
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Interesting article for sure, but is more of a discussion based on a small handful of cases, so it's not really the broad study I was hoping for. It does seem possible that there could be a certain number of autoimmune disease cases triggered by the vaccines, and they do discuss a case of Type 1 diabetes possibly being triggered, but don't mention celiac...
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Welcome to the forum @nansissons. Has your diet been 100% gluten-free? Epilepsy can be related to celiac disease, so be sure your diet is gluten-free. If you eat out at restaurants you may be getting trace amounts in your diet. As far as the vaccine causing either celiac disease or epilepsy, so far I haven't see any scientific publications that show...
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Welcome to the forum. It would be helpful if you could include your full results, as well as the reference ranges for a positive test, as each lab handles these a bit differently. In general, I agree with you that the cut off for a positive blood test is set by some sort of scientific consensus, but may not be very accurate. For example some people...
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If you end up with a negative blood test for celiac disease, but do have symptoms you've noticed when you eat wheat, you may still want to try out a gluten-free diet for a while. 10x more people have non-celiac gluten sensitivity, but there isn't yet a test for it. If the diet helps with your symptoms, you may have NCGS.
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Good old prunes may also help you.
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I've not heard of this before, so thank you for bringing it up, as it is very interesting. Given the huge variety of nutrient deficiencies that most celiacs have when diagnosed, I would assume that this condition would likely be related to malabsorption issues. It's great to hear that you're gaining weight again, and feeling better, but the level of...
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I agree with @knitty kitty that, especially if you have celiac disease, the cravings could be the result of nutrient deficiencies. Damage to the intestines can cause a cascade of issues, including malabsorption, which can make you feel like you are starving. For decades it was thought that you could not be overweight and have celiac disease, but now it is...
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Trader Joe's sells gluten-free bagels, and you can get all kinds of gluten-free bars like Kind bars. Note that about 9% of celiacs are intolerant to oats...even gluten-free oats. You may not have an issue with oats, but just be aware that some celiacs can't have them.
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Canker sores are one of the most common symptoms of undiagnosed celiac disease, and I just searched this site for "swollen gums," and others have reported this as well: https://www.celiac.com/search/?q="swollen gums"&quick=1&updated_after=any&sortby=relevancy&search_and_or=and
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Constipated eating zero gluten?
Scott Adams replied to LumpyLady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Others have definitely reported various changes like constipation after going gluten-free. You might try eating prunes to see if that helps. Casein/cow's milk intolerance is very common in those who are diagnosed with celiac disease, as their villi get damaged so they cannot properly digest the milk protein. -
The Chalice: How much of a risk is this, really?
Scott Adams replied to currier54's topic in Super Sensitive People
I think the chance of cross-contamination is pretty small, especially if you take the smallest sip possible (does it matter how much you actually drink? I doubt it, as long as you get some amount of it). Given how sensitive you are, it is still a very small risk, so you'll have to be the one to decide whether or not to ask for a separate cup or not... -
This was definitely true in my case. At the time of my diagnosis I had ~5-6 additional food intolerance issues, and nearly all of them went away within 2 years of starting a gluten-free diet. I believe that this issue is also a big cause of why it is so hard for those with celiac disease to get diagnosed, as they are constantly being misled into believing...
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Unfortunately there is no test yet for non-celiac gluten sensitivity, as @trents mentioned, but ~10x more people have this than do celiac disease. A gluten-free diet is recommended for either condition.
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Yes, the spices in the study were tested for gluten.
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We've summarized all the research so far on covid-19 and celiac disease, which can be found using the link below, but so far I've not seen any direct studies that link the vaccine to getting celiac disease. https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles
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Question about test results
Scott Adams replied to driftwood7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is a bit of a trick question. If your outbreak now is DH, then you likely have been consuming tiny amounts of gluten--for example, do you eat in restaurants? If so, you are likely getting trace amounts of gluten in your diet. Normally you need to be eating some gluten to trigger the DH rash, however, iodine, at least in some people with DH... -
If you got an official DH diagnosis then your doctor's assessment that you have celiac disease is likely accurate. Given everything I know about how miserable DH symptoms are, I would not recommend that you go on a gluten challenge to get a formal diagnosis unless you feel that you can't maintain a gluten-free diet without one. The reason that you might...
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Blood Testing Question
Scott Adams replied to MKC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! The range before doing a blood test for celiac disease is to eat gluten, around 2 slices of wheat breads worth per day, for 6-8 weeks, so 6 weeks may be enough, depending on how much gluten you've been eating. Keep in mind that not everyone ends up with a positive biopsy, or blood test, and that any positive test whether blood or... -
Newly diagnosed
Scott Adams replied to Bill1991's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't recall seeing TMJ/TMD linked directly to celiac disease in research studies, however, my mother suffered from severe TMJ for decades. She also found out shortly after I was diagnosed that she also has celiac disease. Her TMJ symptoms improved greatly after a few years on a gluten-free diet, but have not completely gone away. -
getting worse waiting for endoscopy
Scott Adams replied to cteo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, and feel free to share your blood test results here, along with the reference ranges for each test. I mention this because it is becoming more common to diagnose celiac disease now with blood tests alone, and this article covers this in more detail: -
I know that Beyond Meat is gluten-free, and the main ingredients is pea protein, which is a legume. The only allergen warning I see on their sits is this one, is it possible you have an allergy? https://www.beyondmeat.com/en-US/about/our-ingredients/
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Hello @Kmb172, you should be able to search this here and find the "Inactive Ingredients": https://dailymed.nlm.nih.gov/dailymed/
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Endoscopy Tomorrow
Scott Adams replied to KittenPA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This article should be helpful, and you may want to look into a good multi-vitamin and mineral complex that covers all the B vitamin, and Vitamin D.