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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Ok, but did you see the info I posted? The site I posted is a government web site that is free, and is far more accurate.
  2. Scott Adams
    Before doing the test you may want to ask the lab whether or not you need to eat gluten before the test is done. I'm not sure what the protocol would be for such a test.
  3. Scott Adams
    More information about "Just Diagnosed with Celiac Disease? Don't Panic, Your Health Will Soon Improve"
    Celiac.com 05/04/2024 - Congratulations on taking the proactive step to undergo a celiac disease blood panel and/or endoscopy! While receiving positive celiac results can initially be overwhelming, it's essential to recognize that you...
  4. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:
  5. Scott Adams
    Another marker in the research stage is cytokine levels.
  6. Scott Adams
    Currently this is in the research phase, but zonulin levels may one day be a way to measure a gluten reaction:
  7. Scott Adams
    If your tTg-IgA levels were normal, then your doctor won't likely order any further testing, but, you already have your answer, don't you? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. This a...
  8. Scott Adams
    Good to know, and you sharing any other information here would not be "clogging up" our board. Many members and those who search for products will find what you share very useful for years to come.
  9. Scott Adams
    It's hard to say what could have caused you to feel bad after going gluten-free, but the most likely culprit would be getting some gluten contamination (do you eat out in restaurants--this is a common source of contamination), or gluten withdrawals, which most celiacs get to some degree after giving up gluten. This article has some detailed information...
  10. Scott Adams
    I agree, and would only add that all manufacturers have quality control cleanings between each run on their machinery, and if things are made using shared equipment must include this on their packaging, even if the risk of actual contamination is very small.
  11. Scott Adams
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  12. Scott Adams
    It makes sense for them to have you keep eating gluten until all tests are completed, and it sounds like you may now be at that stage (but ask them if the plan on more tests). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet i...
  13. Scott Adams
    Good question, and I must assume that they have some cleaning process for them which would remove that, although I cannot speak for the company. This is the only reply I got from them, and only they can make this gluten-free claim about their products. For those who are super sensitive it is likely best to use a plastic straw, or better yet, no straw at all...
  14. Scott Adams
    This is a very old post, and the ingredients have now changed and Lipton Onion Soup Mix is no longer gluten-free: We have a gluten-free recipe for this here:
  15. Scott Adams
    Unfortunately without the reference ranges there isn't a way to be sure. Is there any way you can get these ranges? It seems strange that they would be excluded from your results. Just FYI, approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a g...
  16. Scott Adams
    I was recently told by a wheat straw company that their products are safe and naturally gluten-free, although I've never seen any tests to verify this. Here is their reply to my email:
  17. Scott Adams
    I agree that IgA level may fluctuate to some degree, but for those who are genetically deficient it will always be low, and in this case any IgA celiac screening will likely be incorrect (usually false negative). I want to emphasize that this test should always be included in a celiac panel but is often omitted, which can skew results and lead to missed diagnoses...
  18. Scott Adams
    If you've had your total IGA levels done twice in the past and they were normal, it isn't likely that will change. It's my non-doctor understanding that you are either total IGA deficient or you are not, and this will not change over your lifetime.
  19. Scott Adams
    Yes, this is typically referred to as a panic attack, and these can be fairly common on undiagnosed celiacs who still eat gluten. I had this symptom for years before being diagnosed.
  20. Scott Adams
    For this I would go with what your doctor recommends, is that who recommended the 5 MG folic acid? A good B Complex is usually the best approach with B vitamins, but be sure to ask your doctor.
  21. Scott Adams
    Changes in the white matter of the brain can be part of long term celiac disease, and here are some articles where this is discussed: https://www.celiac.com/search/?q="white matter"&quick=1&type=cms_records2&updated_after=any&sortby=relevancy These two in particular:
  22. Scott Adams
    The blacking out sounds a lot like panic attacks, which can be a symptom of celiac disease.
  23. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  24. Scott Adams
    If you think you might have Guillain-Barre syndrome you should definitely seek medical attention, as it could be serious. Gluten ataxia is a condition that some people with celiac disease get due to nerve damage caused by eating gluten, but only a medical expert would be able to tell you the cause of your specific issues.
  25. Scott Adams
    It does get better, and I'm sorry to hear that you're so stressed out. It's hard to see the bright side sometimes, but in your case you've finally figured out the source of many years of misery. I went through a similar ordeal and it took me years of going to doctors before I finally figured it out. You main focus now should be staying 100% gluten-free...
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