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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I agree, there is nothing dangerous about a gluten-free diet, as long as you compensate for the fiber and nutrients that fortified wheat bread products contain. In the last decade there have been lots of scare articles in the press about the "dangers of a gluten-free diet," which actually read very much like what most of them are, which are likely positions...
  2. Scott Adams
    Corn starch is gluten-free:
  3. Scott Adams
    You can search your medication here, find out which one you use, then look at its inactive ingredients: https://dailymed.nlm.nih.gov/dailymed/
  4. Scott Adams
    I would still be extremely surprised if you could purchase 100 packages of these and get any to test positive for gluten. We are talking about Nabisco, owned now by Mondelēz International, which is one of the biggest food companies in the world. Of course it's possible, but what else did you eat that day or week? Given that you have delayed reactions, could ...
  5. Scott Adams
    To me it seems strange that the first couple of times you ate the ones from the same bag gave you no issues, but then eating some from the same bag later would give you an issue. Since they would be from the same batch, it seems like they would all be contaminated, or none would be.
  6. Scott Adams
    If you've been 100% gluten-free for those 3 years, it seems very unlikely that you would be suffering from gluten ataxia. In fact, it would be more likely that you had these symptoms while eating gluten, and then they would have gone away or improved after going gluten-free. I'd only recommend that you re-check everything in your diet just to be sure...
  7. Scott Adams
    Welcome to the forum! You are above the limit, and this is a test that is very specific for celiac disease, so I'd assume that you have celiac disease. Even if your results were 2.6 on that test, I would say that you still could have celiac disease. For some reason, and I believe it was around 5-7 years ago, we started seeing some labs include a...
  8. Scott Adams
    You may need to keep a food diary to find additional intolerances, for example eggs, yeast, corn, soy, milk, etc.
  9. Scott Adams
    Welcome to the forum! I usually try to steer people to get tested, but if the cost is a big factor, then why not just experiment more with the diet? Add gluten back and see what happens. The problem with testing is that around 1% of people have celiac disease, and may test positive for it with blood tests and possibly with a biopsy, but around ...
  10. Scott Adams
    This category has many articles on the this: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ and brain fog is a symptom that many celiacs have...got to avoid gluten!
  11. Scott Adams
    The other thing to keep in mind is that you can take 1-5 pills, or more, with no real side effects, other than more AN-PEP will break down more gliadin. Again, this does not in any way mean that you should use them to knowingly eat gluten, but the sad reality is that most restaurant food, even ones with gluten-free menus, has some contamination according...
  12. Scott Adams
    Yes, the study looks for a link between gluten consumption in celiacs and those with NCGS to see if it alters their gut microbiome, which in the short term it doesn't in either group.
  13. Scott Adams
    I've not heard of volvulus being linked to celiac disease, but it would not surprise me at all if a study were to come out that showed a link. I agree...get tested for celiac disease before starting a gluten-free diet. More on volvulus: https://www.medicalnewstoday.com/articles/321479 PS - others have posted here before about it: https://www...
  14. Scott Adams
    Please share any studies that show that it does not work. There have been multiple studies done on AN-PEP at this point, and all are linked to from their site: https://www.gliadinx.com/publications I've gone through each and they do support it breaking small amounts of gliadin down in the stomach.
  15. Scott Adams
    You may want to browse through the other posts and articles that mention this symptom, as others have written about it: https://www.celiac.com/search/?q=nystagmus&quick=1
  16. Scott Adams
    I've not heard of this specific symptom being related to celiac disease, but CD can attack the brain and nervous system in some people. You didn't mention if you have celiac disease, are on a 100% gluten-free diet, etc., but please let us know.
  17. Scott Adams
    In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high. If you're sure your diet is 100% gluten-free (don't eat in restaurants!), you may want to try casein/dairy-free as well. I already shared this with you but here it is again:
  18. Scott Adams
    From the Experts: Join Our Virtual Monthly Meeting on "All Things Celiac" "Elite and Everyday Athletes with Celiac Disease: Eating for Fitness at All Ages" Join the National Celiac Association (NCA) and the Harvard Medical School...
  19. Scott Adams
    @Sabaarya posted this.
  20. Scott Adams
    Marsh 3a would be considered mild damage: https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.
  21. Scott Adams
    Below is more info on the gluten challenge, in case you decide to do that. I think it would be perfectly fair to call out your doctor on this and have them cover any re-testing costs, as they did give you incorrect info for your initial testing. But, if you already know you feel better without gluten, the point may be moot...why not just stay gluten-free...
  22. Scott Adams
    Creatine is an amino acid that should be gluten-free, but to be sure you may want to look for "gluten-free" on the packaging. Also, this older thread may be helpful:
  23. Scott Adams
    It sounds great, but if you plan to be a regular it's definitely worth having a conversation with the owner to get a feel for how serious they are about keeping all gluten out of their products. Ask them if they use certified gluten-free flours and other products in their baked goods, and train all staff to not bring in any gluten to work. It sounds...
  24. Scott Adams
    We've had other report very similar issues with trying to get their tTg levels to the normal range. The first thing we usually recommend is re-checking your diet for hidden gluten (see below), eliminating oat (even gluten-free oats), and milk/dairy:
  25. Scott Adams
    Can I assume that your diet is 100% gluten-free, and you are not getting contamination through meds, supplements, shared kitchen pots, eating out, etc? If so, the average time to recovery is 2 years. I had pretty severe mucosal damage and struggled for months not fully understanding sourced of hidden gluten, but after around the 2 year mark I began gaining...
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