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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    Canker sores are one of the most common symptoms of undiagnosed celiac disease, and I just searched this site for "swollen gums," and others have reported this as well: https://www.celiac.com/search/?q="swollen gums"&quick=1&updated_after=any&sortby=relevancy&search_and_or=and
  2. Scott Adams
    Others have definitely reported various changes like constipation after going gluten-free. You might try eating prunes to see if that helps. Casein/cow's milk intolerance is very common in those who are diagnosed with celiac disease, as their villi get damaged so they cannot properly digest the milk protein.
  3. Scott Adams
    I think the chance of cross-contamination is pretty small, especially if you take the smallest sip possible (does it matter how much you actually drink? I doubt it, as long as you get some amount of it). Given how sensitive you are, it is still a very small risk, so you'll have to be the one to decide whether or not to ask for a separate cup or not...
  4. Scott Adams
    This was definitely true in my case. At the time of my diagnosis I had ~5-6 additional food intolerance issues, and nearly all of them went away within 2 years of starting a gluten-free diet. I believe that this issue is also a big cause of why it is so hard for those with celiac disease to get diagnosed, as they are constantly being misled into believing...
  5. Scott Adams
    Unfortunately there is no test yet for non-celiac gluten sensitivity, as @trents mentioned, but ~10x more people have this than do celiac disease. A gluten-free diet is recommended for either condition.
  6. Scott Adams
    Yes, the spices in the study were tested for gluten.
  7. Scott Adams
    We've summarized all the research so far on covid-19 and celiac disease, which can be found using the link below, but so far I've not seen any direct studies that link the vaccine to getting celiac disease. https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles
  8. Scott Adams
    This is a bit of a trick question. If your outbreak now is DH, then you likely have been consuming tiny amounts of gluten--for example, do you eat in restaurants? If so, you are likely getting trace amounts of gluten in your diet. Normally you need to be eating some gluten to trigger the DH rash, however, iodine, at least in some people with DH...
  9. Scott Adams
    If you got an official DH diagnosis then your doctor's assessment that you have celiac disease is likely accurate. Given everything I know about how miserable DH symptoms are, I would not recommend that you go on a gluten challenge to get a formal diagnosis unless you feel that you can't maintain a gluten-free diet without one. The reason that you might...
  10. Scott Adams
    Welcome to the forum! The range before doing a blood test for celiac disease is to eat gluten, around 2 slices of wheat breads worth per day, for 6-8 weeks, so 6 weeks may be enough, depending on how much gluten you've been eating. Keep in mind that not everyone ends up with a positive biopsy, or blood test, and that any positive test whether blood or...
  11. Scott Adams
    I don't recall seeing TMJ/TMD linked directly to celiac disease in research studies, however, my mother suffered from severe TMJ for decades. She also found out shortly after I was diagnosed that she also has celiac disease. Her TMJ symptoms improved greatly after a few years on a gluten-free diet, but have not completely gone away.
  12. Scott Adams
    I am not sure this is correct, and just want to share this article:
  13. Scott Adams
    Welcome to the forum, and feel free to share your blood test results here, along with the reference ranges for each test. I mention this because it is becoming more common to diagnose celiac disease now with blood tests alone, and this article covers this in more detail:
  14. Scott Adams
    I know that Beyond Meat is gluten-free, and the main ingredients is pea protein, which is a legume. The only allergen warning I see on their sits is this one, is it possible you have an allergy? https://www.beyondmeat.com/en-US/about/our-ingredients/
  15. Scott Adams
    Hello @Kmb172, you should be able to search this here and find the "Inactive Ingredients": https://dailymed.nlm.nih.gov/dailymed/
  16. Scott Adams
    This article should be helpful, and you may want to look into a good multi-vitamin and mineral complex that covers all the B vitamin, and Vitamin D.
  17. Scott Adams
    True, but the good thing is that most of the risks associated with celiac disease dimmish, or fully go away, once you go gluten-free. That, by the way, is a list of categories that contain research articles that we've summarized over many years that link the conditions to CD. Just click a category and you can read the articles.
  18. Scott Adams
    Dr. Sarah needs our help! The Paleo Mom website has been caught up in a ransomware attack on someone else. Until the target of this cyber attack resolves the situation, Dr. Sarah's site can not be restored. It is a situation completely out of Dr. Sarah's control, and she now has to face the daunting task of rebuilding her site from the ground up. So many...
  19. Scott Adams
    This points at celiac disease: BORDERLINE MILDLY INCREASED INTRAEPITHELIAL LYMPHOCYTES (25 PER 100 ENTEROCYTES). I'm not surprised that they didn't do the biopsy correctly, as we see this complaint often here.
  20. Scott Adams
    Celiac disease is an autoimmune disease, rather than an allergy, and certainly a food or other allergy is capable of killing someone, and this is typically called anaphylaxis. I'm not sure about the exact process that leads to death in these cases, but suspect it has to do more with suffocation due to swelling in the throat, but a heart attack may also be...
  21. Scott Adams
    I think your doctor made a good call to do another celiac disease blood panel, let us know how it turns out. Were you eating gluten, preferably 2 slices of wheat bread's worth, daily for 6-8 weeks before your blood test? This is the normal protocol, otherwise your antibody levels may be lower, or you may even get false negative results.
  22. Scott Adams
    I'm in the camp of there are no "weak positives." A positive test for celiac disease, especially if you weren't eating 2 slices of wheat bread daily during the 6-8 weeks leading up to the blood test, yet it's still positive, is a strong indicator of celiac disease. A gluten-free diet would be your safest bet, and if your symptoms go away on it this should...
  23. Scott Adams
    Welcome to the forum @nimzabo! I think the first thing to eliminate would be any chance of you having a real heart issue. I know it's scary, but I think it would be wise for you to go through with the monitoring test you declined. It is possible that your issues could be caused by something like undiagnosed celiac disease, but it's always best to get...
  24. Scott Adams
    Feel free to share them here. I am surprised that the wine industry hasn't jumped at the change to put "gluten-free" on their wines to target our now large, niche audience. Even it they should naturally be gluten-free, it doesn't take that much effort of cost to run some regular batch testing and get certified gluten-free, so more wineries should do this...
  25. Scott Adams
    Great timing, because I just received this email from my daughter's high school. You should reach out to this program. Also, regarding the International Bachelor Program (IB), not too many high schools offer this, but a former neighbor of mine's daughter did this at Montgomery High School in Santa Rosa, California.
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