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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    What he is saying is that if you have Celiac genes, then you can get the disease at anytime. Not that you WILL get the disease. Not everyone with the 2 recognized genes do. You can get tested so you know if you have the genes. For some it helps solidify their commitment to a gluten-free diet. It was for me.
  2. ShayFL
    It does NOT diagnose Celiac. It only can show a genetic propensity. I had it done because I wanted to know for myself and if I had a gene I could have passed on to my daughter. I do not have the recognized U.S. celiac genes. I have 2 genes recognized by some other countries and Enterolab as being gluten sensitivity genes. One being connected to neuro...
  3. ShayFL
    You dont want the oil for internal. You would want Neem Leaf Extract. This is the one I am using: Open Original Shared Link Only 1 little pill a day. I will say I get nervous taking new supplements. So I poked a hole in it and put a dot on my tongue the first day, then 2 dots, then 3. No reaction. I swallowed the pill. I did have die off.....
  4. ShayFL
    Im having some success with supplements. Read my signature. I also take sublingual and transdermal Methylcobalamin B12. I feel I am on the right path for me. Everyone is different.
  5. ShayFL
    This would explain why most people do best around 3 grains of Armour as it is what we would produce naturally.
  6. ShayFL
    I think if AliB could she would change the title.....I dont think she meant it literally. You can see from her posts that she is open to other ideas as well. Like all of us, she is in process....... Ummm....unless I am missing something SCD is gluten free naturally. No grains, processed foods, preservatives, etc. allowed. Only meats, veggies,...
  7. ShayFL
    You should CERTAINLY investigate further with more tests. And then if I were you, try the gluten free diet to see if you improve even more. If gluten is your problem and you are celiac, over time you might be able to add dairy and fruit back in.
  8. ShayFL
    You just get into trouble with ALL type statements, but I dont think Ali is saying this. There is merit in a lot of theories. I like to read what others discover. The more information I have the better.
  9. ShayFL
    Sounds reasonable to me. Try your GP first and if he says no, try the next doctor. If all else fails and you can afford it.....you can contact directlabs.com You can get any test you want without a doctor. But of course you have to pay for it.
  10. ShayFL
    I had this for the first 6 weeks gluten-free.....it did calm down thankfully. You just seem to be going a little longer, so hopefully it will end for you soon too. I didnt gain weight either, but I was eating TONS. I think the body is trying to make up for lost time and trying to absorb as many nutrients as possible (so requesting as much food as possible...
  11. ShayFL
    You just say to your doctor: I want a full Celiac panel run please. If he objects, just say: I have done a lot of research lately and I keep running across Celiac and I feel that it just might be my issue. There is no harm in finding out is there doctor? I am so hoping you will be the doctor to help me, but if you cannot run these tests, then I will...
  12. ShayFL
    Welcome to the board Steve. Congrats on your weight and health!
  13. ShayFL
    Your tests may come back negative because you were gluten-free and could have healed in that time. Most believe a few slices of bread a day is NOT ENOUGH. And you should be eating gluten heavily for 3-4 months BEFORE the test to get an accurate result. So here is your issue. You know that gluten-free makes you feel better and gets rid of your symptoms...
  14. ShayFL
    It sounds like you have your answer. But if you think you will live in "doubt" forever even though you are feeling better, then gluten up and get tested.
  15. ShayFL
    My guests always seem to be oh so impressed with baked cornish game hens and they are so very simple to cook. Just season and bake. Throw in a side of blanched green beans with toasted almonds and a baked potato.
  16. ShayFL
    7th Generation pads have wheat used as an "absorbent" material. So other pads might use the same wheat based material.
  17. ShayFL
    How awful.....I hope you continue to heal. And good for you helping others.
  18. ShayFL
    I only eat it sometimes in that delicious coconut "ice cream" by Open Original Shared Link I dont overdue it because Agave Nectar is almost pure fructose which does the same thing as high fructose corn syrup. It causes insulin resistance according to all of the research I have come across. So just to be safe, I only use for special treats now and again...
  19. ShayFL
    To my knowledge there is no pill for casein intolerance. You might be able to "mask" the symptoms with some drugs, but it does not solve the problem. The "pill" is for lactose intolerance. It is an enzyme that helps break down the sugar lactose. Lactose intolerance is due to a lack of the enzyme lactase. Casein intolerance is from a different mechanism...
  20. ShayFL
    I agree...dis-ese is multi-faceted. There is not "one thing" to fix.
  21. ShayFL
    Google "D-Mannose" as well as this can help the UTI.
  22. ShayFL
    They have discovered we have glutamate receptors. It is confusing because it sounds like "gluten".
  23. ShayFL
    Ali what you said made me realize something. My Mom, Sister and Brother ALL have psoriasis. I do not. You talk about families inheriting the same bacteria/diseases. Why the difference for me and my siblings? Why didnt I get psoriasis? They were BOTH breastfeed. I wasnt. Hmmmmmm...........
  24. ShayFL
    My first doctor was not letting me increase either.....so I did on my own. Like you I am thin. I was told for 10 years that I could not possisibly be hypothyroid because I was thin and not constipated. Well.....when they finally got wind of the new lab ranges......ho ho ho.....seems I am hypo afterall. 10 years of my life in misery due to doctors...
  25. ShayFL
    I second checking to see if they did the complete Celiac panel (NOT GLUTEN ALLERGY) and Endoscopy (NOT COLONOSCOPY) at this point. You can do that one later.
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