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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    It's of course possible that a batch was contaminated, but is it possible you could be reacting to another ingredient as @trents mentioned?
  2. Scott Adams
    There is a condition called non-celiac gluten sensitivity, which ~10x more people have than celiac disease, however, there currently isn't a test for this--it was only recently revealed to be an actual condition. If your tests end up negative, it might be worth trying the gluten-free diet for a few months to see if you get symptom relief.
  3. Scott Adams
    It certainly could be celiac disease, especially if you have DH, which is the skin form of the disease. Did you get an official diagnosis by a dermatologist for DH after a skin biopsy? If so, then yes, you likely will need to go gluten-free after all testing is done. Do you have all of your blood test results, and if so, can you share them here with...
  4. Scott Adams
    For me the weight gain began around a year after going gluten-free.
  5. Scott Adams
    There are tons of gluten-free options in Spain, especially the tappas. A good restaurant card in Spanish may be helpful, and you may want to check into GliadinX (AN-PEP) enzymes which have been shown in many studies to break down small amounts of gliadin/gluten in the stomach, before it reaches your intestines (and they are a sponsor here as well).
  6. Scott Adams
    Welcome to the forum! It's better to figure this out late than never! It sounds like you are on track to recover, and I'm glad you've finally figured things out.
  7. Scott Adams
    The articles we've done on this topic are older, but may be helpful still:
  8. Scott Adams
    The blood test are not reliable unless you were eating gluten, at least 2 slices of wheat bread worth per day, for 6-8 weeks before the test. If you want to be retested this is what you would need to do. Or, you could just go gluten-free now and save yourself the suffering.
  9. Scott Adams
    In general the B vitamins work together, which is why B-Complex vitamins are so common. You may want to consider taking one.
  10. Scott Adams
    Some people, including myself, are allergic to penicillin (which may mean an allergy to that class of antibiotics). It's definitely best to be your own health advocate!
  11. Scott Adams
    It seems odd to me that your "specialist" it trying to talk you out of what seems to be 1) classic celiac symptoms; 2) you carry a gene that give you a 5% chance of having celiac disease; 3) you had villous atrophy consistent with celiac disease even after 2 months on a gluten-free diet; and 4) you feel better when you don't eat gluten, and poorly when you...
  12. Scott Adams
    This post might be helpful:
  13. Scott Adams
    Definitely check in with your doctor, but celiac disease is known to cause gluten ataxia, which could explain your symptoms. Are you taking a good multi-vitamin with minerals? One A Day or Geritol are good ones. You may also need to add extra B12, benfotiamine (B1 in a form that is absorbed better), and Magnesium Citrate (this can cause IBS-like issues...
  14. Scott Adams
    It seems like you could take both without issues.
  15. Scott Adams
    I can't claim to be fully up on every genetic variant that could make celiac disease more likely, but it looks like going with either of these should be enough, and perhaps Genovate might be slightly better. There are upsides and downsides to doing it with 23 and Me, for example privacy issues regarding your test results, but the upsides are getting all of...
  16. Scott Adams
    Welcome to the forum! There are others like you, and polls done in the past have indicated that ~25% of celiacs cheat regularly on their diets, however, there are lots of health risks associated with doing this, so it's just better not to do it. I liken it a bit to diabetics who might continue eating high carb or sugar foods, only to find out many years...
  17. Scott Adams
    You may want to get some Lysol disinfectant wipes to wipe your keyboard and other areas down.
  18. Scott Adams
    Some people report that using Ben-Gay cream helps.
  19. Scott Adams
    I don't think NCGS is temporary, and is likely a lifelong condition, although this hasn't been determined yet.
  20. Scott Adams
    This sounds a lot like what my doctor said ~27 years ago...it's amazing that many doctors haven't moved beyond this vary narrow advice. A proper consultation warning you of the risks involved if you continue eating gluten would be the proper way for them to handle this. Back when I was diagnosed there was less overall knowledge about the risks, but now there...
  21. Scott Adams
    Sure, have you been eating ~2 slices worth of wheat bread or equivalent for the last couple of weeks? This is required before an endoscopy for celiac disease. Let us know how it goes!
  22. Scott Adams
    Interesting...can you share the brand?
  23. Scott Adams
    There are other causes of steatorrhea, but to me it seems like you are on the right track for the cause of yours. Relief of your various symptoms after going gluten-free is considered to be one of the main methods that doctors still use to confirm a diagnosis of celiac disease, and this may be the current best way to diagnose NCGS. This article has more info...
  24. Scott Adams
    Good article! It illustrates the many symptoms that can be caused by celiac disease due to malabsorption, which makes it so hard to diagnose.
  25. Scott Adams
    It definitely sounds like a nutrient deficiency to me, possibly low magnesium. Are you taking a good multi-vitamin/minerals? You might try getting some magnesium citrate (Costco) and taking it with food. Note that your body may need to adjust to it, as it can cause IBS symptoms in some people, but usually it goes away after you get used to it.
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