting some trace amounts of gluten in your diet.
  19. Scott Adams
    In some celiacs gluten attacks the brain and nervous system, and the articles in the category below are about this. The good news is that in those who stay 100% gluten-free, the damage done can heal, but I agree that most celiacs need to take vitamin & mineral supplements to recover. /celiac-disease/celiac-disease-amp-related-diseases-and-disorders...
  20. Scott Adams
    I think it would not be very likely. Of course it may be possible if it were dropped directly on a piece of bread or something like that exactly on the spot where you drink out of the can. Something that may be more likely is that you could have gotten gluten if you eat out at a restaurant, or at a friend's or relative's house. White Claw in the USA...
  21. Scott Adams
    Welcome to the forum! It sounds like you've been gluten-free for a while due to real issues you have when eating it, which go away when you don't eat it. Given that you've already linked your symptoms with gluten, perhaps you don't need to go through what you describe as "heel on wheels" to try to get a formal diagnosis? You may find this article...
  22. Scott Adams
    The recommendation is just 2 slices worth of wheat bread daily for 6-8 weeks before a blood test, and 2 weeks before a biopsy.
  23. Scott Adams
    To me the fact that you had a positive tTG IgA twice before: tTG IgA : 16 U/mL Ref Range: 0 - 15 tTG IgA : 24 U/mL Ref Range: 0 - 15 tells me that you likely have celiac disease, no matter what the biopsy results show. If I were you I'd try a gluten-free diet and see if you get symptom relief. If so this would be further confirmation...
  24. Scott Adams
    Celiac.com 05/09/2022 - Natural Organics, Inc., is voluntarily recalling four lots of NaturesPlus Keto Living Sugar Control Capsules 90 count, because it was found to contain gluten. People who have allergies to wheat or gluten run the risk of serious or life-threatening allergic reactions if they consume these products. Individuals with Gluten intolerance...
  25. Scott Adams
    If you look at Native Americans they got wheat in their diets only in the last ~500 years or less...probably closer to the last 100-200 years. I've not seen many good studies done on celiac disease prevalence among Native Americans, but going from memory do recall one study that indicated that up to 6% of them could have celiac disease. More research needs...
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