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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum! I agree with her doctor, and it only takes one positive test to indicate celiac disease, and her doctor may want to do a follow up endoscopy to confirm this. You should discuss this with her doctor, of course, but no matter the outcome of the endoscopy it would likely be wise for your daughter to go gluten-free, as her positive...
  2. Scott Adams
    I think the amount that would cause intestinal inflammation, damage and positive blood tests would vary a lot from person to person, but to me it seems that you may have crossed this threshold. I was hoping you'd say that what you were eating was a pill that might use wheat starch, as that would contain very small amounts of gluten, and may not trigger a...
  3. Scott Adams
    Good to know! We ran an article years ago on Interstitial Cystitis:
  4. Scott Adams
    This looks like another amazing recipe, thank you!!
  5. Scott Adams
    How long were you eating it, and are we talking about large amount of gluten each time? If you've been eating this for a couple of months you could be back to square one, which means it could take you a few months, or even longer to heal and recover. Be sure to take a good multi-vitamin like Geritol (if you can include iron in your supplements) to help...
  6. Scott Adams
    We've definitely had people report that certain types of wheat seem to cause less issues, or sometimes no issues, for example einkorn, semolina, etc., but celiac experts do agree that those types of wheat will still cause harm to those with celiac disease. Gut reactions in most people are not a good indicator of what damage may be caused, or what autoimmune...
  7. Scott Adams
    Long term use of PPI's can be a concern, as it can cause you not to break down and absorb nutrients in your food. Ironically many people who are prescribed them would actually benefit more by increasing their stomach acid using HCL supplements, but again, I do not want to second guess your doctor. I will assume that you are very careful with your gluten...
  8. Scott Adams
    Even if you are as sensitive as you have mentioned, I believe that since you are not eating this that information from Native would be enough for me to think that it is safe. Even if there were a tiny amount of contamination in the very first part of their manufacturing run due to something in the machinery that wasn't cleaned properly (this risk is likely...
  9. Scott Adams
    There are also other things to consider, for example an official diagnosis would likely lead to increased costs for private life and/or medical insurance--life insurance for sure, but on the medical side it depends a lot on the type of insurance you have, where in the world you live, etc. Most people don't mention this, but it is a fact, so you may want to...
  10. Scott Adams
    Wow, welcome back and I'm sorry to hear that you're not doing well. You are correct to question your doctor regarding the number of samples they plan to take during a endoscopy for celiac disease, and you are correct that the recommended amount is at least 4 samples. We had someone post here recently that they spoke to their gastroenterologist (in the...
  11. Scott Adams
    It is possible you have both, but I don't want to second guess your doctor. Many people who have eczema have reported improvement of their symptoms on a gluten-free diet, and it would be interesting to see how your symptoms are after a 100% gluten-free diet for a few months. Please let us know how things go.
  12. Scott Adams
    I would only add that you've already basically self assessed that you have non-celiac gluten sensitivity, and whether or not you go the route of getting a formal celiac disease diagnosis is up to you--you know that gluten causes your symptoms, and removing it makes them better. A formal diagnosis may give you access to more follow up care, but you may also...
  13. Scott Adams
    Welcome to the forum. If you had a positive blood test for celiac disease, which is the normal first test done before an endoscopy for celiac disease, then those results combined with "focal mild increase intraepithelial lymphocytes" likely means that you have celiac disease. Of course your doctor would need to confirm this, however, there are many doctors...
  14. Scott Adams
    Welcome to the forum! It sounds like you've already figured out that you have non-celiac gluten sensitivity, and that you may actually have undiagnosed celiac disease. You are correct, to get a formal celiac diagnosis you'd need to eat gluten daily for at least 6-8 weeks (~2 slices of wheat bread daily) before taking the test, and then possibly get an...
  15. Scott Adams
    Welcome to the forum! You very well could have eczema, however, some people on this forum were misdiagnosed with eczema when they actually had dermatitis herpetiformis. If your rash includes very tiny, hard, clear blisters that are incredibly itchy, consider having your dermatologist do a biopsy on them for DH. If you do have DH, even the smallest cross...
  16. Scott Adams
    I just wanted to post this update which came to be via email directly from Dr. Kenneth Fine--he doesn't have time to join the forum and reply to questions directly, but here is his reply to some of the posts here about his lab and methods: So, Dr. Fine believes that gluten sensitivity (NCGS) is or can be preliminary to celiac disease, that it is not...
  17. Scott Adams
    This new article on the connection between autoimmune thyroid issues and celiac disease is interesting, and there are studies that support a gluten-free diet in many with thyroid conditions even if they don't have celiac disease. I suspect that it will later be found they such people fall into the non-celiac gluten sensitive group: https://www.cureus...
  18. Scott Adams
    Yes, if they are labelled "gluten-free" they should really be gluten-free.
  19. Scott Adams
    Welcome to the forum, do you have a link to back up this concept? I ask because you’ve mentioned grains that are clearly regarded as safe for those with celiac disease, for example sorghum. Potatoes have never been in question. Perhaps you are referring to people with celiac disease who have ongoing symptoms?
  20. Scott Adams
    If you look at the cost per tablet, and you need to include iron (I can't), Geritol is an excellent choice.
  21. Scott Adams
    The SCD used to be fairly popular among celiacs with ongoing symptoms, but I haven't heard it mentioned here in a while. Where did you hear about the SCD? Here is an older article on it:
  22. Scott Adams
    This article may be helpful:
  23. Scott Adams
    Dogs did not evolve eating grains, so I find it strange that veterinarians keep citing this single study as a reason to keep feeding grains to dogs.
  24. Scott Adams
    I don't believe that a coffee enema would be helpful for canker sores, or anything else. I am pretty sure that this "treatment" isn't recommended by any reputable medical doctors, however, the antibiotics are what likely rid your system of the candida.
  25. Scott Adams
    As the article states in the large font above it: "Journal of Gluten Sensitivity Autumn 2005 Issue. NOTE: This article is from a back issue of our popular subscription-only paper newsletter. Some content may be outdated."
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