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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    I thing it would be a risk because they likely make everything in the same food preparation area, including stuffing, gravy with potential wheat flour in it, pies, etc. You could go in and speak with the people who make the food and perhaps they could carefully put this together for you and avoid cross-contamination, but your best bet would be to make...
  2. Scott Adams
    It sounds like you have an intolerance to soy, or perhaps an allergy to soy.
  3. Scott Adams
    Someone in a comment on an article here just mentioned this condition: Food protein-induced enterocolitis syndrome which I had not heard of before: https://acaai.org/allergies/allergic-conditions/food/food-protein-induced-enterocolitis-syndrome-fpies/
  4. Scott Adams
    If you do retest, be sure to eat gluten daily, at least two slices of wheat bread’s worth, for 6 to 8 weeks before the test. Also, there is a condition called non-celiac gluten sensitivity that up to 10 times more people have than celiac disease, but there are no tests for this condition yet. At some point it may make sense for you to try out a gluten-f...
  5. Scott Adams
    Collagen can help leaky gut, and so can glutamine, just be sure both say "gluten-free" on the label to be safe. Also, after a few weeks you may want to try to find fresh duck eggs to see if you can tolerate them.
  6. Scott Adams
    @DeannaM, it's possible your issue could be celiac disease related, if you are somehow getting trace amounts of gluten in your diet on a regular basis, for example if you eat outside your home regularly at restaurants or at the homes of non-celiacs. Definitely follow up with your doctor about this, and make sure your kidney function is good, but also re-examine...
  7. Scott Adams
    Try out any from this company: Open Original Shared Link
  8. Scott Adams
    Also, have you double checked your spam box to make sure they aren't going there?
  9. Scott Adams
    It's possible, as we did do an update recently. Can you go here and check what you are following and make sure there have been some new posts? Do you still have your email notifications turned on?
  10. Scott Adams
    In hindsight I could have healed much faster, but would eat out often because I lived in San Francisco and worked downtown. In the mid 90's restaurant staff was nearly clueless, and my questions around whether something had wheat in it or could be contaminated probably flew by them during a busy lunchtime rush. It took me while to figure out where and when...
  11. Scott Adams
    So hopefully your GP knows that most celiacs do not have symptoms, and you can't assume that this means there is no villi damage. Many studies have shown that people without symptoms still share the same health risks.
  12. Scott Adams
    I would only say that if I were in your shoes I'd be doing regular celiac disease blood tests and endoscopies. It's great if this works for you, however, just going by your gut feelings is a poor way to verify that this is actually working. It's a well known fact that some celiacs, after being gluten-free for a long time, go into remission and have little...
  13. Scott Adams
    This topic has only come up once, a long time ago, and it looks like nobody replied to it: I also found these two interesting research articles: https://pubmed.ncbi.nlm.nih.gov/3658806/ https://www.researchgate.net/publication/223957151_Celiac_Disease_and_Diabetes_Mellitus_Diagnosed_in_a_Pediatric_Patient_with_Hirschsprung_Disease Evidently...
  14. Scott Adams
    It seems very likely that this was the case, you probably have current and past family members who have, or had it, but were never tested and diagnosed.
  15. Scott Adams
    Have you had your thyroid levels checked? This is a pretty old thread, but may be helpful:
  16. Scott Adams
    Very interesting @mimizmamma! This category has past summaries of research articles on the topic of liver issues and celiac disease in case anyone wants to know more: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/
  17. Scott Adams
    @Jefferson Adams was joking about Mick contacting us, referencing the Stones song "Brown Sugar" which is the subject of the article.
  18. Scott Adams
    If you can get a copy of your blood test results, please share them with us, along with the reference ranges for a positive test result. Also, even if your tests turn out negative for celiac disease, you could still have non-celiac gluten sensitivity, which is ~10x more common, but there are no tests for it yet. It may still make sense for you to try...
  19. Scott Adams
    Given that there is no known cure for celiac disease, not even hookworms have proven in studies to allow you to eat gluten when you have celiac disease, it would definitely make sense for your doctor to do regular blood panels and probably even an annual endoscopy. Let us know how things go!
  20. Scott Adams
    Hang in there! I'm not sure where you are in the diagnosis process, but be sure to keep eating gluten daily until all celiac disease testing is finished, otherwise you may end up with false-negative results. You also could have non-celiac gluten sensitivity, and unfortunately there are no tests yet for this. The good news is that after your tests you...
  21. Scott Adams
    We've done several articles on this topic: https://www.celiac.com/search/?q=hookworm&quick=1&type=cms_records2 and as @trents mentioned, is your doctor doing celiac disease blood antibody screenings, as well as endoscopies, to make sure the autoimmune reaction isn't still ongoing since you're eating gluten?
  22. Scott Adams
    I think it would be worth asking if they did a blood test, and if so, try to get the results and share them here. Either way, note that there is a condition called non-celiac gluten sensitivity which around 10x more people have than celiac disease, and unfortunately they have not yet developed a test for it. It may make sense to just try out the gluten-free...
  23. Scott Adams
    Hello @dixonpete, so have you noticed any issues with hookworm infection? Did you do this through a medical doctor?
  24. Scott Adams
    The two blood test results you posted for celiac disease are strongly positive, and it looks like the biopsy results are positive as well, as "mildly atrophic mucosa was found in the duodenal bulb" is the area where damage from celiac disease occurs.
  25. Scott Adams
    Your results look VERY high, not "normal high," so let us know how the biopsy goes. I will mention that in Europe you would likely be diagnosed with celiac disease on this result alone and not need to do a biopsy, as they now diagnose if your blood test results are 10x or higher than the level for celiac disease.
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