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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Gluten free summer camp
Scott Adams replied to Lana H.'s topic in Parents, Friends and Loved Ones of Celiacs
This is a 100% gluten-free camp: http://celiaccamp.com/ -
New ‘member of the club’
Scott Adams replied to Pam Couling's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! If something says gluten-free on the label it normally is, but the example of the walnuts you gave is pretty odd. If there is a real possibility of contamination in their packing facility then they should not be labelling it gluten-free. This article may be helpful: Did you ever get tested for celiac disease, or... -
Bread Machine Tips, Tricks and Techniques
Scott Adams commented on LynnRae Ries's article in Summer 2003 Issue
I don't think it would be safe to use the same bread machine for both gluten and gluten-free breads.- 2 comments
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Help please
Scott Adams replied to felicity31r's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hopefully you avoid eating in restaurants, as they can be a common source of contamination. This article may be helpful: -
What Brands of Makeup and Cosmetics are Gluten-Free?
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
We removed IT Cosmetics from this listing. -
Feria Extreme Platinum hair dye glutening
Scott Adams replied to Deana-D's topic in Super Sensitive People
Welcome to the forum and I'm sorry to hear that you got DH from your hair dye. I found this article which may be helpful: https://www.theceliacdiva.com/gluten-free-hair-dye/ -
Blood in Stool
Scott Adams replied to Lbutler321's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did have blood in my stool as a symptom of celiac disease, and it was usually present in a puss-like substance. I do think you should get a blood test for celiac disease regardless of your biopsy results so you can rule out celiac disease, however, the results would not rule out non-celiac gluten sensitivity. -
Celiac disease
Scott Adams replied to Elenach96's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just like it takes time to heal after going gluten-free, it can take weeks to re-damage your villi, and one accident isn’t enough. If you ate more gluten for a longer time, I suspect your symptoms would return, as well as the damage. -
Yes, a piece of cardboard should not have any gluten in it, and even if it did would not be able to contaminate a box of gluten-free food to a level that it would end up over 20ppm. Cardboard is a very stable thing that does not shed particles unless it's very old and weathered.
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follow up endoscopy post dx
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've never had a follow up endoscopy after my initial one that was used to diagnose me, so none of my doctors in the last 26+ years have followed the protocol for treating celiac disease patients (all of my doctors have known that I have CD). Unfortunately we've learned via many other forum members here that my experience is the norm, rather than the exception... -
Diagnosis query
Scott Adams replied to Nadia Whiffin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In Europe they are currently diagnosing celiac disease if a tTg test result is 10x the normal positive level for celiac disease, without doing any biopsy. If I were you I'd go gluten-free no matter what your biopsy outcome is, as your blood test results indicates that you are having a strongly positive autoimmune reaction to gluten. -
Solaray HCL with Pepsin
Scott Adams replied to ellagirl1969's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree, maltodextrin in the USA is most likely made from corn, however, since this is a supplement I believe they would not need to include wheat as an allergen on the ingredients if for some reason it came from wheat, but to be certain you'd need to contact them. -
Phil’s Power Pancake of Costa Mesa, CA is recalling its 5 oz. packages of individually wrapped Power Pancakes in all 5 varieties (Mango, Raspberry, Cranberry, Dates, and Chocolate Chip Hempseed) because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction i...
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Anyone here have problems with barium swallow?
Scott Adams replied to SadFace's topic in Related Issues & Disorders
Others here have reported issues with barium: https://www.celiac.com/search/?q=barium&quick=1 and if you have the brand name you could search for it here to see if it contains gluten or to find out what other ingredient might be causing you issues: https://dailymed.nlm.nih.gov/dailymed/ -
Welcome @Bobs1234! Given how severe your symptoms are, and the fact that you've already confirmed that they are due to gluten ingestion, do you actually need a formal diagnosis of celiac disease to stay on a gluten-free diet? To me, it sounds like you'll probably stay gluten-free not matter what the doctors tell you, right? At the very least you...
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Birth Control
Scott Adams replied to Ksherrets's topic in Gluten-Free Foods, Products, Shopping & Medications
A quick search here indicates that it does not contain any gluten ingredients, if that is what you are asking about here. https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=dcbd6aa2-b3fa-479a-a676-56ea742962fc -
Interpretation of Celiac Disease Blood Test Results
Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
Welcome @OregonDonna, I recommend that you create a new topic here, and share your full blood test results, along with the reference ranges for a positive result: https://www.celiac.com/forums/forum/13-celiac-disease-pre-diagnosis-testing-symptoms/- 88 comments
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gluten-free Bread
Scott Adams replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
Let us know how things go. -
Fuelling exercise -corn and other gluten free grains
Scott Adams replied to Gilly M's topic in Food Intolerance & Leaky Gut
We're publishing older articles from our paper Journal of Gluten Sensitivity, and this one has a good summary of alternative grains: -
Fuelling exercise -corn and other gluten free grains
Scott Adams replied to Gilly M's topic in Food Intolerance & Leaky Gut
I eat corn and quinoa, and many celiacs do as well. From your post it's not clear if you've been gluten-free or not, or if you ever got an official diagnosis of celiac disease. Note that you may also have non-celiac gluten sensitivity, for which there isn't a test, but ~10x more people have it than have celiac disease. Your many symptoms sound like classic...