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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Labs- is an EGD necessary?
Scott Adams replied to Kara H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is a site where you can search medications and see their ingredients...just look for the inactive ingredients: https://dailymed.nlm.nih.gov/dailymed/ -
Welcome to the forum. It is definitely possible that your niece and her parents are overreacting, but I think it's important for you to try to be supportive even if that is the case. There are many examples here of totally non-supportive family members who simply dismiss such things as "crazy" or "ridiculous," and we usually see this ending badly, as...
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Gluten in wood
Scott Adams replied to Melscho's topic in Gluten-Free Foods, Products, Shopping & Medications
This is pure speculation, but I am not sure about the glues used in various plywood products, and I suppose it could be possible that some of them may contain gluten. I have heard of certain types of dry wall products that contain gluten, but I've not seen this verified by any testing. -
Blood tests
Scott Adams replied to BethanyE.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You blood test results are so high--over 30x the high marker for tTg Ig A 181 (normal <5.4), that I'm not even sure why you would need a biopsy to confirm it. Newer research points to diagnosing celiac disease if your tTg levels are 5-10x the CD level, and you can see more info about this, including links to the research, in this article: -
THOSE SNEAKY GLUTENN INVADERS
Scott Adams replied to Yvonne (Vonnie) Mostat, RN's topic in Coping with Celiac Disease
Great info...I just wanted to clarify that in the USA modified food starch is considered gluten-free: -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I made a small correct to that article to be more clear. The last step in the protocol should have said that if no IGA is detected, not that low IGA. I also added a reference: https://www.mayocliniclabs.com/test-catalog/Overview/89201 -
Top Brands of Gluten-Free Cold Coffee Drinks
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
Product made in the USA that use natural flavors are gluten-free: -
I feel so bad
Scott Adams replied to Sergey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, and I'm sorry to hear of your health issues. You mention being gluten-free, but it's not clear if you were ever tested for celiac disease, or if you are self-diagnosed and have gluten sensitivity. Knowing whether or not you have celiac disease or non-celiac gluten sensitivity may affect the replies you get here, so please let us... -
Yes, chips like Pringles may contain wheat starch.
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Scott Adams' Story of His Diagnosis of Celiac Disease
Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
Locust Bean gum is naturally gluten-free, however, I was reading that there is a milling process involved when they mill the carob beans. I suppose it's possible that it could be contaminated during this process. In general look for brands that have "gluten-free" on the label, but this gum is likely safe unless the manufacturer mills other grains on their...- 173 comments
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Gluten is harmful to anyone with celiac disease or gluten sensitivity. It triggers an immune response in some people where the antibodies can cause gut, nerve, and other damage, but to say gluten isn't harmful isn't correct.
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The focus of the article was a gluten-free beer winning this prestigious contest, and not how the beer is made. Use google to search for more info about that.
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Celiac or Gluten Intolerance?
Scott Adams replied to Tyee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If the cut off for each test is >15 is positive, and you had these results: Gliadin (DPG) IgG: 65 tTg IgA: 57 tGg IgG: 28 It would seem that you are clearly in the celiac disease category. It's possible they caught this early, but there is no easy way to know this. Within this article is a section on diagnosing celiac disease... -
Waiting for possible diagnosis
Scott Adams replied to Lisacnj3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Could you please share the reference ranges for each of those tests? This would be the cut off level for positive, and each can vary depending on the lab used. With this extra information we might be able to comment on your results. -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would not refer to results that are 33% higher than the baseline as "low positive," but will admit that we often see much higher numbers here on a regular basis. She may get relief from her eczema after going gluten-free, and I hope this will be the case. -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! I agree with her doctor, and it only takes one positive test to indicate celiac disease, and her doctor may want to do a follow up endoscopy to confirm this. You should discuss this with her doctor, of course, but no matter the outcome of the endoscopy it would likely be wise for your daughter to go gluten-free, as her positive... -
Bloating and Other Issues
Scott Adams replied to Ginger38's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think the amount that would cause intestinal inflammation, damage and positive blood tests would vary a lot from person to person, but to me it seems that you may have crossed this threshold. I was hoping you'd say that what you were eating was a pill that might use wheat starch, as that would contain very small amounts of gluten, and may not trigger a... -
Triple Layer Pretzel Bars
Scott Adams replied to Yvonne (Vonnie) Mostat, RN's topic in Gluten-Free Recipes & Cooking Tips
This looks like another amazing recipe, thank you!! -
Bloating and Other Issues
Scott Adams replied to Ginger38's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long were you eating it, and are we talking about large amount of gluten each time? If you've been eating this for a couple of months you could be back to square one, which means it could take you a few months, or even longer to heal and recover. Be sure to take a good multi-vitamin like Geritol (if you can include iron in your supplements) to help... -
Durum Wheat Products- No celiac reaction??!
Scott Adams replied to jaccah's topic in Related Issues & Disorders
We've definitely had people report that certain types of wheat seem to cause less issues, or sometimes no issues, for example einkorn, semolina, etc., but celiac experts do agree that those types of wheat will still cause harm to those with celiac disease. Gut reactions in most people are not a good indicator of what damage may be caused, or what autoimmune... -
Long term use of PPI's can be a concern, as it can cause you not to break down and absorb nutrients in your food. Ironically many people who are prescribed them would actually benefit more by increasing their stomach acid using HCL supplements, but again, I do not want to second guess your doctor. I will assume that you are very careful with your gluten...
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Even if you are as sensitive as you have mentioned, I believe that since you are not eating this that information from Native would be enough for me to think that it is safe. Even if there were a tiny amount of contamination in the very first part of their manufacturing run due to something in the machinery that wasn't cleaned properly (this risk is likely...