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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    RCD2 is Refractory Celiac Disease Type II.
  2. Scott Adams
    So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at...
  3. Scott Adams
    There is some interesting research that hope continues which indicates that zonulin serum levels may one day help diagnose NCGS:
  4. Scott Adams
    This study also focuses on microbial transglutaminase reacting with gliadin, and possibly being a trigger of celiac or other autoimmune diseases. It is unclear if someone with celiac disease who is gluten-free will have issues with microbial transglutaminase. The reaction they are studying here is how microbial transglutaminase interacts with gliadin: ...
  5. Scott Adams
    I disagree with this new recommendation, as low vitamin D levels can be linked to many health conditions which may not get diagnosed if D levels are not checked. https://www.medscape.com/viewarticle/dont-screen-vitamin-d-new-endo-society-guideline-2024a1000aez
  6. Scott Adams
    This article may be helpful:
  7. Scott Adams
    This article, and the comments below it, may be helpful:
  8. Scott Adams
    Welcome to the forum. No, Dapsone use can affect the accuracy of blood tests for celiac disease in someone with Dermatitis Herpetiformis (DH). Dapsone suppresses the skin symptoms but does not affect the intestinal damage. However, it can lead to lower levels of antibodies like tTg-IgA, potentially causing false-negative results during a gluten challenge...
  9. Scott Adams
    More information about "Exploring the Link Between Microscopic Colitis and Celiac Disease: Insights from a Large-Scale Analysis"
    Celiac.com 06/06/2024 - Microscopic colitis is a type of chronic inflammatory bowel disease characterized by persistent watery diarrhea, abdominal pain, cramps, bloating, weight loss, nausea, fecal incontinence, and dehydration. It comprises...
  10. Scott Adams
    Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.
  11. Scott Adams
    In Asian meatballs they use tapioca flour to hold them together, which works very well.
  12. Scott Adams
    I would include a good quality B complex as well because low B12 levels, or issues metabolizing it, can also lead to those symptoms.
  13. Scott Adams
    It's possible, and to be safe I modified my initial reply. I think you'll need to visit websites for allergen info, and/or call the makers directly to figure out which might be the best one for you. Someone else here may reply and know more about this.
  14. Scott Adams
    This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free...
  15. Scott Adams
    Actually the enzyme in GliadinX, AN-PEP, was originally used as a clarifying agent called "Clarex" that was used by some major brewers to speed up the brewing process: https://www.dsm.com/food-beverage/en_US/ingredients/beverages-and-brewing/brewing/brewers-clarex.html# It would likely be best to get a beer that has been rendered gluten-free using...
  16. Scott Adams
    Yes, you can believe this, and many people have reported drinking regular beer for years but having not damaged villi or elevated blood antibody tests. However, the problem is that there are different sensitivity levels among celiacs, and some do react to very low levels of gluten. This article is interesting, as it covers "gluten-removed" beers which still...
  17. Scott Adams
    I agree that supplementation can help. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a...
  18. Scott Adams
    In the USA you can deduct the extra cost of gluten-free foods over the year vs. regular foods, but the process is tedious and most people don't do it. Here are some articles we've done on this topic: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/tax-deductions-for-gluten-free-food/
  19. Scott Adams
    Yes, this can be common in celiac disease. Is your diet 100% gluten-free? How long have you been gluten-free? When you consume gluten, it can damage the lining of your small intestine, leading to malabsorption of nutrients and causing symptoms like diarrhea and undigested food in your stool. To me it sounds like your intestinal damage hasn't healed. Many...
  20. Scott Adams
    Cross-contamination with gluten can still cause damage to the intestines even if you don't feel immediate symptoms. For those with celiac disease, any exposure to gluten can trigger an immune response that leads to inflammation and damage to the intestinal lining, which can hinder your progress and overall health. It's crucial to maintain strict gluten-free...
  21. Scott Adams
    I'm really sorry to hear this, and I can understand your frustration and need to figure out what is going on. I would follow your doctor's advice about the aspirin, and be sure to always take it when you have a full stomach, as it can cause stomach upset when taken on an empty stomach. I am not sure what your medical insurance covers, but would it be...
  22. Scott Adams
    I agree with @trents and it sounds like your biopsy results indicate changes in your small intestine consistent with celiac disease, including increased intraepithelial lymphocytes and villous blunting. These findings suggest inflammation and damage typical of celiac sprue, but final diagnosis will depend on correlating these results with your clinical symptoms...
  23. Scott Adams
    Given that you have an allergy, it might make sense to call companies directly about their products. Look for hard seltzers labeled gluten-free and free of corn-derived ingredients. There may be brands that fit these criteria, but always check labels for any allergens.
  24. Scott Adams
    More information about "Gluten-Free Apfelstrudel (Apple Strudel)"
    Celiac.com 06/04/2024 - Apfelstrudel, a delightful dessert renowned for its flaky pastry and sweet, cinnamon-spiced apple filling, holds a cherished place in German culinary traditions. Originating in Austria but widely embraced in German...
  25. Scott Adams
    Welcome to the forum. Can you tell us more about your situation? Have you been diagnosed with celiac disease? Are you gluten-free? If so, for how long, and is your diet strict?
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