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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Independent Livings and Assisted Livings
Scott Adams replied to Nikki2777's topic in Coping with Celiac Disease
I think a bigger fear for most celiacs, myself included, is what happens if we end up in a full care facility, where things like food are out of our control? -
I'm not against private donations for such things, however, these are private companies who aren't necessarily going to share their profits with those who donate if the are successful. However, one way to help such companies would be to purchase and hold their stock, as most of these companies are public and their stock is traded on various stock exchanges...
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I think a SIBO test is a good idea, and I also avoid all substitute sugars as I've noticed they all also cause issues. Another thing to consider would be the various gums used on gluten-free products, especially xanthan gum--many people have IBS issues with this: This article may also help you:
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Can’t diagnose problem.
Scott Adams replied to Mdevz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For most people getting tested is the best path to stay on a gluten-free diet, however, if you already know that you can't eat gluten, then going through a gluten challenge may not make sense for you, especially when you consider that the test doesn't work for non-celiac gluten sensitivity. If your celiac disease screened ended up with negative test results... -
What's the Status of New Celiac Disease Drug Treatments?
Scott Adams commented on Jefferson Adams's article in Diagnosis, Testing & Treatment
Most of the therapies being developed will not allow a celiac to eat a regular gluten diet, and are geared towards dealing with cross-contamination issues, which is a real problem for most celiacs.- 11 comments
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Newbie Info 101 - Start Here
Scott Adams replied to Scott Adams's topic in Coping with Celiac Disease
I agree with everything @trents said, and only want to mention that the risks of developing many of the associated conditions that may come with undiagnosed celiac disease decrease greatly once you are on a 100% gluten-free diet. -
Blood work for Celiac Question
Scott Adams replied to Oldie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This article may be helpful, but I would consider myself a possible celiac if I were you, and, based on your results, your doctor should order an endoscopy to confirm your diagnosis: Be sure to keep eating gluten daily for 2 weeks before an endoscopy, if your doctor orders this (which would be the normal next step). -
Celiac disease and Homozygous Hemochromatosis
Scott Adams replied to Diane Endicott's topic in Related Issues & Disorders
@DianeF hematocrit and red blood cell count are different than your hemoglobin levels, but you may want to ask your doctor if those levels were also checked. I am no expert on such issues, but I do have high hematocrit/red blood cell count and must do regular phlebotomies to treat it. High iron levels would not be a normal symptom of celiac disease... -
Celiac disease and Homozygous Hemochromatosis
Scott Adams replied to Diane Endicott's topic in Related Issues & Disorders
Is your hematocrit/red blood cell count high as well? -
On gluten-free diet… diagnosed with Duodenitis
Scott Adams replied to Condy's topic in Food Intolerance & Leaky Gut
We've had quite a few past posts on duodenitis, and you can find them here: https://www.celiac.com/search/?q=Duodenitis&quick=1 You may want to consider a celiac disease blood panel as well to see if you're getting any gluten in your diet, but this article may also be helpful: -
Welcome! We've had others post on urticaria, and a magnesium supplement could help: others have posted about this as well: https://www.celiac.com/search/?q=urticaria&quick=1
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Be sure to also have your doctor test you for diabetes, as frequent urination could be a symptom, and Type 1 diabetes among celiacs is quite common.
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My one foray to a restaurant was an eye opener
Scott Adams replied to LisaSan111's topic in Gluten-Free Restaurants
A few of us here use GliadinX whenever we eat outside our homes, they are a sponsor here, and their AN-PEP based enzymes have been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches the intestines. Of course it's best to just not eat out, however, for many people this isn't a realistic option. This may... -
Independent Livings and Assisted Livings
Scott Adams replied to Nikki2777's topic in Coping with Celiac Disease
I'm surprised that care facilities haven't begun focusing on the gluten-free niche to grow their businesses, and it seems that things haven't changed very much since we published this article: -
Today is National Celiac Disease Awareness Day, help to raise celiac disease awareness all day today!!
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untilHelp to raise celiac disease awareness all this month. May is officially Celiac Disease Awareness Month!
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Gluten free summer camp
Scott Adams replied to Lana H.'s topic in Parents, Friends and Loved Ones of Celiacs
This is a 100% gluten-free camp: http://celiaccamp.com/ -
New ‘member of the club’
Scott Adams replied to Pam Couling's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! If something says gluten-free on the label it normally is, but the example of the walnuts you gave is pretty odd. If there is a real possibility of contamination in their packing facility then they should not be labelling it gluten-free. This article may be helpful: Did you ever get tested for celiac disease, or... -
Bread Machine Tips, Tricks and Techniques
Scott Adams commented on LynnRae Ries's article in Summer 2003 Issue
I don't think it would be safe to use the same bread machine for both gluten and gluten-free breads.- 2 comments
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Help please
Scott Adams replied to felicity31r's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hopefully you avoid eating in restaurants, as they can be a common source of contamination. This article may be helpful: