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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I was recently told by a wheat straw company that their products are safe and naturally gluten-free, although I've never seen any tests to verify this. Here is their reply to my email:
  2. Scott Adams
    I agree that IgA level may fluctuate to some degree, but for those who are genetically deficient it will always be low, and in this case any IgA celiac screening will likely be incorrect (usually false negative). I want to emphasize that this test should always be included in a celiac panel but is often omitted, which can skew results and lead to missed diagnoses...
  3. Scott Adams
    If you've had your total IGA levels done twice in the past and they were normal, it isn't likely that will change. It's my non-doctor understanding that you are either total IGA deficient or you are not, and this will not change over your lifetime.
  4. Scott Adams
    Yes, this is typically referred to as a panic attack, and these can be fairly common on undiagnosed celiacs who still eat gluten. I had this symptom for years before being diagnosed.
  5. Scott Adams
    For this I would go with what your doctor recommends, is that who recommended the 5 MG folic acid? A good B Complex is usually the best approach with B vitamins, but be sure to ask your doctor.
  6. Scott Adams
    Changes in the white matter of the brain can be part of long term celiac disease, and here are some articles where this is discussed: https://www.celiac.com/search/?q="white matter"&quick=1&type=cms_records2&updated_after=any&sortby=relevancy These two in particular:
  7. Scott Adams
    The blacking out sounds a lot like panic attacks, which can be a symptom of celiac disease.
  8. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  9. Scott Adams
    If you think you might have Guillain-Barre syndrome you should definitely seek medical attention, as it could be serious. Gluten ataxia is a condition that some people with celiac disease get due to nerve damage caused by eating gluten, but only a medical expert would be able to tell you the cause of your specific issues.
  10. Scott Adams
    It does get better, and I'm sorry to hear that you're so stressed out. It's hard to see the bright side sometimes, but in your case you've finally figured out the source of many years of misery. I went through a similar ordeal and it took me years of going to doctors before I finally figured it out. You main focus now should be staying 100% gluten-free...
  11. Scott Adams
    It looks very comprehensive...may I ask what you plan to use this for?
  12. Scott Adams
    If your symptoms are that bad, and you are sure that they are caused by gluten, then perhaps you don't need a formal diagnosis? You could just go gluten-free and see if your symptoms improve, and if so, stay gluten-free. I don't want to discourage anyone from getting a formal diagnosis, but unfortunately the only way to get this is to do further damage to...
  13. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful: Also, you only need to eat gluten daily, lots of it, for 2-3 weeks before your endoscopy, so you may want to test out a gluten-free diet if you think it might be...
  14. Scott Adams
    I added the Fasano paper link within our article...thanks @RMJ!
  15. Scott Adams
    One week is definitely not enough time. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  16. Scott Adams
    Yes, all products labelled "gluten-free" are considered safe for those with celiac disease. My family regularly uses Trader Joe's gluten-free products without issues, including their bagels, buns, breads, tortillas, frozen pizzas, etc.
  17. Scott Adams
    Untreated celiac disease can cause such issues, however, if you've been 100% gluten-free for a long time and have recovered (and don't get regular gluten contamination), then these symptoms could also be related to nutrient deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition...
  18. Scott Adams
    It's understandable to have concerns about undergoing an endoscopy, especially with occasional coughing episodes. Since your GP recommended checking with the endoscopy team, it's best to communicate directly with them to ensure that proceeding with the procedure is safe and appropriate for your current health status. They can assess your specific situation...
  19. Scott Adams
    I would not rely on that site for info, as I don't believe it is regularly updated. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of...
  20. Scott Adams
    Since you just recently started a gluten-free diet a bit over a month ago, it may take you longer to recover. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However...
  21. Scott Adams
    I agree, and the only meats you might need to worry about would be processed ones like lunch meats, salami, etc., that my have fillers in them which contain gluten. Fresh meats that are not processed with added ingredients should be safe.
  22. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  23. Scott Adams
    Many of your symptoms could certainly be related to gluten sensitivity or undiagnosed celiac disease, and it's unfortunate that your doctor didn't follow the testing Mayo Clinic recommended testing protocol for celiac disease and do a full panel, including total IGA. Since your doctor is convinced you don't have it, even though you have an uncle with...
  24. Scott Adams
    In general studies have shown that tTg-IgA levels have a correlation with villi damage in those with celiac disease, and your levels are in the "weak positive" range, which could mean that you are in the early stages of developing celiac disease, or that you haven't been eating much gluten before you took the test. I would consider trying a gluten...
  25. Scott Adams
    Has she had blood panels done for celiac disease?
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