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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. I also want to add that around 10x more people have non-celiac gluten sensitivity, and there currently isn't a test for it. Since you have unexplained symptoms, and one positive blood test for celiac disease, you may still want to try a gluten-free diet for a few months to see if they go away. Just be sure that your doctor doesn't have any future tests planned...
  2. Given your positive blood tests (feel free to share those results if you like), and apparently positive biopsies for celiac disease, I would say that it is very likely you have celiac disease. I'm not sure why the doctor hasn't formally diagnosed you, but you should definitely ask them about that. This category has our articles on liver issues and celiac...
  3. I eat only whole grain gluten-free breads, usually from Little Northern Bakehouse, Franz Gluten Free, Canyon Bakehouse, Grindstone Bakery, or Food for Life. I also eat several dates each day, and plenty of vegetables and fruit. For Pasta I usually use Barilla, but am now trying Bentilia due to its high fiber, high protein, and amazing nutritionals.
  4. @docaz may have a better answer to this question, but in my case I take 2 after the first few bites of any restaurant of outside food that I eat, and this has worked for me over multiple years. I have also taken up to 4 at a time once after learning that a pate appetizer that I ate at a friend's house had gluten in it (rather than actually checking its ingredients...
  5. Watery blisters could be DH, so I still think that it's important to review your diet again more closely. Since you are in the land of free medical care 😀, it might make sense to see if you can have a dermatologist have a look. They can biopsy them for DH, or tell you if they might be something else.
  6. Welcome to the forum! This article may be helpful: Also, this is a very old list, but some of these groups may still be active...hard to say though due to the pandemic:
  7. I agree with @RMJ, and I think the important thing about using AN-PEP is to understand that it isn't a replacement for being careful, nor is it designed to allow you to cheat on your diet. I had already decided that I wasn't going to stop doing something that I loved, which is travelling and eating outside my home--usually at restaurants or friend's houses...
  8. If the hives are caused by an allergy, antihistamines will usually make their size, redness and itchiness dissipate within an hour or two.
  9. I started taking GliadinX back in 2017 before any meal I eat outside my home, and I can say that I haven't had any known contamination issues since. Before that I used to notice issues 25-30% of the time that I ate out. I think AN-PEP is the most significant thing to come along since I started this site, way back in 1995. From what I've read about other...
  10. The article was originally written in 2005, a time when celiac disease was nearly unknown, thus, people with it, including doctors, often referred to it as gluten intolerance.
  11. Distillation does effectively remove gluten and the FDA has confirmed this and ruled that all distilled alcohol is gluten-free. Distilled alcohol is not considered “low gluten” like gluten removed beers, but completely gluten-free because distillation effectively removes all gluten.
  12. If you have DH iodine can be a trigger in some people, and certain sea food is higher in iodine. The DH blisters are normally tiny, but are usually full of clear liquid, and not cloudy.
  13. Both Helicobactor Pylori and celiac disease are well-studied, and if there were a causal link where Helicobactor Pylori triggered celiac disease, I believe that it would have been noticed by now in the many studies that have been done to find triggers of celiac disease. Here are a few studies we've summarized: https://www.celiac.com/search/?&q...
  14. It may be possible for you to continue to eat gluten for the rest of your life and remain asymptomatic, but it is also possible that the side effects/damage from doing so could add up and reach critical mass at some point, which could cause you anything from mild to severe health issues that could lower your quality of life, and even shorten it. We have...
  15. It's always good to re-examine her diet just to be sure that she's not getting any hidden gluten, for example does she eat out at restaurants? This is a common source of contamination. Also, is she getting enough fiber and starches in her diet? Too like of either can cause this issue.
  16. Eggs should be safe no matter what the chicken eats. I've never seen any tests or studies to show that eggs could contain any gluten. If you are still concerned you should be able to ask the farmer what they feed them, as I know there are soy-based feeds.
  17. I think it would be highly unlikely to get gluten contamination this way, unless you were to swallow a bunch of hair during your cut, which I doubt anyone would do. If you are seeing an actual barber who went to barber school they should also be cleaning the clippers between cuts, typically using a compressed air blower similar to what you use to put air...
  18. Are you getting enough starches and fiber in your diet? Too little of either can cause this. It's also always a good thing to re-examine your diet just to be sure hidden gluten is not creeping into it.
  19. Welcome back!! And I'm sorry if this forum is addictive! 😉 You mentioned that you added a "new food" just before this happened, so that is probably a good place to start. Is it a food that could be contaminated with gluten? Do you have other food allergies? Your description of the needle-like itching sounds a lot like how dermatitis herpetiformis ca...
  20. You may want to look at this research summary, as it does apply to your son's situation.
  21. Many celiacs are diagnosed with Helicobacter pylori around the time of their diagnosis, which was true in my case. It was likely caused by my untreated celiac disease, but I was also given an antibiotic for it at the time of my diagnosis (in hindsight I'm not sure antibiotics were the best approach given what I know now about what they do to healthy gut flora...
  22. Although cellulose is gluten-free, you certainly can have a separate issue with it, which you've discovered. This link is very helpful to find any hidden ingredients in medications, so hopefully you are able to find a version of your medication without cellulose.
  23. It seems to me that you've not read the published scientific research studies that @docaz has shared in this thread, which describe in detail exactly what AN-PEP enzymes are capable of doing--which is breaking down small amounts of gluten in the stomach BEFORE it reaches your intestines and causes damage. You acknowledge here that GliadinX might be capable...
  24. I would not call 8.1 on a 0-5 scale, or 6.8, "mildly high." They are solidly positive results for celiac disease, and I believe your doctor would be correct making the celiac disease diagnosis based on these results, especially given your family history of it. You didn't mention weather or not he was eating 2 slices of wheat bread per day for 6-8 weeks leading...
  25. It's really unfortunate that your doctor doesn't understand basic blood test procedures for celiac disease. The protocol is supported by the Mayo clinic, and it begins with an IgA test, which then determines the other tests to follow it, but in reality, most doctors just order the entire panel at once so you don't have to go back several times:
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