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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    Whenever I'm constipated, this is what I do and it is the ONLY thing that works for me. Best part is it's NARURAL and SAFE for anyone! I boil water, fill a tall mug with it and drink it straight. NO lemon, NO tea or it won't work! Just boiling hot water, as hot as you can stand. It's unbelievable how it works. I did this multiple times when I had stomach...
  2. leadmeastray88
    Why not use quinoa flakes instead of oats? I can't tell the difference in my baking!
  3. leadmeastray88
    Here, we like to call IBS "I be stumped". It's basically the diagnosis docs give you when they don't know what is wrong. Personally, I didn't take that as an answer. I tossed the script and demanded answers. And your doctor is wrong if she says that you need to have bloody stools to have Celiac. To me, it sounds as if she is disregarding your concerns without...
  4. leadmeastray88
    Hi there, I had vitamin B12 deficiency prior to going gluten free and prior to my diagnosis. I take sublingual B12 tablets now and am doing fine. I agree with ShayFL that the most telling of your tests is the 'slightly flattened mucosa'. This is from Wikipedia: "Impaired absorption of vitamin B12 in the setting of a more generalised malabsorption or...
  5. leadmeastray88
    Here's an easy recipe that I just got! -Glutino pretzels -Caramel Hershey kisses -Whole almonds Place pretzels on a cookie sheet, place a Hershey kiss on each pretzel. Pop in the oven until chocolate is soft, pull out and push a whole almond on top. The caramel oozes out, SO yummy! And HIGHLY addictive!
  6. leadmeastray88
    Nick, I have been dating the same guy for 6 years now, and I was diagnosed just this summer. I can tell you that not one thing has changed between us. He was actually really happy because he didn't want to see me suffer anymore. And he knows what happens when I accidently eat it and tries really hard to keep me safe. The only thing that HAS changed is...
  7. leadmeastray88
    I just thought that I would mention that I was diagnosed with acid reflux prior - I was on prescription Losec for 3 years, eventually it got so bad I had to up the dose to 2 a day just to feel a bit of relief. After going gluten-free, I've never had to take another Losec so far. Could be a symptom for you as well! Get tested
  8. leadmeastray88
    Yes! Your symptoms could definitely be attributed to Celiac. It's a good idea to rule Celiac out because it can cause all kinds of other problems if left untreated. (i.e. other autoimmune diseases) You need to ask your doctor for ALL of these blood tests, not one, not some, ALL of them or they won't tell you anything: -IgA -IgG -tTG -Total IgA There...
  9. leadmeastray88
    I have to agree with Lizard00. It does really sound like Celiac since his blood was positive, and it's not a "low positive" if he's IgA deficient which he clearly is... so in reality his IgA levels are probably extremely high. I would take the bloodwork as enough evidence because some Celiacs will never have a positive biopsy no matter how much gluten they...
  10. leadmeastray88
    Hi there! Welcome to the board! It's hard to find a GI who is even familiar with Celiac to begin with, nevermind one who specializes in Celiac. That may be hard to find, but of course it wouldn't hurt to do some research. If you can, go for it! As for you being overweight, I know there are people here who experienced this as well instead of being underweight...
  11. leadmeastray88
    I would ABSOLUTELY sign this letter. Although most of my problems have been resolved by a gluten-free diet, I am curious to know the answers to the questions you mentioned in your letter. I also want to provide support for anyone whose problems did not resolve on a gluten-free diet as prescribed by Dr. Fine. Perhaps you should add that his genetic testing...
  12. leadmeastray88
    It's very possible that you could get positive results, IF you were eating gluten. You've been gluten free for awhile now, long enough to make the results inaccurate. If you want to re-do the bloodwork you'll need to go back on gluten for a long time to re-create the damage that has been repaired already. The good news is that you haven't been gluten-free...
  13. leadmeastray88
    I don't see why that would be necessary, considering her bloodwork was negative. There's nothing to base her 'progress' on.
  14. leadmeastray88
    Hi there, I didn't know you could 'treat' parasites with antibiotics. I could be wrong. I thought antibiotics could be the cause of parasites because of the killing of the good bacteria? I would find it hard to believe that the parasites are causing a high tTG count. tTG is the most specific blood test for Celiac, so I'd be 99.9% sure you have it. Your...
  15. leadmeastray88
    Yup, that was me who started that thread Here's the link: Open Original Shared Link I have called Starbucks Customer service directly, and they never got back to me. Not by email or phone. So I don't know that they contain gluten for sure, because caramel spice is supposedly safe in the US and Canada. Could be the spice part / something else. ...
  16. leadmeastray88
    If I had a nickel for every time they mentioned a disease during differentials and had no clue what it was I'd be rich. Doesn't mean I look it up to see what it is. I have to admit though, being on this forum has made me so aware of other conditions I could almost diagnose them myself I remember one episode a guy had dry eyes and mouth and I blurted...
  17. leadmeastray88
    It's still possible that you are Celiac. You had the bloodwork done 6 weeks gluten free and that is long enough to give you a false negative. You need to be eating gluten to have accurate bloodwork. Even then, we all know here that the bloodwork can be terribly inaccurate, as people here have been diagnosed with POS biopsy but had NEG blood. If you find...
  18. leadmeastray88
    Thanks so much Shay, you're always so encouraging I understand that if it is indeed pre-cancerous/cervical cancer that it is very treatable and many people live on their lives without it every reappearing. I guess I'm just concerned because I'm only 20 - I haven't even had kids yet. And I want to someday. I don't want anything to get in the way of...
  19. leadmeastray88
    I'm pretty sure it was bleeding before. I went for the Pap last week and it was bleeding, so she figured it might still be my period so we rescheduled it to yesterday. Still bleeding. It's hard not to think the worst when I don't know anything about it. At this point, from what I've researched and from what you guys said, it seems like it could only...
  20. leadmeastray88
    That's good to know, so it may be nothing at all. Problem with me is, I've had a pap smear before and the exam and results were normal - no bleeding. Also I've never bled after intercourse. This is all news to me.
  21. leadmeastray88
    I would find it hard to believe if it was chlamydia. I've had the same BF for 6 years - we were each others' first and only. Never been apart. Is chlamydia a possibility if you've only had one partner??
  22. leadmeastray88
    Hey guys, I'm always able to turn here for advice on Celiac/gluten issues but I'm hoping someone could provide me with some advice for this. I went for my yearly physical w/Pap and all yesterday, and during the exam my GP mentioned that my cervix was bleeding, that it's 'friable'. I'm nowhere near my period (and I'm on the pill) so it's not that...
  23. leadmeastray88
    I shop at Bulk Barn and have never had a problem yet. At mine, they keep all of the gluten-free products in a seperate area, so the scoopers don't get mixed up with the other flours/starches. If they were with other flour products I would be concerned.
  24. leadmeastray88
    I have the DQB*0202 gene too. I had a dispute with Dr. Fine on this, as Kimball genetics states that the Celiac genes are DQ2 (encoded by alleles DQA1*0501 or *0505 plus DQB1*0201 or *0202) and DQ8 (encoded in part by DQB1*0302). How can he possibly rule out that DQB*0202 isn't a Celiac gene when they don't test for the alpha part? Dr. Fine seems...
  25. leadmeastray88
    Hi Konaa, Hang in there. This is the hardest part of it all - getting through the testing. And like ShayFL said, you need to be eating gluten (a lot, like 4-6 slices of bread a day) for the test results to be accurate. Your symptoms, to me, seem very suggestive. Even if the blookwork comes back negative, I highly suggest getting in to see a GI and getting...
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