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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Newly diagnosed
Scott Adams replied to Bill1991's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I suffered from vertigo, which was so bad around the time of my diagnosis that I went to the emergency room a couple of times thinking that I was having a stroke or heart attack. I also had panic attacks, and looking back, the vertigo symptoms are what seemed to set off the panic attacks. The good news, in my case at least, was that those symptoms went... -
Welcome to the forum! Can I ask where you are getting this stool test done? I know that Dr. Kenneth Fine pioneered this test, so hopefully it's with his lab, but I can say that most of the people who participate in this forum do the blood tests, as they are considered the standard. Do you have the reference ranges for the tests? We would need to...
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If you've noticed a correlation with your symptoms when you eat large amounts of gluten, then at the least you likely have non-celiac gluten sensitivity, and unfortunately there is no test for this, although it is ~10x more common than celiac disease. If you don't want to go through the trouble of getting re-tested for celiac disease, which would mean...
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Help!!!
Scott Adams replied to Heather234's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like a negative celiac disease test, but as @trents mentioned, would not rule out NCGS. If you go this test done due to unexplained symptoms, you may still want to try a gluten-free diet for a few weeks or months to see if it helps with your symptoms. If you have no symptoms and you have this negative test, you likely don't need to worry about gluten... -
Target doesn't make its own sugar, they just have it co-packaged in their packages. I suspect it's made by one of the big sugar companies, but it could be hard to find out which one. Barley, possibly in the form of malt sugar may be a possible cross-contact, but it would be surprising to me if a cane sugar factory also processed malt sugar. Perhaps...
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To me it sounds like you've already identified wheat as a culprit for some or all of your symptoms. You could do a gluten challenge as @trents mentioned and get another blood panel done, or your could just go gluten-free. If your aunt has it your odds of having it are higher, and you already know that you have the genetic markers that make celiac disease...
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Nausea and Gas
Scott Adams replied to lehum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum! If you're sure about not getting any gluten in your diet, and for this I will assume that you're not eating outside your home, especially in restaurants, the next step is to see if you have any other intolerances or food sensitivities, for example to oats, casein/dairy, corn, soy, etc. You may need to keep a food diary to figure... -
Welcome to the forum! When you took the celiac blood test years ago were you eating gluten daily beforehand? If not, it could explain your negative results, even if you do have celiac disease. As @trents mentioned, NCGS could also be causing some or all of your symptoms. Have you ever tried a gluten-free diet? If your doctor is unwilling to test you...
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Please help interpret SNPs
Scott Adams replied to Ippodrom234's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not sure we have any genetic "experts" here who would be able to go into this in detail, but this article has some general info? It looks like you have the genetic makeup to possibly get celiac disease, but I could not tell your overall risk from what you posted. Have you spoken to the lab who did the test and gave you these results? They should... -
In my case bloating went away in the 6-12 month time period after going gluten-free. Of course bloating can be caused by many things, so it is possible that you have an additional food intolerance, for example to milk, oats, corn, etc., so you may want to keep a food diary to see if you can find a connection. Not enough or too much fiber can also cause...
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Wines
Scott Adams replied to razzle5150's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think so because wine is considered to be naturally gluten-free. More about that is in this article: -
It looks like they offer many different products under their "Good & Gather" brand, so you would need to look at each one individually to determine if it's safe. As far as their sugar goes, it would surprise me a lot if Good & Gather granulated or brown sugar had any gluten in it, but, of course, it's not impossible. I assume there is nothing...
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Are some of us over doing our Protein intake ??
Scott Adams replied to Jackie Garrett's topic in Related Issues & Disorders
You can find articles about anything online, these are not peer-reviewed scientific publications, they are simply articles talking about this acid/ash hypothesis. A hypothesis is simply an idea that needs to be investigated through scientific inquiry, experiments, and data gathering, but none of this has happened with this idea, and in fact, you can find... -
Celiac.com reports on stories that are of interest to those with celiac disease or gluten sensitivity, and this story certainly falls under our purview. We're not political, nor have we taken any political position by reporting this story. We've covered many similar stories in the past and will continue to do so.
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I believe the original poster was diagnosed at some point with celiac disease and are having a hard time with the gluten-free diet, but that isn't 100% clear. Unfortunately these food allergy tests won't help with celiac disease, but may be helpful in discovering food allergies.
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Two Savvy Moms Launch Gluten-free Condom Brand
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
I agree...it seems like overkill, and I also wonder if any other brands actually contain any gluten?- 5 comments
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Help
Scott Adams replied to M and m 14's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome! Everything does seem overwhelming at first, and it's too bad your doctor wasn't able to guide you more, but at least you found this site, and we'll do our best to help you. -
Endoscopy Tomorrow
Scott Adams replied to KittenPA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let us know how it turns out, and keep in mind that a negative biopsy won't necessarily 100% rule out celiac disease, given your positive blood test. There is also non-celiac gluten sensitivity, for which there is no test yet, but ~10x more people have it than have celiac disease. In summary, you may want to try the gluten-free diet for a few months even... -
Is Hair Loss Related, Any Good Advice?
Scott Adams replied to Ginger38's topic in Related Issues & Disorders
The simplest explanation is that gliadin, which is in gluten, triggers an autoimmune response in those with celiac disease that causes the body to produce antibodies that can "attack" various parts of the body and trigger inflammation, and the areas of the body that are most susceptible are usually the gut, skin or brain/nervous system, depending on the person... -
Are some of us over doing our Protein intake ??
Scott Adams replied to Jackie Garrett's topic in Related Issues & Disorders
Again, I know you believe these ideas, but I've shared with you articles from reputable sites, and within each are many links to other sources, which indicate that science does not support the idea that you can "alter ph of the blood through what we eat/ drink," or that "following a diet with less acids/ man made acids in puts less pressure on our organs... -
I don't recall ever "distrusting" any cup of coffee...😉 I am not saying that cross-contamination is impossible, but very unlikely, especially for the big coffee companies, as the machinery, processing, where it is grown, etc., have little to do with wheat or wheat products. I prefer Peet's which I get a Costco. For those who want to be sure about no...