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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    True, but the good thing is that most of the risks associated with celiac disease dimmish, or fully go away, once you go gluten-free. That, by the way, is a list of categories that contain research articles that we've summarized over many years that link the conditions to CD. Just click a category and you can read the articles.
  2. Scott Adams
    Dr. Sarah needs our help! The Paleo Mom website has been caught up in a ransomware attack on someone else. Until the target of this cyber attack resolves the situation, Dr. Sarah's site can not be restored. It is a situation completely out of Dr. Sarah's control, and she now has to face the daunting task of rebuilding her site from the ground up. So many...
  3. Scott Adams
    This points at celiac disease: BORDERLINE MILDLY INCREASED INTRAEPITHELIAL LYMPHOCYTES (25 PER 100 ENTEROCYTES). I'm not surprised that they didn't do the biopsy correctly, as we see this complaint often here.
  4. Scott Adams
    Celiac disease is an autoimmune disease, rather than an allergy, and certainly a food or other allergy is capable of killing someone, and this is typically called anaphylaxis. I'm not sure about the exact process that leads to death in these cases, but suspect it has to do more with suffocation due to swelling in the throat, but a heart attack may also be...
  5. Scott Adams
    I think your doctor made a good call to do another celiac disease blood panel, let us know how it turns out. Were you eating gluten, preferably 2 slices of wheat bread's worth, daily for 6-8 weeks before your blood test? This is the normal protocol, otherwise your antibody levels may be lower, or you may even get false negative results.
  6. Scott Adams
    I'm in the camp of there are no "weak positives." A positive test for celiac disease, especially if you weren't eating 2 slices of wheat bread daily during the 6-8 weeks leading up to the blood test, yet it's still positive, is a strong indicator of celiac disease. A gluten-free diet would be your safest bet, and if your symptoms go away on it this should...
  7. Scott Adams
    Welcome to the forum @nimzabo! I think the first thing to eliminate would be any chance of you having a real heart issue. I know it's scary, but I think it would be wise for you to go through with the monitoring test you declined. It is possible that your issues could be caused by something like undiagnosed celiac disease, but it's always best to get...
  8. Scott Adams
    Feel free to share them here. I am surprised that the wine industry hasn't jumped at the change to put "gluten-free" on their wines to target our now large, niche audience. Even it they should naturally be gluten-free, it doesn't take that much effort of cost to run some regular batch testing and get certified gluten-free, so more wineries should do this...
  9. Scott Adams
    Great timing, because I just received this email from my daughter's high school. You should reach out to this program. Also, regarding the International Bachelor Program (IB), not too many high schools offer this, but a former neighbor of mine's daughter did this at Montgomery High School in Santa Rosa, California.
  10. Scott Adams
    I suffered from vertigo, which was so bad around the time of my diagnosis that I went to the emergency room a couple of times thinking that I was having a stroke or heart attack. I also had panic attacks, and looking back, the vertigo symptoms are what seemed to set off the panic attacks. The good news, in my case at least, was that those symptoms went...
  11. Scott Adams
    Welcome to the forum! Can I ask where you are getting this stool test done? I know that Dr. Kenneth Fine pioneered this test, so hopefully it's with his lab, but I can say that most of the people who participate in this forum do the blood tests, as they are considered the standard. Do you have the reference ranges for the tests? We would need to...
  12. Scott Adams
    I am pretty sure that the dpg-igg test is fairly specific for gluten, but it is the best test to use in those 7 years old or younger: https://pubmed.ncbi.nlm.nih.gov/22197936/ It's possible that it is a false positive test, but unlikely I think.
  13. Scott Adams
    If you've noticed a correlation with your symptoms when you eat large amounts of gluten, then at the least you likely have non-celiac gluten sensitivity, and unfortunately there is no test for this, although it is ~10x more common than celiac disease. If you don't want to go through the trouble of getting re-tested for celiac disease, which would mean...
  14. Scott Adams
    It looks like a negative celiac disease test, but as @trents mentioned, would not rule out NCGS. If you go this test done due to unexplained symptoms, you may still want to try a gluten-free diet for a few weeks or months to see if it helps with your symptoms. If you have no symptoms and you have this negative test, you likely don't need to worry about gluten...
  15. Scott Adams
    Target doesn't make its own sugar, they just have it co-packaged in their packages. I suspect it's made by one of the big sugar companies, but it could be hard to find out which one. Barley, possibly in the form of malt sugar may be a possible cross-contact, but it would be surprising to me if a cane sugar factory also processed malt sugar. Perhaps...
  16. Scott Adams
    To me it sounds like you've already identified wheat as a culprit for some or all of your symptoms. You could do a gluten challenge as @trents mentioned and get another blood panel done, or your could just go gluten-free. If your aunt has it your odds of having it are higher, and you already know that you have the genetic markers that make celiac disease...
  17. Scott Adams
    Welcome to the forum! If you're sure about not getting any gluten in your diet, and for this I will assume that you're not eating outside your home, especially in restaurants, the next step is to see if you have any other intolerances or food sensitivities, for example to oats, casein/dairy, corn, soy, etc. You may need to keep a food diary to figure...
  18. Scott Adams
    Welcome to the forum! When you took the celiac blood test years ago were you eating gluten daily beforehand? If not, it could explain your negative results, even if you do have celiac disease. As @trents mentioned, NCGS could also be causing some or all of your symptoms. Have you ever tried a gluten-free diet? If your doctor is unwilling to test you...
  19. Scott Adams
    I'm not sure we have any genetic "experts" here who would be able to go into this in detail, but this article has some general info? It looks like you have the genetic makeup to possibly get celiac disease, but I could not tell your overall risk from what you posted. Have you spoken to the lab who did the test and gave you these results? They should...
  20. Scott Adams
    In my case bloating went away in the 6-12 month time period after going gluten-free. Of course bloating can be caused by many things, so it is possible that you have an additional food intolerance, for example to milk, oats, corn, etc., so you may want to keep a food diary to see if you can find a connection. Not enough or too much fiber can also cause...
  21. Scott Adams
    I don't think so because wine is considered to be naturally gluten-free. More about that is in this article:
  22. Scott Adams
    Wow, thank you for the info. A recent Mayo clinic study showed that up to 44% of 1st degree relatives may also have celiac disease, so your 5-10% may need to be updated:
  23. Scott Adams
    Try to relax, as extra stress won't be able to turn back the clock. I think this unfortunate episode is unlikely to cause a miscarriage. I would, however, be extra vigilant about your gluten-free diet, and it sounds like you will be going forward. This article may help:
  24. Scott Adams
    It looks like they offer many different products under their "Good & Gather" brand, so you would need to look at each one individually to determine if it's safe. As far as their sugar goes, it would surprise me a lot if Good & Gather granulated or brown sugar had any gluten in it, but, of course, it's not impossible. I assume there is nothing...
  25. Scott Adams
    You can find articles about anything online, these are not peer-reviewed scientific publications, they are simply articles talking about this acid/ash hypothesis. A hypothesis is simply an idea that needs to be investigated through scientific inquiry, experiments, and data gathering, but none of this has happened with this idea, and in fact, you can find...
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