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Scott Adams

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  1. Scott Adams
    I checked Cedars hummus on their site and it is certified gluten-free: https://www.cedarsfoods.com/Our-Foods.aspx#hommus and so are the bars: https://www.madegoodfoods.com/ I agree with @trents that it could be the legumes or some other ingredient. If the bars contain oats around 9% of celiacs can't tolerate oats.
  2. Scott Adams
    Is there any chance that trace amounts of gluten could be creeping into his diet? For example, do you eat at restaurants? If so, there is a high likelihood that he could be getting contamination. Do you feed him gluten-free oats? If so, you might want to exclude this for a few months, as around 9% of celiacs react to the protein in oats. In my mind the first...
  3. Scott Adams
    My comment stands as posted, and is not limited to only DQ2 or DQ8...it includes all known genetic markers to date, including DQ9 and several other markers. Without any of these marker celiac disease is highly unlikely, but there are likely some minor markers that are yet to be discovered. We welcome all here, including self diagnosed people with...
  4. Scott Adams
    This time frame does seem a bit long, but we have had people mentioned that their blood test results took over two weeks to come back. Here is some food for thought about this, and hopefully they did a full celiac disease blood panel so there will not be any ambiguity with her results. I will also assume from your post that she was eating gluten daily...
  5. Scott Adams
    We know that other things can cause villi blunting, this has been known for a long time, but the type of blunting caused by celiac disease is not identical to that of NSAIDs or other meds or issues that may cause blunting. But either way, we do know that people with celiac disease, and thus have the genetic markers known to be linked to celiac disease, get...
  6. Scott Adams
    Welcome to the forum, and please see this category on our site for the various summaries we've done on the research that has been published on gluten ataxia and celiac disease: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  7. Scott Adams
    I'm sorry to hear that you are suffering so badly. I do wonder in cases like yours where a formal diagnosis really matters, or just going gluten-free and getting better as soon as possible isn't a better approach, but I do not want to second guess your doctors. My only observation would be that even if your tests end up negative, I suspect you will still...
  8. Scott Adams
    Since you travel a lot and will eat gluten if you have to in those situations, perhaps consider the GliadinX AN-PEP supplement (they advertise here), as all studies I've seen on it indicate that it would be much better taking a few of them in such circumstances than not.
  9. Scott Adams
    This topic has come up a lot here, and this search may be helpful: https://www.celiac.com/search/?q=gerd&quick=1
  10. Scott Adams
    I was not able to find ingredients on their site: https://www.nestleprofessional.us/nestle-vitality/nestle-vitality-express-dispenser-vitality-juices but I can say that in the USA the ingredient natural flavors is gluten-free. More info about this is here: and this has been on our safe list for over 20 years:
  11. Scott Adams
    It's too bad your sister overlooked your gluten-free diet, and sorry to hear about your mother. I often eat something beforehand, or take an alternative snack or GF sandwich to various events just in case, as I've also had similar issues.
  12. Scott Adams
    This article may be helpful:
  13. Scott Adams
    Technically you should keep eating around 2 slices per day until you get your endoscopy done, so I would not go gluten-free just yet. If there is any way to postpone the gall bladder surgery, only if the doctor agrees of course, perhaps you should do that? I think gall bladder surgery is very common among celiacs before they discover they have it. It...
  14. Scott Adams
    @CBird it's amazing that in 1948 your sister was properly treated for celiac disease. In some ways I find it rather depressing that here we are in 2022, and MANY doctors still miss proper testing for celiac disease, and the average time to diagnosis is still over 5 years after symptom onset. It seems like it should be a lot easier by now.
  15. Scott Adams
    Let us know how things go. I hope all symptoms will soon improve for you! Look into a gluten-free L-Glutamine supplement, as it has been shown to speed up gut healing.
  16. Scott Adams
    I would suspect the msg or the turmeric. I'm not sure if you saw this:
  17. Scott Adams
    Thank you for the update on oats, and we've got lots of articles on oats here for anyone who wants to dive into this further: /celiac-disease/oats-and-celiac-disease-are-they-gluten-free/
  18. Scott Adams
    I've been reading posts here for nearly 2 decades, and I've not heard of a non-itchy DH rash. I suppose it is possible, but you may want to get a dermatologist to look at it for a proper diagnosis. Do you have celiac disease?
  19. Scott Adams
    Yes, and we make corn tortilla pizzas all the time at my house. We actually fry them in an iron skillet with a lid on the stove top in some oil, and they come out crispy on the bottom. Costco has two packs of large, frozen prepared pizzas and their price is hard to beat, but they are still a lot more expensive than the tortilla option.
  20. Scott Adams
    The protocol for a blood test is to eat 2 slices of wheat bread a day for 6-8 weeks, and 2 weeks for an endoscopy:
  21. Scott Adams
    I think the fact that you had elevated levels could mean that you are in the non-celiac gluten sensitive category, and you may want to consider trying a gluten-free diet. Also, were you eating ~2 slices of wheat bread worth of gluten daily for 6-8 weeks before the test? If not, the results could be lower than they would have been if you had followed...
  22. Scott Adams
    If you have gluten sensitivity or celiac disease eating gluten can definitely cause fatigue. How did the biopsy go? You posted this on July 4th, which is a holiday in the USA, so it looks like this slipped through the cracks.
  23. Scott Adams
    I'm sorry to hear that you're having issues. If you eat in restaurants, or include gluten-free oats in your diet, you may want to cut both out to see if that helps. This article may also be helpful:
  24. Scott Adams
    Thanks for the info, and you might like this article we did a while back:
  25. Scott Adams
    Some people with celiac disease get more sensitive to it over time after they have fully eliminated it, but others don't. I think this can vary a lot from person to person. Ideally you'll avoid gluten going forward so you won't have to find out whether or not your tolerance to it decreases or increases, but probably the only way to determine that would...
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