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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. I'm sorry to hear about your experience with enlarged lymph nodes. It's common for lymph nodes to become reactive in response to various factors, including inflammation or immune responses. Since you've been gluten-free for two months and your blood counts are normal, it's a positive sign. Since your lymph node enlargement may not be related to celiac disease...
  2. I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms?
  3. If you were just diagnosed I can say that if you go 100% gluten-free should should see dramatic improvement of your symptoms over the next few months, but the hard part is to stay gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  4. Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
  5. For the vast majority of celiacs it's probably safe, however, it seems that for those who are super sensitive it's best to avoid such products. It's fairly easy now to find brands that are naturally gluten-free, which is what Celiac.com recommends. You might finds this article interesting:
  6. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  7. Have you tried calling the Celiac Disease Foundation about this? Their number is 844-593-8169.
  8. Only the manufacturer would know if it's gluten-free, so if it says free of gluten, then it is likely safe. This company makes a gluten-free line of cosmetics, and has been a sponsor here before: https://www.epilynx.com/
  9. There are plenty of gluten-free carbs you can eat, so that should not be an issue. Corn, potatoes, and everything on this list is safe:
  10. Welcome the forum. In order to screen for celiac disease you would need to be eating gluten daily, a lot of it (usually they recommend at least 2 slices of wheat bread daily) for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first...
  11. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:
  12. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:
  13. Given that you had a positive blood test for celiac disease, if you also have villous atrophy the likely culprit would definitely be celiac disease, and not SIBO. Villous atrophy is a hallmark of celiac disease, but it can also be caused by SIBO and other conditions. Proper diagnosis often requires a multidisciplinary approach involving gastroenterologists...
  14. Feel free to share your test results here, along with the reference ranges for the tests, and I think you need to delay this test and do a proper gluten challenge. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per...
  15. I agree, but am not willing to stop travelling do to celiac disease--or eating at restaurants. I realize some people do make choices not to do those things, but for me those things are just too important. We have a section on gluten-free travel: https://www.celiac.com/celiac-disease/gluten-free-travel/
  16. High levels of alkaline phosphatase (ALP) in the blood can have various causes, including liver or bone issues, and are not directly related to celiac disease or Thiamine (vitamin B1) supplementation. However, it's essential to consult with a healthcare professional before starting any new supplement regimen, especially if you have existing medical conditions...
  17. You would need to contact the NCA about this.
  18. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive...
  19. Be sure to keep eating gluten daily until all testing is completed. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  20. You can always do the gluten challenge later, after your pregnancy, should you need a formal diagnosis. I think it's best to play it safe in this case.
  21. It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity...
  22. Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/
  23. There is a product call Quinoa Flakes that might be a good substitute for oats.
  24. I would assume that he used gluten-free beer, otherwise he could not win the gluten-free category of this contest.
  25. How much gluten daily were you eating before your blood panel was taken? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
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