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lcarter

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lcarter

  1. lcarter
    I need to be 100% dairy free to be safe, but have had a poor experience with Daiya products as well. I finally figured it out and decided it was the pea protein that they add to their products that bothers me. [Unfortunately, I must avoid coconut milk, plus sugars like agave and stevia too , besides gluten.]
  2. lcarter
    What an asinine thing for Cruz to say about Celiac Disease --- it only shows his ignorance! I can't believe this guy....he is so pompous!
  3. lcarter
    I know we need to be eating gluten for quite a few weeks before being blood tested, but not necessary for gene tests. But, what about GI biopsies? I have been gluten free for 6+ yrs and my GI went ahead and did GI biopsies which were all negative. There's no doubt that wheat gives me GI problems.
  4. lcarter
    Have they checked you for Crohn's - Inflammatory Bowel Disease which can affect your digestive tract anywhere from the mouth to the anus? Pancreatic problems can be a side feature of this disease. An endoscopy [through the mouth into the small intestines] can only go so far into the small intestine. Sometimes, a Pill-cam [pill + camera that is swallowed...
  5. lcarter
    Since you are "self diagnosed", kind of like me, there are a couple of other possibilities you might want to check out that could explain some of the other food sensitivities you are noticing. A gluten free diet would make a significant difference in 2 other digestive disorders that I can think of: [1] FRUCTOSE MALABSORPTION [and a more serious condition...
  6. lcarter
    I tend to have this too, but mine is more triggered by sugars...especially upon the first sip of soda. It's more like a throat muscle spasm; definitely NOT a burp. It's like my body is saying, "NO WAY!" to the sugar. [besides the gluten sensitivity, I am Hereditary Fructose Intolerant] Anyway, since the trigger is gluten for your little one, perhaps it is...
  7. lcarter
    I used to get these frequently before starting a gluten free + dairy free + low sugar diet. About that time I was told to add Bronson's "Super B" vitamin complex and it has really made a difference. Now I hardly ever have mouth ulcers...and the few times they have popped out, they were much milder and didn't last near as long. So, I would suggest talking...
  8. lcarter
    BP Drug Linked to Gluten Sensitivity By Chris Kaiser, Cardiology Editor, MedPage Today Published: June 22, 2012 Reviewed by Dori F. Zaleznik, MD; Associate Clinical Professor of Medicine, Harvard Medical School, Boston and Dorothy Caputo, MA, BSN, RN, Nurse Planner Action Points
  9. lcarter
    I have found that we really can
  10. lcarter
    Yes, other diseases can cause villi blunting: Open Original Shared Link "Endoscopic findings of the descending duodenum associated with celiac disease may include absence of folds, scalloped folds, visible submucosal blood vessels, mucosal mosaic pattern, and absence of villi. At histology, chronic inflammation of the duodenal mucosa with blunting or...
  11. lcarter
    Here's a significant research paper of interest to all of those who have had a negative biopsy. Another reason not to fully trust negative biopsies is (1)labs miss read them 20% of the time, according to the attached research report, (2)the doctor may not take enough samples -8 are recommended,(3) or there are not enough taken in the right places, as damage...
  12. lcarter
    Contact the following local support group for information on Austin + San Antonio: Open Original Shared Link
  13. lcarter
    I, too, recently gene tested with Prometheus labs and was told that I am negative for both DQ2 + DQ8 - so have an "Extremely Low" chance of developing Celiac Disease. Well, I am, for sure, sensitive to wheat, rye, barley and oats; also extremely Dairy Intolerant to both factions [lactose + protein], plus have Fructose Malabsorption. In any event, a gluten...
  14. lcarter
    I sure hope that this in vitro test works and becomes standard practice. It will make it it sooooo much easier to diagnose! I am one of those "old folks" who slipped through the net before Celiac was even on the radar and diagnosed with an elimination diet and challenge. Since I get so ill when exposed even slightly, it's not recommended to do another challenge...
  15. lcarter
    here's another reference to this new type of test: Open Original Shared Link
  16. lcarter
    My understanding of this is that: first, they did biopsies on each of the three groups. Then, they had the "hard to diagnose" group drop the gluten free diet [after the biopsies]. It was done this way so that the blood antibody tests could be done while on a GFD, in order to cross check that these patients are positive on both tests. It was a scientific...
  17. lcarter
    WOW! This is great news! Hopefully it will be available real soon to those of us who are asked to do a gluten challenge so that biopsies can be done: Patients who do not get a confirmed celiac diagnosis from standard tests could obtain one from an in vitro gliadin challenge, in which biopsied duodenal mucosa are tested using the toxic part of wheat gluten...
  18. lcarter
    Help where do I go from here? I was really SHOCKED to see my Prometheus Gene Test results!!!! They said I do not have DQ2 or DQ8 genes, and have an "Extremely Low" chance of having celiac disease. So, I guess my doctors were wrong years ago when they thought I had celiac disease? Of course, this was before anyone knew what they were doing to test for celiac...
  19. lcarter

    ARCHIVED Coca-Cola

    lcarter replied to AmandaD's topic in Coping with Celiac Disease

    There must be something in colas [coke and Pepsi in particul] that bothers me. But, what it is, I haven;t a clue, I am the only person I know of who has this reaction. It causes muscles in my throat to spasum with a first sip. No, it is not a burp. It's more like my throat squeezes shut as a reaction. I suppose it could be the fructose, since I am fructose...
  20. lcarter
    I agree with the others who think you could be hypothyroid because of feeling cold and the lower blood pressure, both key signs of hypothyroid [low thyroid hormone level]. Thyroid problems are a likely companion to celiac disease. Most doctors only do a TSH [Thyroid Stimulating Hormone] screening which really doesn't tell the whole story. In other words...
  21. lcarter
    If maltose is not gluten related...it makes me wonder then if what I am reacting to is the sugars in the candy, since I am also fructose intolerant. I seem to do better with sugars in foods that are balanced between fructose and glucose, as in some fresh fruits. However, I have to really limit denser sugery foods because they quickly make me nauseas. ...
  22. lcarter
    I was afraid you all would tell me maltose wasn't safe. Boo! We have been buying this imported candied ginger in an oriental market. The outside of the packages just say ginger, sugar and tapioca...but today I discovered that the individual wrapped pieces also added maltose to that list of ingredients in very, very small print. I had to get a magnifying...
  23. lcarter
    I love candied ginger and I just discovered that the packages we bought has maltose in it. Is maltose safe for us celiacs?
  24. lcarter
    For me it means a delayed reaction. I believe that this is more common with celiac disease than not. It lasts anywhere from 3-10 days depending on how much I accidently ingest..... 1. Nausea, usually within 30-60 min. or so of ingestion of gluten or dairy 2. Followed by bloating for a day or more 3. Then, either loose stools and/or diarrhea for a day...
  25. lcarter
    I am thinking about having a gene test done and am wondering which lab to use. Which lab and test did you have? And, why did you choose the particular lab? Thanks the info as this will help me to make a decision.
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