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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    You are correct about being careful with psyllium. I ordered some psyllium powder from Amazon that did NOT say "gluten-free" on its label but also did not say that it may contain wheat, and it tested positive for gluten with a Nima sensor. I gave it away. Technically speaking, if it has "gluten-free" on the label it should be safe and below 20ppm, but...
  2. Scott Adams
    The average time to recovery is 2 years, but this can vary greatly from person to person, and depends on how much intestinal damage you had, weather or not you're taking vitamin & mineral supplements, are 100% gluten-free, etc. If you eat out at restaurant you're probably getting some trace amounts of gluten in your diet.
  3. Scott Adams
    In some celiacs gluten attacks the brain and nervous system, and the articles in the category below are about this. The good news is that in those who stay 100% gluten-free, the damage done can heal, but I agree that most celiacs need to take vitamin & mineral supplements to recover. https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases...
  4. Scott Adams
    I think it would not be very likely. Of course it may be possible if it were dropped directly on a piece of bread or something like that exactly on the spot where you drink out of the can. Something that may be more likely is that you could have gotten gluten if you eat out at a restaurant, or at a friend's or relative's house. White Claw in the USA...
  5. Scott Adams
    Welcome to the forum! It sounds like you've been gluten-free for a while due to real issues you have when eating it, which go away when you don't eat it. Given that you've already linked your symptoms with gluten, perhaps you don't need to go through what you describe as "heel on wheels" to try to get a formal diagnosis? You may find this article...
  6. Scott Adams
    The recommendation is just 2 slices worth of wheat bread daily for 6-8 weeks before a blood test, and 2 weeks before a biopsy.
  7. Scott Adams
    To me the fact that you had a positive tTG IgA twice before: tTG IgA : 16 U/mL Ref Range: 0 - 15 tTG IgA : 24 U/mL Ref Range: 0 - 15 tells me that you likely have celiac disease, no matter what the biopsy results show. If I were you I'd try a gluten-free diet and see if you get symptom relief. If so this would be further confirmation...
  8. Scott Adams
    Celiac.com 05/09/2022 - Natural Organics, Inc., is voluntarily recalling four lots of NaturesPlus Keto Living Sugar Control Capsules 90 count, because it was found to contain gluten. People who have allergies to wheat or gluten run the risk of serious or life-threatening allergic reactions if they consume these products. Individuals with Gluten intolerance...
  9. Scott Adams
    If you look at Native Americans they got wheat in their diets only in the last ~500 years or less...probably closer to the last 100-200 years. I've not seen many good studies done on celiac disease prevalence among Native Americans, but going from memory do recall one study that indicated that up to 6% of them could have celiac disease. More research needs...
  10. Scott Adams
    Were you eating the equivalent of 2 slices of wheat bread daily for at least 6 weeks before this test?
  11. Scott Adams
    I will admit that I'm not a fitness expert, but my understanding is that muscle mass is heavier than fat, so if you are converting fat into muscle, which is possible in your case, then it could account for the weight gain. Is your body getting leaner with all the fitness training? If so, I would not worry about the weight gain too much.
  12. Scott Adams
    I'm not sure what is available where you live, but here in California we can buy good frozen gluten-free pizzas at Costco, Safeway, and other major stores. Pre-packaged gluten-free pizzas and crusts should be safe, so you don't need to fully give up your pizza! I'm a thin crust fan, and use gluten-free "flour-style" tortillas from Trader Joe's to make personal...
  13. Scott Adams
    I think the best way to look at this is to look at animal digestive systems which have evolved to consume grains and grasses. They are entirely different than the human digestive system, and humans only began eating grains 12,000 - 20,000 years ago, which is a flash in the pan in terms of evolution. I believe gluten is one of the hardest things for all humans...
  14. Scott Adams
    You might be interested in this veterinarian who has contributed many articles to Celiac.com: https://www.celiac.com/profile/102790-john-b-symes-dvm/content/ and specifically these two articles:
  15. Scott Adams
    On some level it may just make sense to stay gluten-free, and if your symptoms mostly or completely go away, it means that you're on the right track...no extra money spent beyond the extra cost of gluten-free foods. If you still have some symptoms you could then keep a food diary and see if you find another intolerance, for example oats, cow's milk, corn...
  16. Scott Adams
    I believe you meant to say here that gluten was boiling at your sister's house, and gluten items were being cooked in the microwave at work.
  17. Scott Adams
    Welcome to the forum! I just want to mention that for blood tests the Mayo clinic recommends eating 2 slices of wheat bread for 6-8 weeks, otherwise the blood test results may be false negative. Since you are unable to manage doing this for even 4 weeks due to severe symptoms, I think it is safe to assume that you have either undiagnosed celiac disease, or...
  18. Scott Adams
    Let us know what you find out, especially regarding the total IGA.
  19. Scott Adams
    All first-degree relatives should be screened for celiac disease, even if they don't have any symptoms. A recent Mayo clinic study showed that up to 44% of first-degree relatives also have it. Too late now, but perhaps this will help if it happens again:
  20. Scott Adams
    If you have been gluten-free for this long, and are still having tremors, be sure to consult with your doctor about them. They could be unrelated to celiac disease, and could also some other autoimmune disease. Also, are you taking a good multivitamin & mineral supplement? Many celiacs get gluten ataxia and have brain and nervous system issues, and...
  21. Scott Adams
    I think pursuing more tests should only be done if you believe you cannot stay on the gluten-free diet for life without being sure that you have celiac disease. There are downsides to a formal diagnosis, like more expensive and harder to get private health and/or life insurance policies. The upsides are that you may get access to follow up care, like blood...
  22. Scott Adams
    I know this study focuses on children, but I suspect we'll see more studies like this that may also link celiac disease to chronically "weak positive" tTG IgA results in adults:
  23. Scott Adams
    I think I recall from your other posts that you've been trying to figure this out for a while now, and I believe you've had positive blood tests before, but please correct me if that isn't correct. Also, can you share your blood test results, and the reference ranges for a positive result? Overall it seems to me like you already have your answer, and...
  24. Scott Adams
    When you describe "tightness in the throat" it makes it seem like an allergy issue, have you ever had food allergy tests done? Is there any swelling associated with it? Some celiacs also cannot tolerate corn, so I also wonder if it could be a corn intolerance.
  25. Scott Adams
    Here are some articles on studies done on this topic, but for those who continue to eat out, myself included, taking AN-PEP enzymes like GliadinX (full disclosure, they are a sponsor here), may help break down small amounts of gluten in the stomach, before it reaches your intestines:
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