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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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I’ve always been skeptical of widespread PPI use and making the available without a prescription. they may relieve some symptoms in many cases, but in the long term for, for most people anyway, they will cause more problems than they might solve.
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- celiac disease
- celiac posterboy
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NEW TO CELIAC DISEASE
Scott Adams replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That makes more sense...yes, the tTg result looks fine. The IGA is done just to check if you are IGA deficient, and you are not. -
H pylori
Scott Adams replied to Patricia Hubbard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also had H Pylori at the time of my diagnosis, and it was likely caused by the severe gut damage that I had at that time, although it's not exactly clear which came first, the H Pylori or celiac disease. -
NEW TO CELIAC DISEASE
Scott Adams replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes and no...those without any issues with gluten would likely not score 2.8, so there is still some evidence that your body is mounting an autoimmune response to gluten, but it may not be strong enough at this point to call it celiac disease. Also, were you eating at least 2 slices of wheat bread per day for 6-8 weeks before this test? If not, this... -
Independent Livings and Assisted Livings
Scott Adams replied to Nikki2777's topic in Coping with Celiac Disease
I think a bigger fear for most celiacs, myself included, is what happens if we end up in a full care facility, where things like food are out of our control? -
I'm not against private donations for such things, however, these are private companies who aren't necessarily going to share their profits with those who donate if the are successful. However, one way to help such companies would be to purchase and hold their stock, as most of these companies are public and their stock is traded on various stock exchanges...
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I think a SIBO test is a good idea, and I also avoid all substitute sugars as I've noticed they all also cause issues. Another thing to consider would be the various gums used on gluten-free products, especially xanthan gum--many people have IBS issues with this: This article may also help you:
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Can’t diagnose problem.
Scott Adams replied to Mdevz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For most people getting tested is the best path to stay on a gluten-free diet, however, if you already know that you can't eat gluten, then going through a gluten challenge may not make sense for you, especially when you consider that the test doesn't work for non-celiac gluten sensitivity. If your celiac disease screened ended up with negative test results... -
What's the Status of New Celiac Disease Drug Treatments?
Scott Adams commented on Jefferson Adams's article in Diagnosis, Testing & Treatment
Most of the therapies being developed will not allow a celiac to eat a regular gluten diet, and are geared towards dealing with cross-contamination issues, which is a real problem for most celiacs.- 11 comments
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- celiac disease
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Newbie Info 101 - Start Here
Scott Adams replied to Scott Adams's topic in Coping with Celiac Disease
I agree with everything @trents said, and only want to mention that the risks of developing many of the associated conditions that may come with undiagnosed celiac disease decrease greatly once you are on a 100% gluten-free diet. -
Blood work for Celiac Question
Scott Adams replied to Oldie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This article may be helpful, but I would consider myself a possible celiac if I were you, and, based on your results, your doctor should order an endoscopy to confirm your diagnosis: Be sure to keep eating gluten daily for 2 weeks before an endoscopy, if your doctor orders this (which would be the normal next step). -
Celiac disease and Homozygous Hemochromatosis
Scott Adams replied to Diane Endicott's topic in Related Issues & Disorders
@DianeF hematocrit and red blood cell count are different than your hemoglobin levels, but you may want to ask your doctor if those levels were also checked. I am no expert on such issues, but I do have high hematocrit/red blood cell count and must do regular phlebotomies to treat it. High iron levels would not be a normal symptom of celiac disease... -
Celiac disease and Homozygous Hemochromatosis
Scott Adams replied to Diane Endicott's topic in Related Issues & Disorders
Is your hematocrit/red blood cell count high as well? -
On gluten-free diet… diagnosed with Duodenitis
Scott Adams replied to Condy's topic in Food Intolerance & Leaky Gut
We've had quite a few past posts on duodenitis, and you can find them here: https://www.celiac.com/search/?q=Duodenitis&quick=1 You may want to consider a celiac disease blood panel as well to see if you're getting any gluten in your diet, but this article may also be helpful: -
Welcome! We've had others post on urticaria, and a magnesium supplement could help: others have posted about this as well: https://www.celiac.com/search/?q=urticaria&quick=1
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Be sure to also have your doctor test you for diabetes, as frequent urination could be a symptom, and Type 1 diabetes among celiacs is quite common.
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My one foray to a restaurant was an eye opener
Scott Adams replied to LisaSan111's topic in Gluten-Free Restaurants
A few of us here use GliadinX whenever we eat outside our homes, they are a sponsor here, and their AN-PEP based enzymes have been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches the intestines. Of course it's best to just not eat out, however, for many people this isn't a realistic option. This may... -
Independent Livings and Assisted Livings
Scott Adams replied to Nikki2777's topic in Coping with Celiac Disease
I'm surprised that care facilities haven't begun focusing on the gluten-free niche to grow their businesses, and it seems that things haven't changed very much since we published this article: -
Today is National Celiac Disease Awareness Day, help to raise celiac disease awareness all day today!!
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untilHelp to raise celiac disease awareness all this month. May is officially Celiac Disease Awareness Month!