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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    Did you ever find a doctor in your area? If so, please share...thank you!
  2. Scott Adams
    Did you ever find a doctor in your area? If so, please share...thank you!
  3. Scott Adams
    Did you ever find a doctor in your area? If so, please share...thank you!
  4. Scott Adams
    Did you ever find a doctor in your area? If so, please share...thank you!
  5. Scott Adams
    Did you ever find a doctor in Chicago? If so, please share...thank you!
  6. Scott Adams
    Did you ever find a doctor in Seattle? If so, please share...thank you!
  7. Scott Adams
    PS - Did you see this?
  8. Scott Adams
    Did you ever find a celiac disease doctor in Cincinnati? If so please share it here...
  9. Scott Adams
    Since vitamin D is one of those vitamins that can cause toxicity in large quantities over time, you should probably check with a doctor. That said, as an adult I have to take 4,000 IU per day, twice the recommended amount, for my levels to stay within normal (don't give her this much!). Sorry this did not get answered for so long!
  10. Scott Adams
    I am sorry that nobody replied to you for so long, and I hope that you found more information about this. As far as treatment for RCD goes, please have a look at the articles here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/
  11. Scott Adams
    There have been many celiacs over the years who have worked around gluten in kitchens without issues. That said, there are also many sensitive individuals, especially those with dermatitis herpetaformis, who do report issues. How did this turn out for you? Sorry it took so long to reply!
  12. Scott Adams
    I don't speak French, but have you searched the French Wikipedia?
  13. Scott Adams
    Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!
  14. Scott Adams
    This is an amazing story--congratulations on your road to recovery! Unfortunately the majority of those with celiac disease are still undiagnosed, even though the devastating effects on the nervous system in many gluten sensitive individuals are now well known. The saddest part of the story is that it took so long for you to figure it out, but better...
  15. Scott Adams
    It's certainly possible that it is DH. Did you ever get a biopsy done to confirm it? Are you still gluten-free? If it is DH a strict gluten-free diet for many months is the best treatment.
  16. Scott Adams
    I've had it many times and it's great. I also like the Trader Joe's gluten-free mac-n-cheese.
  17. Scott Adams
    I am surprised that nobody replied to this. Is the diet also gluten-free? Can you tell us more about it?
  18. Scott Adams
    This has been in the news a lot lately, and shows great promise. I hope it pans out!
  19. Scott Adams
    I used to get this within an hour of eating gluten, not always, but off and on depending on what I ate--bagels were a trigger. If you symptoms were caused by gluten sensitivity, they should go away after a few weeks on a GFD. Are you still gluten-free?
  20. Scott Adams
    Sorry it took so long for someone to reply, and unfortunately I'm not a woman and able to address some of your post here, but if sensitive to it, gluten can cause a huge variety of symptoms, and I would not doubt it if all you've mentioned here could be caused by gluten sensitivity. How did your gluten-free diet go? Did you continue it, and if so, did...
  21. Scott Adams
    It sounds interesting, but would it not be better to try to find the root cause of the pain?
  22. Scott Adams
    Interesting, and this sounds like a trick question. So if you've been on a gluten-free diet for 6 years, can I assume that the blood tests you did were while you were on the diet? That would explain why they were negative. One must be getting a fair amount of gluten in their diet, and be sensitive to it, to have positive blood tests. So the hard part...
  23. Scott Adams
    I'm sorry you didn't get a fast reply, normally we do better. A formal diagnosis of celiac disease can only be made while someone is eating gluten, typically on a daily basis at least 2 months before testing. Only you know how badly it will affect her, and must decide whether or not it is worth it. The biggest issue for someone so young is whether or...
  24. Scott Adams
    I hope you figured this out, and I'm sorry you got no reply for so long. Without more info about your blood test results it is difficult to know your next steps, but the latest research indicates that people can be accurately diagnosed with celiac disease using only blood tests. That said, it is up to your doctor whether or not to recommend a biopsy.
  25. Scott Adams
    I'm not sure about the sexual part of your question, as I've never head neuropathy described this way, but I do have some issues with it in my feet, which do tingle when it happens. I've been supplementing B vitamins and especially B12, which has been helpful. Since you have had high ttg scores I will assume that you are on a gluten-free diet, and if...
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