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lcarter

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Everything posted by lcarter

  1. lcarter
    Well, this is kind of after the fact....but my husband and I, both having science backgrounds, have become interested in genetic testing more out of curiosity than anything else. [i have been gluten free for about 6 yrs and dairy free for over 40 yrs.] I am looking at both Prometheus Lab and Enterolab's cheek swab genetic tests and wondering which of the...
  2. lcarter
    I also tested Vit D deficient, so my doctor put me on an extra 1 mcg of Vit 3 daily. But, now am only borderline in the normal range. We live in Panama a good part of the year which is much closer to the equator than the US, so the sun is much more intense. Unfortunately, because of skin issues, I have to wear total coverage sunscreen + wear a sun...
  3. lcarter
    Yes, I had mouth ulcers, too, as a symptom of vitamin deficiencies. But the sores got much less numerous and frequent after adding Bronson's Super B's along with the Therapeutic Formula of vitamins and minerals...and then, totally went away after we discovered the celiac disease -- except, of course, if/when I get accidently glutened. It is essential...
  4. lcarter
    Yes, there have been times when I was angry, too. I have had digestive problems since birth [1942] with classic-textbook like celiac disease symptoms and still no doctor ever suggested celiac - even 3 gastro's I saw over the years. It is maddening! Because of my experience, I don't fully trust doctors concerning this disease, even now. The only way to protect...
  5. lcarter
    I'm one of those with Celiac, Sojgrens, and Hasi-hypothyroid - all AI diseases. I also have some mild joint achiness from time to time, but have yet to figure out what triggers it at those times when I'm pretty sure I haven't been accidently glutened. Anyway, I had one episode a couple of years ago of some joint swelling with an elevated Rheumatoid Factor...
  6. lcarter
    I had a similar experience as WhenDee. I had seen 3 gastros over the years + and many other doctors who were all clueless. They would treat a symptom and never see the big picture. So, I was told IBS, lactose intolerance, etc, etc...like many others. About 8 yrs ago, I was visiting a son and daughter-in-law and had one of my usual digestive disorder episodes...
  7. lcarter
    ANYONE ELSE GET A FLAT CURVE GLUCOSE TOLERANCE TEST RESULT? Over many years I have had three 6-hour GLUCOSE TOLERANCE TESTS because when I mention that sugar makes me sick to my stomach, that is the first thing a new doctor wants to do. They always think it might be Diabetes. And every time I get a FLAT CURVE result. I have been told it is a failed test...
  8. lcarter
    MANY OF US WITH celiac disease/GLUTEN INTOLERANCE HAVE BONE DENSITY ISSUES. I THOUGHT THIS ARTICLE WAS SOMETHING OTHERS MIGHT WANT TO BE AWARE OF TOO. I HAVE CERTAINLY CUT WAY DOWN ON THE FREQUENCY I DRINK SODAS THESE DAYS AFTER READING THIS. CARBONATED COLA DRINKS DROP BONE DENSITY IN WOMEN By Judith Groch, Senior Writer, MedPage Today Published:...
  9. lcarter

    Brain Lesions

    lcarter replied to jenarella's topic in Doctors

    I'm one of those with a few brain white matter lesions. My family doctor, probably because of my age of 65 at the time it was discovered, said they were ishemia probably from small minor strokes. I told him about the connection to celiac disease which he wasn't aware of. I had the classic celiac disease symptoms for years but no GP or medical specialist...
  10. lcarter
    Here is what I do when traveling and will need to visit restaurants with fellow travelers. I always carry small pull-tab cans of tuna fish. Then, I order a plain veggie salad [for example: Subways are found everywhere, frequently even in airports] and order it with a simple dressing [oil+vinegar or just squeezed fresh lemon]. I carry gluten-free crackers...
  11. lcarter
    I too have been in the hospital with my intestines swollen almost shut and doctors threatening to remove part of my intestines. Fortunately, it never got to the point that they actually had to do it! But, it also has never happened again since going gluten free.
  12. lcarter
    I have gone from sever to moderate while on the gluten + dairy free diet. Also, I am off 2 full time asthma meds which I took daily. However, I still have to take a daily antihistamine to keep it mild.
  13. lcarter
    CHECK OUT THE FOLLOWING LINK FOR HELP IN SPAIN: Open Original Shared Link IF THIS ADDRESS ABOVE DOESN'T WORK FOR WHAT YOU WANT TO KNOW, TYPE INTO SEARCH "FUNDACION DE CELIACOS DE ESPANA". THIS IS AN INTERNATIONAL ORGANIZATION THAT HAS BRANCHES IN MANY SPANISH SPEAKING COUNTRIES.
  14. lcarter
    I am an American living in Panama with celiac disease. There is a new organization here that is from South America. Search "Fundacion de Celiacos de Columbia" and see what you can find out. I wouldn't be surprised if there is a branch of this international group there in your country.
  15. lcarter
    BLOOD TESTS for FOOD ALLERGY FOUND INACCURATE Primary source: Journal of Allergy and Clinical Immunology Source reference: Spears G, et al "Over-reliance on serum testing for IgE to food allergens results in inappropriate food elimination diets" J Allergy Clin Immunol 2009; 123: S179. By John Gever, Senior Editor, MedPage Today Published: March...
  16. lcarter
    Wow, you can loose weight on this diet? Since going gluten free, I have gained weight and have a normal weight for the first time in my life. I was always underweight before - I weighed only about 98-102 lbs for many years at 5'3'' [except when pregnant]. Always had problems with being anemic, spells of D and vomiting, nausea, apthus mouth ulcers, vitamin...
  17. lcarter
    Oh, I forgot the fresh corn bread made each and every day and served at every meal. It's nice to know that the south still has it's character and flavor!!!!
  18. lcarter
    In the early 1960's I stayed with a family in Georgia and they told me, "Honey, ya'all can eat yo grits anyway ya'all like em...their jus' de-licious any ol' waaay!" We had them every morning with eggs and "side bacon". Being from the west coast of the US, it was like being in a foreign country staying them. We had fried chicken every Sunday, and either...
  19. lcarter
    THIS IS A PROFOUND STUDY OF SPECIAL INTEREST TO THOSE WHO FALL INTO THAT SHADY AREA OF THOSE WITHOUT PROVEN INTESTINAL VILLINOUS ATROPHY, YET THRIVE ON A GLUETEN FREE DIET. IT CERTAINLY GIVES CREDENCE TO STAYING TRUE TO THE gluten-free DIET AND NOT CHEATING. IT ALSO ARGUES AGAINST DOCTORS WHO INSIST ON TELLING GLUTEN INTOLERANT FOLKS THAT THEY DON'T NEED...
  20. lcarter
    Digestion starts in the mouth when saliva is mixed with food. Minute food particles begin to pass through the mucous membrane in the oral cavity even before it's swallowed. For an example of this type of absorption, think of the heart patient who has to take nitroglycerine for emergency chest pain. The nitro pill is placed under the tongue for rapid absorption...
  21. lcarter
    When going to anyone's house where food is involved, I follow two possibilities: (1) I eat before I go (if it's only for a few hours)and sometimes take a snack or desert to share with something to drink at the party. (2) I TELL (not ASK) the hostess that I am bringing food to share with everyone. If they say, "You don't need to do that", I just say,...
  22. lcarter
    Yes, I get spasms too, but more in the mid back area and usually after the bloating and diarrhea have subsided some. Interesting!
  23. lcarter
    I found this on my local celiac group site and thought the topic of the possible connection between celiac disease and dyslexia so interesting that it needed to be shared with a wider audience. Since we tend to develop neurological problems...I can see where there could be a connection. For example, it was difficult for me to learn to read when young; and...
  24. lcarter
    This very situation happened to me last night when we were invited over for the first time to have dinner in the home of my son's girlfriend. When she emailed me to confirm, I emailed her back the following reply: We are really looking forward to seeing everyone later this afternoon! I know cooking for me is such a pain since I can't eat any gluten or...
  25. lcarter
    Here's something else to think about if you are continuing to have problems even though you are religious about staying on a gluten free diet. Celiac disease falls under the heading of a "Malabsorption Syndrome". It is not unusual for people with celiac disease to also have malabsorption issues with one or more of the following: dairy [all factions of milk...
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